Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-15-2009, 04:43 PM #16
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Sorry about your rat. Bummer.

I can totally empathize with the feeling of isolation that you are experiencing. I do not know anyone else that has RSD. The only people that I have to share info with are here and on one other board that I visit. I do have my PT, who has had a few RSD patients and has taken a sincere interest in my case, that I see 2X a week. But otherwise I don't have anyone to really talk to that understands.

I am really sorry that you are going through so much all at ounce. Can you get to the Cleveland Clinic this week? Getting into a more experienced practice made a difference for me. (I'm still screwed - the RSD had spread by the time I made to Boston). But I'm better off than I would be if I had never gone there.

You are in my thoughts and prayers, please take care of yourself.

XOXOXO Sandy
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