Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-31-2009, 03:34 AM #1
Jennelle Jennelle is offline
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Join Date: Mar 2009
Location: Washington
Posts: 100
15 yr Member
Jennelle Jennelle is offline
Member
 
Join Date: Mar 2009
Location: Washington
Posts: 100
15 yr Member
Default New and Lost

Hi everyone my name is Jennelle and I am new to this and a little lost. I go to untold amount of therapy and doctors but have a hard time finding the right kind of doctor that knows enough to help. My pain person actually seems to know the most, the others say they treat RSD but pass the buck to other doctors for treatment. What Dr. do you all see? To make it worse I am at the whim of my L&I people to get treatment. 4 Dr have recommended a sympothectomy... anyone else had this or a spinal nerve stimulator placed? If so please let me know what the experience was like. L&I won't pay for either- I have had 6 nerve blocks and they helped at first but now only for a couple of hours. PT and OT have dropped me until I get the surgery that was denied, I can't get L&I to pay for message so I do home programs...any ideas? Please, please, any help as to find a doctor that knows what to do? I feel like my life is on hold from my wedding (supposed to happen last year) and starting a family (other than my 3 soon to be step-kids). HElP!!!! Thanks so much finding you all has made me feel so less alone!
Jennelle
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