NeuroTalk Support Groups - Anyone else see paula abdul

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Anyone else see paula abdul (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/85284-else-paula-abdul.html)

I ,also throught she had R.S.D. I, would like to known her Cure for it .Because there is none. I have had it going on 16 years now. And there is no Cure. Some one is not telling the whole story.She, blamed it on Pain killers.WHAT? It is the person that takes them not as directored. That gets ADDICTED. And abuses them . I want to Yell and tell the world WAKE UP PEOPLE. Take your meds right. Do not but blame on some thing you can not controll. iI just went to the people whom printed the story of Paula and told them GOD BLESS KIMMIE

Quote:

Originally Posted by dew58 (Post 500458)

my hubby and i watched the show;paula was moving all over the place. My hubby said,"hey, isn't she suppose to have rsd?" i said that is what paula abdul has told the world. Hubby said,"she must be faking the disorder, or you are!"..in a playful manner. Maybe she is in remission???:rolleyes: The video that is posted doesn't name rsd as her medical issue. I don't know what to think about that video...denial of pain medication,hmmmmm???

thats right. God bless kimmie

With what the rsdsa.org did for us all today, we can now channel our anger into a positive position.

It's obvious that Ms abdul is trying to sell her new single, and, with the necessary "sales stops" she's got to get that drunken scandel behind her..

To saddle it onto people who actually live with this pain, not the hollywood addiction syndrome, is CRUEL.
Nothing less.

I've posted it, now it's time for us to all write to these outlets who have helped her perpetrate her hoax, and make a voice for ourselves, and others like us!

Can any one tell that I'm angry? :icon_mad::mf_swordfight:

pete
asb

Quote:

Originally Posted by Millerprof (Post 500874)

I haven't seen much on Paula talking about her condition, and she doesn't talk about RSD in this video. She did say she had been on nerve medication, and that alone can probably explain her loopy behavior. I know when I was taking high doses of Lyrica I was a loony. I teach college courses, and after my doc had increased my dose of Lyrica, I started slurring my words and stuff--I'm sure my students must have thought I was drunk. This med also made me suicidal and really kind of crazy--kind of how Paula looked. I wouldn't go near it again. Gabapentin never had that effect on me. This may not be a popular opinion, but I think some people are also good at hiding their pain. I don't think my students knew that I was hurting or what I was going through, and being active in my career helped take my mind off the pain. But then I would come home and crash. I don't know what Paula's going through, but after 15 surgeries there has to be some lingering pain (whether it's RSD or something else). There's probably a reason she's a judge on American Idol and no longer active in her singing career. I am so glad I don't need to live my life in a fish bowl. I can imagine the headlines they'd have about me!

I couldn't have said it better myself! I'm one of those that hides my pain and most people don't know I have RSD unless I tell them. I refuse to use a cane or crutches as that just causes further problems both physically as well as psychological. Living with an invisible disability is not easy either, when I do use my forearm crutches people treat me completely differently. Like you Millerproof the world does not see the other side of me when I completely crash after a day of putting my best foot forward. I prefer to keep as busy and as active as I can because I worry that if I stop the RSD will take over my life.

Thanks for your post on this.

MsL

Quote:

Originally Posted by AintSoBad (Post 507281)

To saddle it onto people who actually live with this pain, not the hollywood addiction syndrome, is CRUEL.
Nothing less.

I've posted it, now it's time for us to all write to these outlets who have helped her perpetrate her hoax, and make a voice for ourselves, and others like us!

I fully agree with you.

IMMHO Ms. Abdul needs to make an urgent statement about this. RSD is a condition that many serious people are fighting to get awareness for, *struggling* to get awareness for. She has no right to ruin the work of many renowned organisations such as RSDS.org but she almost singlehandedly did and is doing that. Doubts about her condition are increasing all the more. I fear that people will associate her drug addiction problem with RSD, and then where are we?

If she is an RSD patient, then what the heck is her agenda?

OTOH, if a celebrity brought cancer into a bad spotlight because of an addiction problem, people wouldn't associate the cancer, the condition itself, with the addiction problem. They would view them as two separate issues. They would say, "poor thing, the cancer is probably too much". Why won't they be able to do that for RSD?

It is, however, VERY bad that an addict has to bring RSD into the spotlight like this. I would feel deeply ashamed in her place. It's no time to start making excuses for an addiction problem by saying you have a condition called RSD and that you can't help it. If she can't see the kind of damage she is doing by that, then I wonder...

[QUOTE=ALASKA

what a mess......

the article stated paula was on a patch that was 80 times stronger than morphine. i heard she was on fentanyl patches. i think it might be 8 times stronger(2-100mcg/h patches), not 80 times. am i wrong?[/QUOTE]

I think you are correct. Maybe the article failed to explain that she's wearing 9 patches. 2 on each arm and leg and one on her forehead. :D ;)

mslady

i am the same way i hide my RSD very well i learned early on into my RSD that if i was to show that i was that sick that people treat me way different like a invalid
i also try to stay as busy as possible this also is kinda like PT to me with the kids and all.

I'm thinking she is doing most of these interviews to keep her name in the spotlight - any press is good press they say...:rolleyes:
she's branching out on her own and all the talk will get her press , good or bad.

But you can't make someone want to be a spokesperson, plus she had all those other injuries to complicate things.

I wonder if there was a typo about the "15th surgery curing her RSD" - when I search that it comes up with "caused her RSD...":confused:

But the good thing is people can write to those mags & papers to tell what RSD really is.
many of the comments on the sites have rsd patients telling their story too.

jo mar

i think the same for one i dont want her to be the spokes person for RSD and i have wrote to nightline and the others telling them that paula abduls perception of RSD is not acturate and said there are alot of people that are suffering in silence

carrie

I am not seeing anything on RSDSA.org website about Paula- Where should I look?