Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-25-2009, 03:45 AM #13
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fmichael fmichael is offline
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fmichael fmichael is offline
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Hi. It's my understanding based on "people who know people" in LA that she in fact has RSD. That said, because her doctor is a prominent rheumatologist, I'm guessing she keeps in in check with an anti-TNF[alpha] drug like Remicade (Infliximab), which has a black box warning that's way too scary for me. Check it out at http://www.nlm.nih.gov/medlineplus/d...s/a604023.html (For a while, I saw a rheumatologist who suggested that I consider Remicade myself.)

And the other thing about Remicade is that it's a strickly off label use of a very expensive drug, so there's no possibilty of insurance coverage. Still, it ties in with the CRPS/autoimmunity abstract I posted a few minutes ago at the start of another thread.

Mike

Last edited by fmichael; 04-25-2009 at 04:10 AM.
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