Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-08-2009, 08:20 AM #1
SandyRI SandyRI is offline
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The exhaustion and migraines are also an issue for me - how do you treat them? have you found anything that works?

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Originally Posted by angelrsd View Post
i have had so many of these problems the migranes lossing my car in parking garage. to tired to get up sometimes. it drives me nuts most of the times. or just the problem of not sleeping and then the SX goes nuts. i also do have damage to my brain from the car accident that caused my rsd.. i see certain colors different or like my vision is like an 80yrs old. im 27 for god sakes. but i think that tiredness and migranes are the worse for me..

im glad that someone started this .. great idea!!!!!

carrie
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Old 04-08-2009, 09:21 AM #2
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DianeA, Thank you. There have been a lot more major changes like my counselor pointed out on Monday. It would probably be better if that where the only one. But on top opf that last year just before my 20 year wedding anniversay my husband & I had to file for divorce to protect him from all my medical bills & being responsible for me anymore. We needed to protect the house & everything we had worked so hard for. It was worth it but at the same time it was devastasting. It just seems to never end. You just keep finding one more thing you lose again & again thanks to RSD. Thanks for the support.
Hugs, Denny
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Old 04-08-2009, 11:19 AM #3
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Denny,
I do understand. It is tough and major, I mean major changes take place in our lives. Here are a few things you have going for you. Number one a counselor. I think that is very important to have someone outside of our loved ones to talk over issues with. Number two..you and your husband are resourseful!! You did what it took to hang on to the assets you currently have. That is major. That was a smart and very practical move. I have confidence after reading your post that you , hubby and counselor will face the trials that may or may not be up and coming. After 20 years of full body CRPS, one learns to live a somewhat different life than most, but none the less, a valued life.
Remember these are just life situations. What is important is the relationships we share with other while on earth. I have met some AMAZING women and men here, we are fortunate that we can share our experiences, fears, concerns, knowledge and compassion with each other. HUGS Di
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Old 04-08-2009, 12:35 PM #4
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Originally Posted by dennyfan View Post
DianeA, Thank you. There have been a lot more major changes like my counselor pointed out on Monday. It would probably be better if that where the only one. But on top opf that last year just before my 20 year wedding anniversay my husband & I had to file for divorce to protect him from all my medical bills & being responsible for me anymore. We needed to protect the house & everything we had worked so hard for. It was worth it but at the same time it was devastasting. It just seems to never end. You just keep finding one more thing you lose again & again thanks to RSD. Thanks for the support.
Hugs, Denny
I'm so sorry. You are a survivor. And you are smart to have a counselor. There is a lot of support here. Wishing you well Sandy
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Old 04-08-2009, 11:11 AM #5
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Quote:
Originally Posted by SandyRI View Post
The exhaustion and migraines are also an issue for me - how do you treat them? have you found anything that works?

not really i have horrible reactions to most migraine meds the triptons in it make my mouth and throat swell. so basicly all i can do is take my phenergan and zanaflex and try to go to sleep. but i get migraines that can last as long as a week and i have the whole tunnel vision and vomitting .. so its always fun (not!) but there are alot of meds out there for it .. they say that topamax helps with them but it didnt for me ... sorry im not that much help on this subject



denny-i am so sorry that you and your husband had to do this. its amazing how much this can change out lives hang in there


carrie
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hope this finds all in less pain
.



rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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