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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-24-2009, 03:41 PM #1
RSD31 RSD31 is offline
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Hi i have RSD , I have it in both arms & shoulder since 1980 i was told today that I will need both shoulders total replacements, I have been trying to get my LTD & SSI since 2005. glad i found this site
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Old 03-24-2009, 04:12 PM #2
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Default Hi RSD31,
Welcome to the forum.

If you have to have surgeries try and get blocks before the surgeries. They do help keep it from spreading at times.

It does take time to get disability. Some do get it quicker then others though. Just keep at it.

Ada
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Old 03-24-2009, 11:00 PM #3
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Default hi RSD30
hi and welcome i have full body rsd since 98 also it has effected my organs. like ada said i would try blocks or any other treatment before you go into full blown replacement surgery .. im glad that you found us we are a great group

carrie
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hope this finds all in less pain
.



rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 03-24-2009, 11:30 PM #4
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Default Welcome
Hi RSD31,

I am fairly new to this site also. Sorry to hear you may need surgery. If sugery is performed make sure your Drs. are RSD knowledgeable Surgeons/Anesthesiologists. Several blocks all within an hr. of surgery is very important. You may already know all this. FYI from another RSD lady. Welcome to NT everyone is so helpful here with positive feedback. I look fwd to getting to know you. Take care

Debbie
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Old 03-24-2009, 11:54 PM #5
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I went through a surgery last fall, albeit minor compared to what you are facing but it was on my rsd affected limb. The doctors knew what to do with me to prevent further spread of the rsd. You can read some of my posts I have made by searching on my user name. Please feel free to contact me if you have any questions. Welcome to our forum.

MsL
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