Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-05-2009, 08:18 AM #11
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Default 10 week Approval

Congradulations Be glad you don't live in Virginia I am one of the people who has waited for a hearing DATE since August 27, 2008 for just a date. This August I will have been trying for SSD for two solid years, then again I truley believe I am getting a bum rap because my lawyer knows nothing about RSD, if I would have known that I would have gone with another. This is how I thought though, this attorney who ONLY does SSD cases could fight for me My next step of her agenda is that I have to go and have a hand test to prove I can't use them to work, is this outragous or what especially since I have had the carpel tunnel release in both hands and one is put together with pins and screws. what's the sign!?!?!?
Again congradulations
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Dew58 (04-05-2009)

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Old 04-05-2009, 06:35 PM #12
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Default Congratulations!!!

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Originally Posted by Dew58 View Post
Hello All,

I just wanted to share that I was approved today for SSDI, for CRPS I. It took 10 weeks to be approved. I am so excited and shocked at the same time! What a relief to have been approved so fast.

My atty. for my WC suit was surprised too. I applied for SSDI on my own behalf.


Dew
I'm so happy for you!. And you did it on your own - you are an inspiration to us all

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Old 04-05-2009, 07:54 PM #13
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Default tjbird,

I basically went through what you have only longer.

What I would do is write to a State Rep. or Senator. Send them your information and ask for their help. I got mine by writing to a State Rep as I said and I have seen others get the help from the Gov., Senator or State Reps.

I had a lawyer that lived on the Golf Course. People that knew him said he was always playing gold. He was suppose to be the best SS attoney in town.
He was a joke.

I finally sat down and wrote a 2 page letter to him and sent him my file. I know he didn't read it all but I did have a letter in the mail within a week that I was approved.

It's worth a try.

Ada
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Old 04-05-2009, 11:16 PM #14
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Congrats!
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Old 04-06-2009, 01:28 AM #15
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Thumbs up Congratulations

Dew, Congratulations! I am so thrilled for you. Way to go.
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Old 04-06-2009, 04:47 AM #16
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Dreambeliever,
I am inclined to believe your point. My attorney is not fightinting for my RSD/CRPS she has no idea about the disease so she is having me do all kinds of things to prove that I cant work! I think the attorneys need a course on rare diseases!!!
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Old 04-06-2009, 04:53 AM #17
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Yes I have been doing that, last week I sent my third letter. Last time it took three months for him to get back to me and then he had gotten the wrong information from SS but maybe I will try something else.
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Old 04-06-2009, 10:01 AM #18
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Default Hi tjbird,

I went through a lot with SS too. They sent my paperwork to Missouri at one time and no one could find it. I'm in Co. Then then sent me to a Psychologist and the next day I got a turndown. I called up the SS office and they didn't even know they'd sent me to a Psychologist.

Get you info together on your own. That's what I started doing. I sent the State Rep so many papers I am sure he didn't read them all. You have to find the right State Rep that will help you. I've been lucky so far with them.

I have ask them to help get my meds that insurance didn't want to pay for and I even wrote to **** Chaney and his office helped me. They have helped me with other things too. I won't go into but I believe in fighting for what I believe in.

Don't give up.

Ada
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Old 04-07-2009, 08:35 AM #19
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Congratulations Dew58! I do believe it does depend on what US State one lives in that can determine the length of time it may take to receive SSDI. In my wife's case it's been 2 years and we are in a congested region. For 5 years a business peer of mine who used to live 3000 miles from me in Washington State who's wife has RSD kept getting rejections from SS. They moved to Oklahoma to be near their son and was granted SSDI within a few months.
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Old 04-07-2009, 05:35 PM #20
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I think you may be correct; however, my WC atty. told me one almost had to be in a coma to get approved in OK.

I filed SSDI on my own; I filled out the forms as direct as I could, keeping in mind that SSDI is only concerned if I can work or not. I told the truth concerning the WC case and injury;2 right knee surgeries; I had over 2 yrs. of medical records(14-15 docs and PT, and 2 PM's), and my psychologist that I have seen twice a week, for over a year. I have the paper trail to show my journey.

I had proof that I attempted to go back to a sedentary job after I had not worked for 10 months in a row. I lasted 2 months, and had to resign as work and CRPS I, in my state of the syndrome, was not healthy for me at all.

I wish you all the best. I am pulling for each of you.

Dew
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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