Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-16-2009, 11:06 PM #10
buckwheat
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buckwheat
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Quote:
Originally Posted by AintSoBad View Post
I saw what you posted here, and on the "managed" thread.
Which, of course is raising some serious questions!
(Not that you're not believed, we want to know your secret!)

Would you be so kind as to tell us your story?
How you got rsd/tos, how long, and what do you think is the "secret" to your cure?

I think we've all been close to, or probably hit that "10" on the pain scale, I know I have. I used to say, hmmm, I can't say 10, because I've witnessed childbirth. Then I thought, no, we came away with a beautiful baby after that pain. And, we all know it's the CHRONIC/ENDLESSNESS of RSD that's the killer, and the damn thing won't even kill us!

So, Roz, think it over? You must have a good story.

Thanks,
Pete
ASB
Dear Pete,

I have alot to say and share with you.

The one advantage I had was I have MD's in my family, so when I got the RSD DX and they could't help me I knew I was in trouble.

I was told to research and research I did. I have never ever cared for the medical field I am a hairdresser, but a creative thinker. Like you I was self employed, so I believe in problem solveing as well.

The pain is worse than childbirth it really is. You must be very strong and brave to have hung on so long.

About 4 years into RSD, my RSD limb began to shake, I started having short term memory loss.
cont..
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