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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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04-24-2009, 07:21 AM
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Magnate
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Angel rsd did you recieve any benefits from this and was it the 2-4 hour one and any side effects?
Galena thank you for the hopeful story I appreciate it |
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04-24-2009, 06:43 PM
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YW Daniella!
 No matter what we must never give up hope. There is also hyperbaric oxygen therapy(HBOT) which has helped a lot of people too. HBOT isn't covered by insurance though unless it's for an approved condition. The money to do HBOT is usually the stopper for most people because we don't have it and most likely never will. I wish I could get it done but know I'll never have a few thousand dollars unless I win the lottery. LOLHugs, Karen
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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04-25-2009, 06:51 AM
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Magnate
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I looked into HBOT and was going to do it and may but this doc thinks it won't do much. He did suggest acupuncture though not in the areas effected and I talked to the lady yesterday so we will see. I think I will start with this iv and the new meds and go from there. Thanks again
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04-29-2009, 02:56 PM
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daniella,
i had wonderful results with the lidocaine iv's.....for 5 years i was functional, in little pain, and had few sympathetic symptoms. tho my pain doc did have some patients who had the iv's once a month, i did better with a different approach....i would have 3 treatments spread out over 8 or 9 days, and then none for 3 months......the first one never gave me more than 10 or 12 hours of pain relief, the second would last for a day or 2 and third was good for about 8 or 9 weeks. as of 3 years ago, my insurance company will no longer pay for ANY sort of lidocaine treatment and i have had a serious increase in all symptoms since then....i wish with all my heart that i could have the treatments done again, but we can't get approval for it. if your insurance will cover it, then u might want to give it a try.....it doesn't work for everyone, but it seems to work very well for the people it does help. good luck with the treatments.
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best to all, liz |
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04-30-2009, 08:27 AM
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Liz,
I'm so sorry this happened to you. I don't get it. Why won't they want to keep paying for something that actually works for you? Is it because they know that you'd need it for a long period of time? Is it just the financial side they're worried about? That's terrible. What treatment are you on now?
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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04-30-2009, 09:31 AM
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Magnate
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I am so sorry Liz that your insurance stopped paying that is horrible. I have heard others with a similar problem. They find something that works and then the insurance makes them stop or switch. I am scheduled for Tues. I am fearful because my body with all the other problems besides RSD I have though the doctors know that I do they are not sure why. I will keep everyone updated. I hope you can fight the insurance company or find something that works for you again. Many thoughts and thanks
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04-27-2009, 11:32 AM
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Quote:
carrie
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hope this finds all in less pain . rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,, please check out our website to help bring awareness to RSD! . |
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| "Thanks for this!" says: | daniella (04-27-2009) |
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04-27-2009, 07:28 PM
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I had one hour of the lido IV infusion. I had no pain for my entire body for only 15 minutes. It was heaven. Unfortunately, pain has gradually return after the infusion stopped. Does insurance cover this treatment? I wonder whether or not i should try for longer period.
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04-27-2009, 07:29 PM
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Danelia,
Did you have pudenda nerve issues? Numb |
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04-28-2009, 05:42 AM
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Magnate
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I hear it is very limited amount of time of relief. I think this doctor is usuing it as more of dx of what is causing my pain more. I have peripheral neuropathy and rsd. Not what you stated but who knows anymore. So many doctors and so many opinions.
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