Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-09-2009, 02:13 PM #1
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Originally Posted by lindkaye View Post
Hi there;

I was a little confused by your posting - have you been on methadone for six years, or has the dr just prescribed it? I have been on methadone for my RSD nerve pain in leg for almost 10 months. I take it along with oxycodone and Lyrica. It does help. I have tried just the oxy, alone - was not getting the relief I needed. The combination of the two works for me. I started taking the Lyrica because I was having pain that was different from the pain I had in my knee. This seemed to help that. I am worried about being on these for so long. But my pain management dr has explained that if I cannot get my pain level down, I will not be able to do pt to regain the movement in my knee - and since it does work - not to keep worrying about being on the meds - just another anxiety I don't need. I am on a fairly low dosage and monitored by the pain clinic. I do realize when I go to quit taking these drugs, I will have side effects - but I can't worry about down the road - just trying to think and live for the day.
Sorry for the confusion. I am curious who tried methadone. I been on it for a long time and doctors want to keep me on it. I tried other other pain meds and they just never worked. Its like when I had surgery end of January the stopped my methadone and put me on a high lvl pain killer and it just couldnt dull my nerve pain like the methadone and after 5 days I wen back on the methadone.
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Old 03-09-2009, 02:43 PM #2
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Default Hi,

I was on Methadone for over 5 years and still keep it around for my worst days. I was able to get off of everything about 5 months ago.

I tried everything going and the side effects were just too much for me. When we found that I could take Methadone with very little problems my Dr. was on Cloud 9. He thought we'd never find anything that I could take or that would help the pain.

I was able to stay on a lower dosage. I took 2 1/2 mgs. Every once in awhile I had to take 5mg's but I most stayed with the low dosage.

I know everyone can't take it, but I carry some in my purse and have it at home and it does knock the pain for me.

Welcome to the group.

Ada
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Old 03-09-2009, 09:35 PM #3
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Default Welcome

Welcome,
I don't have any experience with methadone, but I just wanted to say "Hi" and welcome you, here.
Di
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