Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-19-2009, 01:06 AM #1
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Post Anyone taken this before ?

has anyone been on noratriptyline before.
i went to a new neuro for my migranes and he started me on this since i am basicly allergic to most of everything inculding migrain meds. he has me on 25mg 1 at night for 5 days then after that 2 at night .. wants me to see how it goes for 3wks then come back... the only side effec so far(started thursday night) is waking up and feeling drunk. any thoughs on this would be great

carrie
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 04-19-2009, 01:11 AM #2
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I took nortriptaline a few years back after being in an auto accident and had damage around my occipital nerves. I don't really remember there being side effects, but that it helped and after a while I was able to get off of it. Don't know if this is of help. But I hope you are doing better soon!
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Old 04-19-2009, 01:17 AM #3
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thanks. the neuro is thinking that i am having both vascular and cluster head aches at the same time ,, yea me !!! one stemming from my car accident and the other from the RSD
thanks for the help.. i am hopping that this helps other wise its off to botox land at 500$ every three months (fingers crossed )

carrie
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 04-19-2009, 03:00 AM #4
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Quote:
Originally Posted by angelrsd View Post
thanks. the neuro is thinking that i am having both vascular and cluster head aches at the same time ,, yea me !!! one stemming from my car accident and the other from the RSD
thanks for the help.. i am hopping that this helps other wise its off to botox land at 500$ every three months (fingers crossed )

carrie
Carrie,
I even googled it, and it's an odd Rx.
But, seems to be one of those Rx that are to Prevent headaches.
I take Zonegran, topomax for that. I get some wicked headaches, before and SINCE the Tbi.

It seems to me to be a "trial" type thing.
Ask your doc!
What is he trying to do, and, some of these others might work better than that one!
Everyone is different, dear!

I so wish, that your headaches can be managed! You're too young for this!


Pete
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Old 04-19-2009, 11:32 AM #5
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Default Hi Carrie

Crap. Ooops I tried to paste a site about nortriptyline but messed up somehow. Anyway if you google this there is a bunch of info about dizziness and migraines etc. I didn't read much of it I'm ashamed to say.

However, Nortriptyline is a tricyclic antidepressant related to amitriptyline (Elavil). I do know that initially these tricyclics can make you really drowsy, dizzy, constipated, urinary retetive and some other stuff I can't remember. Some of this passes pretty quickly. On a brighter note, they are relatively good pain managers and work on serotonin and norepinephrine levels.

At any rate, as I know you know, you should talk with your physician about this.

I hope that you are feeling better and again I'm so sorry about what's happened lately in your area.

ellie
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Old 04-19-2009, 12:08 PM #6
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I was put on a tricyclic anti-depressant many years ago, just to see if it would help with the pain. Tricyclic anti-depressants are commonly prescribed in RSD, they are older generation anti-depressants but work better for RSD (read that somewhere, don't ask me where). For me, the anti-depressants didn't do a thing, except help me sleep better. For that reason alone, I wasn't allowed to take them, because of the many possible side-effects. The newer ones were tried also (SSRIs) and I had an adverse reaction to them. So the anti-depressants were out the window quite fast.
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Old 04-19-2009, 02:00 PM #7
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Quote:
Originally Posted by angelrsd View Post
has anyone been on noratriptyline before.
i went to a new neuro for my migranes and he started me on this since i am basicly allergic to most of everything inculding migrain meds. he has me on 25mg 1 at night for 5 days then after that 2 at night .. wants me to see how it goes for 3wks then come back... the only side effec so far(started thursday night) is waking up and feeling drunk. any thoughs on this would be great

carrie
Carrie, I took this a year or so ago for few weeks. It actually made me more depressed than I already was. And I had one other of the minor side effects. I cant tell you if it worked on my headaches or not since I was too depressed to remember. I take topomax for my headaches now & something else for depression. Hope it works for you.
Hugs, Denny
PS Dont take i drive lol!! Dont want a dui!!!
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Old 04-19-2009, 05:30 PM #8
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Default angelrsd

[QUOTE=angelrsd;498159]has anyone been on noratriptyline before.
i went to a new neuro for my migranes and he started me on this since i am basicly allergic to most of everything inculding migrain meds. he has me on 25mg 1 at night for 5 days then after that 2 at night .. wants me to see how it goes for 3wks then come back... the only side effec so far(started thursday night) is waking up and feeling drunk. any thoughs on this would be great

Hi angelrsd,

Here is some info on side effects of norateiptyline. Hope it helps.

fast, pounding, or uneven heart rate; chest pain or heavy feeling, pain spreading to the arm or shoulder, nausea, sweating, general ill feeling; sudden numbness or weakness, especially on one side of the body; sudden headache, confusion, problems with vision, speech, or balance; confusion, hallucinations, or seizure (convulsions); easy bruising or bleeding, unusual weakness; restless muscle movements in your eyes, tongue, jaw, or neck; tremors; extreme thirst with headache, nausea, vomiting, and weakness; feeling light-headed or fainting; or urinating less than usual or not at all. nausea, vomiting, stomach pain, loss of appetite; constipation or diarrhea; weight changes; dry mouth, unpleasant taste; weakness, lack of coordination; numbness or tingly feeling; blurred vision, headache, ringing in your earrs; mild skin rash; breast swelling (in men or women); or increased sweating.
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Old 04-19-2009, 08:51 PM #9
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ok i knew some of the side effects my sister is a pyshcologist and was tellin me about it.. the reason he chose this one is becuase i cant take elivil effexor amitripaliny,, i have apperantly what the neuro is saying is cluster and vascular migranes one stemming form auto accident the other from RSD. anyways. he wanted me to try this to see if it will help with the migranes as i am allerigic to all triptans (zomig,imitrext etc) ... it has helped me sleep better no drugged feeling just a little foggy for about 15 mins after i wake up.... i dont leave till mid morning early afternoon so it hasnt caused any problems.. so far we are good. 25mg/night till wednesday and will see how 2/ at night do.. so far not many side effect thank god..


i appericate all the in put he also wanted to see that if this would help with my rsd also? nothing so far in the middle of big flare...

i was just wondering since that it is an oldie if other had taken this recently and had any comments about the used of this..


carrie
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 04-20-2009, 09:30 AM #10
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Carrie,

This is one of the many things I have been on over the years. As I recall, I didn't really have any side effects. But, it seems to me it didn't really do anything. I asked the doctor and pharmacist if this was some kind of placebo. Being in the anti-depressant family, it was supposed to help me get a better night's sleep, since the pain generally prevents me from a full night,s sleep without interruption.

As always, we all react differently. Watch for the regular side-effets you might see in any strong drug. And good luck with it.

Mike
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