Hi Folks,

I am so happy to hear your health is so well. But on a serious note, what about the ones that aren't?

Much Love, Roz

Karen,
Well, I also attribute my good health as far as flu & colds go to getting a flu shot every year. I have had one almost every year since hmmmmmm 1992 I think. The couple of years that I didn't get a flu shot I did end up with influenza & close to pneumonia. I coughed so hard one year from it that I broke a rib & let me tell you that was no picnic. I couldn't be bound up because I needed to keep coughing so I didn't end up with pneumonia. So ever since that incidient I get one every year. And I recommend most get a flu shot. But that is my opinion. And that is how the shot works for me. I also have had a pneumonia shot. I was disabled back then also but not because of RSD. That was because of a bad car wreck in 1991. I finally healed from that in 1997. That is a whole story in & of itself. I was dx'ed with Fibromyalgia in 1989 & it was determined a few years after that due to my history of pain to probably have been unlucky enough to have inherited it. Sjogren's was dx'ed in 2003. A few months before the burning pain of RSD hit me. I have actually had Sjogren's since about 1998. I had the first symptom then anyway. The others came on in other years after that. I do have osteopenia also in my hips. I too other than these pain syndroms am healthy. I also have an enlarged liver but they do not know what is causing it. It is healthy otherwise. No high BP, no heart problems etc.

Roz,
The people who have the problems you are speaking of, well I have no answer for them or for you either. Sorry. And I have no clue to it either. Maybe these things have just happened for some other reason.

DebbyV

You've been through quite a lot! Dealing with not just rsd but the others as well...I can't imagine. If I had more than one problem, I'd adjust and learn to live with it as I have rsd. That's just how I am anyway. I don't mind admitting I give thanks that it's only rsd though.

My dad has broken his ribs coughing more than once over the years, so I understand perfectly why you make sure to get a flu shot every year! I'm with you though, it it happened even one time to me, I'd be getting a shot too. LOL

I was in a wreck in 1990 but my recovery was positively swift compared to yours! Wow....I feel even luckier now. We were just pulling onto US1 because the light turned green. Someone ran the red light and plowed into my side of the car in the back going 50-55 mph. We spun around several times ending up on the opposite side of 4 lanes facing North when we were going West. I spent a week in hospital with a collapsed lung and spent 2-3 months dealing with a badly messed up shoulder than froze. Dang that was...a pain. LOLOL Seeing your recovery in years...wow. I'm glad you did recover and are here with us today.

Hugs,

Karen

I have to say that while I am totally in favor of looking outside "the box" for that which predisposed us all in the development of this process, I cannot help but feel that tying RSD to either "infections" or "cancer" seems a little broad. There are none of us who know anyone that hasn't had some infection and none of us who do not know someone diagnosed with some form of cancer. Infection by some means is part of being human and cancer is the most common killer after heart disease/cardiovascular compromise. Can we really say that this makes them stastically valid? There are far more who have had these processes that haven't even heard of RSD, much less experienced.
Just wanted to add my two cents, strictly to keep anyone from fearing a process (infection of any sort) over which there is no real escape. Can any of us actually prevent all infectious processes? Can anyone have certainty that they will not develop any type of cancer? No. While certain infections are certainly worth investigation, I can't help but feel that general terms such as "infection" and "cancer" can be misleading.
Lori Lee

Of course you're right.

But if an infectious agent can be found then it can probably be treated. My docs mostly think it's ludicrous that it might be a microrganism because they believe it would have been isolated by this time. But I wonder if it might actually be a couple operating in tandem. It's curious that amputation used to be common and be fully successfull in about 10% of cases. In the other 90% it made the disease far worse. This alone seems to imply that the procedure might be interupting the life cycle of something. The fact that the disease spreads is quite curious as well. It certainly seems absurd that an injury might spread to other parts of the body.

Antibiotics seem to suppress symptoms.

I keep thinking that the finger or toenails are involved in most cases.

ok if this some sort of virus or other infection type illness for those of us that have been on repeative antibiotics and not seen any improvement or even made symptoms worse. would you guys consider this as not a infection type response to the autonotic system . as for me and my journey with rsd, antibiotics have cure the current or past infections that i have but not helped rsd in any way shape or form. and as far as the cancer is concerned there is techniquly more treatment for that there there is for RSD . but for those of us that know what caused our rsd ,lets say some sort of trauma how would virus or infection play a role into this. as for me i had many injurys before the intial rsd injury and had no problem with healing or carrying on my normal day to day life


as i said this my cheap two cents and thats all

carrie

Not necessarily. hugs, Roz