Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-29-2009, 12:01 PM #11
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Default Wonderful!

Mary,
I have never tried the Opana so I couldn't reply with any personal experience, but I thought I drop and a line to say how happy I am for you!!! I know that you are enjoying life now. I am grateful to see you are doing better. I think the horses will be happy to see you back, too. Much luck on continued pain relief. Di
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Old 03-29-2009, 01:14 PM #12
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I'm happy you found something that works.
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Old 03-30-2009, 09:16 AM #13
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Default Hi Mary,

How is the Opana doing? I hope you are getting the relief you need. You have been through way too much and hopefully this will help you.

Ada
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Old 03-31-2009, 10:19 AM #14
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I showed my wife, who has full body RSD, this thread about the relief you've received from Opana. Just to put things into perspective and get an idea of Opana's performance, can you tell us what pain meds you received before you were prescribed Opana? Thanks jim
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Old 03-31-2009, 06:36 PM #15
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Default Jim

Hi, I can tell you I've been on almost every med out there. I've been on oxicontin, oximorphine, perc, almost everything oxi and hydr. I haven't been on Fentenal. I've been on morphine, pills, iv, Neuronton, lycra, muscle relaxers, I've also had 2 scs. I've also been on ketamine creams for pain. Nothing seems to help much. I found this new PM and at first I didn't care for him. This 2nd time, it was much better. He has started me on 10mg Opana er 2x a day. I take it at 7.30 am/pm. It seems that 3 hrs after I take the meds, I must sleep for about 2 hrs. Then I am fine. I'm really surprised that it works as well as it does. I really didn't think anything would help. I've been looking into a morphine pain pump as a last resort, that's how desperate I was. Now that I have the Opana er to take, I may hold off on it. I know that it is a med dose, it can go up a lot more. My dr will be upping mine when I see him on the 16th. I do know that there is an Opana ir that can be used for breakthru pain. It's surprising how the pain level is down. The worse thing, and the only thing I have against it, is that it makes me sleepy. Of course, when I'm awake, I have energy and I don't hurt much. There are other side effects, the same as with any other meds, but I love it. It may be worth asking her dr. about it. any other questions just ask.

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Mary
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Old 04-01-2009, 08:33 AM #16
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Quote:
Originally Posted by lostmary View Post
Hi, I can tell you I've been on almost every med out there. I've been on oxicontin, oximorphine, perc, almost everything oxi and hydr. I haven't been on Fentenal. I've been on morphine, pills, iv, Neuronton, lycra, muscle relaxers, I've also had 2 scs. I've also been on ketamine creams for pain. Nothing seems to help much. I found this new PM and at first I didn't care for him. This 2nd time, it was much better. He has started me on 10mg Opana er 2x a day. I take it at 7.30 am/pm. It seems that 3 hrs after I take the meds, I must sleep for about 2 hrs. Then I am fine. I'm really surprised that it works as well as it does. I really didn't think anything would help. I've been looking into a morphine pain pump as a last resort, that's how desperate I was. Now that I have the Opana er to take, I may hold off on it. I know that it is a med dose, it can go up a lot more. My dr will be upping mine when I see him on the 16th. I do know that there is an Opana ir that can be used for breakthru pain. It's surprising how the pain level is down. The worse thing, and the only thing I have against it, is that it makes me sleepy. Of course, when I'm awake, I have energy and I don't hurt much. There are other side effects, the same as with any other meds, but I love it. It may be worth asking her dr. about it. any other questions just ask.

Hugs
Mary
Mary, thanks for the info! My wife, Suzy, has taken many of the meds you've received and has visited doctors about pumps and spinal stimulators. She finds Oxycodin and Vicodin help the most but Opana is something she's going to look into. She also used Ketamine cream but felt it didn't do much for her. She now uses a steroid cream for her chapped hands and lidocaine cream for her neck and back.
Thanks again. jim
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