Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-02-2009, 01:41 PM #11
daniella daniella is offline
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daniella daniella is offline
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I am so confused by the way things are worked where you live. So how old are you and when you go to college do you live away from home cause you are so young?When you say placement it is like working on the job and then you have course work in a classroom? I hope that if you feel this is in your best interest and you talk to these people and explain hopefully they will give you a chance. If you are unable to do this now can you start at a later time or go in a different direction? Like here in the US some kids will go to community college rather then a big university or take a skilled training class that is like a year and you get a certificate. I hear you of course in different struggles what a barrier rsd is but hopefully oneday with finding the right treatment for us it will be less of a road block and more like a u turn if that makes any sense. I wish I had more of your go get attitude because right now I am in a funk of motivation but trying to regain it. You are an inspiration
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Old 05-03-2009, 04:30 AM #12
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Originally Posted by daniella View Post
I am so confused by the way things are worked where you live. So how old are you and when you go to college do you live away from home cause you are so young?When you say placement it is like working on the job and then you have course work in a classroom? I hope that if you feel this is in your best interest and you talk to these people and explain hopefully they will give you a chance. If you are unable to do this now can you start at a later time or go in a different direction? Like here in the US some kids will go to community college rather then a big university or take a skilled training class that is like a year and you get a certificate. I hear you of course in different struggles what a barrier rsd is but hopefully oneday with finding the right treatment for us it will be less of a road block and more like a u turn if that makes any sense. I wish I had more of your go get attitude because right now I am in a funk of motivation but trying to regain it. You are an inspiration
Thank you Daniella. I'm sorry that you aren't feeling well and in a funk at the moment - I hope you start feeling better soon! It is really hard to stay positive, especially when things don't go your way or things like this happen but I try and stay positive the best I can.

In the UK, we are usually 16 when we go to college however they have now started doing courses like the one I have applied for to give children more insight into what it is like going to college and help them get a job in the future. If I complete this course, I will get 7 GCSE's (i'm not sure if thats what they are called in the US??) which will help me get a job in Health and Social Care or I can go onto the higher level of the course which will allow me to get an even better job once I complete that.

We wont be staying away from home. The College is only about 30 minutes away from where we live and we only go 3 days a week. We have to make our own way there (on bus, in taxi cab, with our parents etc) as the school wont provide any transport for some reason. It's strange as this is the only course where they don't actually provide transport. When we aren't at college, we still have to go to school to do Math, English and Science. My mum is asking if I can start going to the school centre full time though as my other school aren't very accomodating and my "friends" could care less about me.

If I don't get onto this course, i'm not sure what I would do. I think you have to take it when you are 14 with everyone else. There aren't many other subjects at school that I am interested in other than maybe Psychology. My mum said that she would try and do some home schooling with me but it costs a lot of money.

We have to call the college back on Tuesday with an answer as to whether or not I want to do the course. I think I will tell them that I want to do it as in the UK law, it states that they MUST work harder to find children with disabilities a suitable placement and it is something that I really want to do to prove that I can do something, even though I have RSD. It's not my fault that they can't provide any suitable placements ... I really wish that they would let me meet up with the employees but they wont for some reason. The tutor on the course said that it would be too hard work for them to find a suitable placement - I think that is the problem, because it is too hard, they would sooner just leave it and not allow me onto the course!!

Thanks again and i'll keep you all posted!
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