Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-09-2009, 09:08 PM #18
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
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Quote:
Originally Posted by Rita View Post
Hi Mike,
Reed also wonders sometimes if it was worth it. He's having more pain in his back recently. It also swells..not like an infection, and not exactly where the battery or leads are. I sometimes wonder if he's not experiencing spreading. I sure hope not!
His battery is small, but he has no rump.. so it does stick out a bit. His leads, where they looped them to help hold them in place, stick out too, and that's where alot of his pain is coming from. He says it pinches and his back burns. The PM doc is talking about revision if they can't get a better re-programming. I'm not sure Reed will go through that again. He got tremendous relief from the SCS at first, but once those leads moved the tiniest bit, he got hardly anything, and it's been reprogrammed 3 times with little improvement. anyway, hope things are well for you and your family.
hugs to all!


Rita,
on that subject, (I have No experience with any kind of pump), but, I wonder weather the Lidocaine patch, (I've never used a whole one, I cut them to fit),
I wonder, if it would help Reed, if applied over the area where the pump is?
I'd bet it would...
Some "padding" and local pain relief".
I hope he asks his doc!

Pete
asb

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