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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Junior Member
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I have always been told by doctors RSD is only a symptom of something greater. Since I have had RSD I have had 10 infection, and 4 new health conditions -- IBS/acid reflux; endometriosis; chronic infection and Metebolic tremors. A friend of mine has also question if RSD, fibromyalgia have a genetic link...if a mutation in the gene causes familys and people more susceptible to chronic pain. In my family I know of 3 people with chronic pain, me, my aunt(my moms sister) and her daughter.
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"Thanks for this!" says: | buckwheat (03-08-2009) |
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#2 | ||
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I want to thank you from the bottom of my heart for your Intergrity. I have had several infections to do with as well. Which no antibiotic or HBO treatment was enough alone. My pain levels are today are on a 0-1 scale. Hang in their, you are in my heart and prayers. Please feel free to PM me. God Bless You, Roz Last edited by buckwheat; 03-08-2009 at 04:57 PM. |
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#3 | |||
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Member
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Imahotep,
Meeeeeeee tooooooooooooo.........I Know more about irritation of all kinds too *LOL* DebbyV |
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#4 | |||
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Hey Debby, you sound like me! LOL I haven't had any infections or even been sick in quite some time. I'm, quite literally, healthy as a horse! :-) I found it odd recently that hubby has had at least 2 colds in the past...oh 6 months, maybe longer and my daughter 1. One week to the day, always, never failed I'd end up with a cold too. I've not caught any of the 3 colds at all! I waited and waited and got a mite nervous nearing that 7 day point to get a slight fever and hacking cough. Nothing!! Has rsd made me less susceptible? It sure seems that way to me. LOL
You're experience with severe dysplasia/cervical cancer was a lot like mine. It's been 14 yrs now since I went through it. The doc did the leep procedure within days of confirming and got rid of it. He had told me if I had waited even one more week or less to have that check up, I would have had full blown cervical cancer. I'm happy for both of us it was caught in time. For me, the pid happened over a year before that incident. I don't think it's connected simply because I really did expect a female cancer to pop up. It runs in my family big time. Not one woman in my family has gone through menopause. For one reason or another they've all had to have hysterectomies. I'm lucky that one incident was my only problem and I've been in perimenopause since I was 30-31 yrs old. LOL I wish it would just quit already! Hugs, Karen
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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#5 | ||
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Member
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Quote:
Gabbycakes |
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"Thanks for this!" says: | DianaA (03-09-2009), info hungry (03-09-2009) |
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#6 | ||
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Hi Folks,
I am so happy to hear your health is so well. But on a serious note, what about the ones that aren't? Much Love, Roz |
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#7 | |||
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Member
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Karen,
Well, I also attribute my good health as far as flu & colds go to getting a flu shot every year. I have had one almost every year since hmmmmmm 1992 I think. The couple of years that I didn't get a flu shot I did end up with influenza & close to pneumonia. I coughed so hard one year from it that I broke a rib & let me tell you that was no picnic. I couldn't be bound up because I needed to keep coughing so I didn't end up with pneumonia. So ever since that incidient I get one every year. And I recommend most get a flu shot. But that is my opinion. And that is how the shot works for me. I also have had a pneumonia shot. I was disabled back then also but not because of RSD. That was because of a bad car wreck in 1991. I finally healed from that in 1997. That is a whole story in & of itself. I was dx'ed with Fibromyalgia in 1989 & it was determined a few years after that due to my history of pain to probably have been unlucky enough to have inherited it. Sjogren's was dx'ed in 2003. A few months before the burning pain of RSD hit me. I have actually had Sjogren's since about 1998. I had the first symptom then anyway. The others came on in other years after that. I do have osteopenia also in my hips. I too other than these pain syndroms am healthy. I also have an enlarged liver but they do not know what is causing it. It is healthy otherwise. No high BP, no heart problems etc. Roz, The people who have the problems you are speaking of, well I have no answer for them or for you either. Sorry. And I have no clue to it either. Maybe these things have just happened for some other reason. DebbyV |
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#8 | |||
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Member
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You've been through quite a lot! Dealing with not just rsd but the others as well...I can't imagine. If I had more than one problem, I'd adjust and learn to live with it as I have rsd. That's just how I am anyway. I don't mind admitting I give thanks that it's only rsd though.
My dad has broken his ribs coughing more than once over the years, so I understand perfectly why you make sure to get a flu shot every year! I'm with you though, it it happened even one time to me, I'd be getting a shot too. LOL I was in a wreck in 1990 but my recovery was positively swift compared to yours! Wow....I feel even luckier now. We were just pulling onto US1 because the light turned green. Someone ran the red light and plowed into my side of the car in the back going 50-55 mph. We spun around several times ending up on the opposite side of 4 lanes facing North when we were going West. I spent a week in hospital with a collapsed lung and spent 2-3 months dealing with a badly messed up shoulder than froze. Dang that was...a pain. LOLOL Seeing your recovery in years...wow. I'm glad you did recover and are here with us today. ![]() Hugs, Karen
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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#9 | |||
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Member
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I have to say that while I am totally in favor of looking outside "the box" for that which predisposed us all in the development of this process, I cannot help but feel that tying RSD to either "infections" or "cancer" seems a little broad. There are none of us who know anyone that hasn't had some infection and none of us who do not know someone diagnosed with some form of cancer. Infection by some means is part of being human and cancer is the most common killer after heart disease/cardiovascular compromise. Can we really say that this makes them stastically valid? There are far more who have had these processes that haven't even heard of RSD, much less experienced.
Just wanted to add my two cents, strictly to keep anyone from fearing a process (infection of any sort) over which there is no real escape. Can any of us actually prevent all infectious processes? Can anyone have certainty that they will not develop any type of cancer? No. While certain infections are certainly worth investigation, I can't help but feel that general terms such as "infection" and "cancer" can be misleading. Lori Lee |
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"Thanks for this!" says: | ali12 (03-12-2009) |
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