Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-01-2009, 08:33 AM #14
Jimking Jimking is offline
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Join Date: Mar 2009
Posts: 879
15 yr Member
Jimking Jimking is offline
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Join Date: Mar 2009
Posts: 879
15 yr Member
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Quote:
Originally Posted by lostmary View Post
Hi, I can tell you I've been on almost every med out there. I've been on oxicontin, oximorphine, perc, almost everything oxi and hydr. I haven't been on Fentenal. I've been on morphine, pills, iv, Neuronton, lycra, muscle relaxers, I've also had 2 scs. I've also been on ketamine creams for pain. Nothing seems to help much. I found this new PM and at first I didn't care for him. This 2nd time, it was much better. He has started me on 10mg Opana er 2x a day. I take it at 7.30 am/pm. It seems that 3 hrs after I take the meds, I must sleep for about 2 hrs. Then I am fine. I'm really surprised that it works as well as it does. I really didn't think anything would help. I've been looking into a morphine pain pump as a last resort, that's how desperate I was. Now that I have the Opana er to take, I may hold off on it. I know that it is a med dose, it can go up a lot more. My dr will be upping mine when I see him on the 16th. I do know that there is an Opana ir that can be used for breakthru pain. It's surprising how the pain level is down. The worse thing, and the only thing I have against it, is that it makes me sleepy. Of course, when I'm awake, I have energy and I don't hurt much. There are other side effects, the same as with any other meds, but I love it. It may be worth asking her dr. about it. any other questions just ask.

Hugs
Mary
Mary, thanks for the info! My wife, Suzy, has taken many of the meds you've received and has visited doctors about pumps and spinal stimulators. She finds Oxycodin and Vicodin help the most but Opana is something she's going to look into. She also used Ketamine cream but felt it didn't do much for her. She now uses a steroid cream for her chapped hands and lidocaine cream for her neck and back.
Thanks again. jim
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