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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#11 | |||
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thanks ,mike. it hasnt helped with headaches yet. alittle with sleep but nothing anything to write home about thats for sure.. since it was 3 my time when i went to bed LOL and up at 6 LOL thanks for the advice appericate it
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hope this finds all in less pain . rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,, please check out our website to help bring awareness to RSD! . |
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#12 | ||
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#13 | |||
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I am not familiar with this medication,Carrie. I hope you find relief from the new med.
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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#14 | |||
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thanks to everyone that answered. i went up to the 50mg at night and it was way too much went back down to 25mg at night will see neuro again wednesday. and see if there is somwthing between 25 and 50 LOL
carrie
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hope this finds all in less pain . rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,, please check out our website to help bring awareness to RSD! . |
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#15 | ||
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I tried that med when I was first diagnosed - I had trouble sleeping when I took it and it didn't do anything for my pain. But maybe it will help you since we are all different. I currently use Ambien CR 12.5 at night and take Topamax 75 mg twice a day. I also just started on 5mg of methodone 3 times a day, so I'm not sure how it works just yet. do you know whether you can tolerate Topamax? Since I started taking it none of my headaches have advanced to that "migraine" state. And the Ambien does help me stay asleep for a few hours at a time most nights. Sorry about your head. That's my main problem also. I hate it. Good luck. |
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#16 | |||
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sandi
i cant take topamax because it causes 1/ kidney stones and 2. more infections with me .. i have kidney issues since my RSD has gone there. i have taken this off and on for years with no avail. the noratriplyne has been helping and helping me sleep. but im in a cycle right now apparently i have cluster headaches which i guess the only thing worse pain wise is RSD go figure that i would get both LOL so i go back to neuro wednesday and see if they can give me a dose between 25-50 mg because the 50 i wasnt loopy i just couldnt wake up and thats a problem LOL im glad that topmax worked for you.. i am also deathly allergic to really migraine meds like imitrex and the rest the med. that is in them all cause me to stop breathing.. carrie
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hope this finds all in less pain . rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,, please check out our website to help bring awareness to RSD! . |
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#17 | ||
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In Remembrance
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Angel,
Carrie, I hope you take a "list" or something with you to your neuro this week. Clusters are a real mind game. (meaning something worse).. I get them too, but I can tolerate the meds that you cannot. So, I don't hafto live with them constantly. This AM, I woke with a "Neck" headache, and it got worse through the day, even the new "Treximet" (Imetrex with Aleve, which usually kicks tail) did nothing. Had to "crack" my own neck. Wonderful. I know what you're going through, I did it too, with children, and, they're a blessing, because You've GOT to do, what you've got to do! They depend on you. I feel your pain. OUCH! ![]() ![]() ![]() pete asb |
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"Thanks for this!" says: | angelrsd (05-09-2009) |
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