Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-02-2009, 08:56 AM #1
lexiemae1 lexiemae1 is offline
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Mad taking 6 hydrocdone too much for rsd??

Do u guys and girls think I am taking too much hydrocodone? I take about (6) 7.5/325mg a day while working 12 hour shifts and I was just wanting to know your opinion, it seems when i take it every 4 hours instead of every 6 it pretty much makes me comfortable all day. I was diagnosed oct 2008 and It is in my right foot. Thanks LISa
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Old 05-02-2009, 10:04 AM #2
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I'm sorry but this seems like it's a question you should really be asking your doctor about. Your doctor prescribed the meds, so he knows best. If the medication is not adequate enough for your pain, or you get adverse side-effects, then that's also something you should see your doctor about immediately.

How can we know how much you should be taking. Every RSD patient is different. We have different bodies, pain thresholds, and we react differently to different medications.

This is a far to weighty issue to be asking here. I mean, this is a direct question about the dosage we think you should be taking. It could even be dangerous to listen to anyone's advice here if they are prepared to give it.

How do you feel? Do you feel like your pain is under control or not? Discuss this with your doctor.
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=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008

Last edited by CRPSbe; 05-02-2009 at 10:26 AM.
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Old 05-02-2009, 10:32 AM #3
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Quote:
Originally Posted by lisamweldon View Post
Do u guys and girls think I am taking too much hydrocodone? I take about (6) 7.5/325mg a day while working 12 hour shifts and I was just wanting to know your opinion, it seems when i take it every 4 hours instead of every 6 it pretty much makes me comfortable all day. I was diagnosed oct 2008 and It is in my right foot. Thanks LISa
i do know that every pm doc is different. i take the 10/325 and they gave me a script for hydrocodone 2 pills 4 times a day. YOU DO NEED TO FOLLOW YOUR SCRIPT. if that is what your doctor gave you and it works that is great that you are able to work comforable. i also have my liver checked every month because of the tylanol in it.

please understand i am telling you what my doctor gave me.
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Old 05-02-2009, 01:49 PM #4
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some pages from Rx sites about it-

http://www.drugs.com/hydrocodone.html
http://www.rxlist.com/vicodin-drug.htm
http://www.medicinenet.com/hydrocodo...en/article.htm
http://www.drugdigest.org/wps/portal...30276FL8L614T3
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Old 05-02-2009, 02:41 PM #5
AintSoBad AintSoBad is offline
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Quote:
Originally Posted by lisamweldon View Post
Do u guys and girls think I am taking too much hydrocodone? I take about (6) 7.5/325mg a day while working 12 hour shifts and I was just wanting to know your opinion, it seems when i take it every 4 hours instead of every 6 it pretty much makes me comfortable all day. I was diagnosed oct 2008 and It is in my right foot. Thanks LISa
Lisa,
You've gotten some good advice here.
Some of it may sound harsh, and I know, truly, that's not what you "need" right now.
However,
as it's been said, is all true.
Nobody but you and your doctor can delegate this type of thing.

I can say this:
Many of us have very knowledgeable doctors, who understand that a "cocktail" ( a very poor word for what it is ), of meds might be indicated.

Still,
It's between you and your doctor.
Do you trust him/her?

Sometimes, straight out "painkillers" aren't the best choice, and I somehow feel, that's what you're asking.......
Am I correct?

I don't want to see you be "chased away".
That would be a world of indifference, and NOT what I've learned this group to be!

In private (PM's), I'm sure, that many of us would talk about this in more detail, but you must remember, NONE of us are doctors!

We only have experience on our side.

Maybe, just maybe,
an anti depressant might be indicated, that's up to your doctor.As may be other things that add up to a "cocktail"... to Manage your symptoms.
As we have no cure at the moment, we live in a triangle,
Your Meds / Your doctor, you.

Your mental health / PManagement psych, and you...

Your body / EXCERCISE "Use it or Lose it", keep it moving! as you seem to be!
Good for you!

Or, other things that might be indicated in the "cocktail"....

Anyway,
What I want to say to you MOST IMPORTANTLY!
Is that you have found a HOME!

I think that WE ARE EMBARRASSED, and YOU SHOULD NOT BE!

YOU asked a straight, flat out question.
And, you shouldn't be attacked for that, or, even feel that way.
(I do not believe ANYONE attacked you!)

But, being a newbie myself, and a bit vocal, I understand.
I truly do.

PM me if you wish.

But, whatever you do, PLEASE, don't retract yourself from this group!
You've hit a GoldMine of information!

None of us know the "Best Way", and we're All Searching for it!

We help each other.
And, we all look forward to when you will help us!

You were absolutely correct to ask a question!
Dam Right!

Don't feel that you got "shot down", because we don't have the exact answer! Please?

We value your contribution, and questions!

Nobody here is odd, or out of sorts, or we all are!

WE're HERE FOR YOU!

Pete
asb

Please. stay with us?
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Old 05-02-2009, 03:15 PM #6
lexiemae1 lexiemae1 is offline
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Thanks Pete I do understand, and I am with a pm doctor and I have been thru the 6 or 8 sympathetic nerve blocks and all the other things.. And am also taking 120 mg of cymbalta with this.. I am just trying to keep working as long as I can,, Some Chronic pain people aren't even doing that ?? They sometimes just think disability is the way to go.. anyhow thanks for the info..
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Old 05-02-2009, 03:40 PM #7
ALASKA MIKE ALASKA MIKE is offline
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Quote:
Originally Posted by lisamweldon View Post
Do u guys and girls think I am taking too much hydrocodone? I take about (6) 7.5/325mg a day while working 12 hour shifts and I was just wanting to know your opinion, it seems when i take it every 4 hours instead of every 6 it pretty much makes me comfortable all day. I was diagnosed oct 2008 and It is in my right foot. Thanks LISa


many docs say 12 is the limit for liver toxicity using the 10/325 is that what you are wondering about??.



glad to hear you are still working...
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Old 05-02-2009, 03:53 PM #8
AintSoBad AintSoBad is offline
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Quote:
Originally Posted by lisamweldon View Post
Thanks Pete I do understand, and I am with a pm doctor and I have been thru the 6 or 8 sympathetic nerve blocks and all the other things.. And am also taking 120 mg of cymbalta with this.. I am just trying to keep working as long as I can,, Some Chronic pain people aren't even doing that ?? They sometimes just think disability is the way to go.. anyhow thanks for the info..
Lisa,
Nobody here, (I would bet, but, I know myself) as a successful business person, I would NEVER choose this over my beloved {work, job, whatever you wanna call it}
Nobody, NOBODY who is successful at what they do, would EVER choose this life over one of sedentary life. NOBODY!

I was self employed, with TWO business's, and was doing very well, and that's where Dr Schwartzman testified for me.
NO REASON why a successful businessperson would choose this BS over ANYTHING else, than the road they had cut out for themselves!
This is one of the most common misappropriations of knowledge I've ever seen!

Now that that's behind us, chronic disability is a very SAD, SAD, SAD Choice, and I think you'll find that MOST of us REJECT IT!
I do!

My (soon to be ex) has stolen every business tool from me, and my children. I had groomed them to take "over" the family business's.
My ex made sure (to her best), it ain't over yet, that that would not happen.
(If HER kids couldn't have it, mine couldn't!).
I don't understand that kind of small minded jealousy. I just cannot fathom it.

But, and however,
NOBODY, nobody,
wants to naturally follow a path of "gimme".
It's Anti American!

Sometimes, some of us with rsd can look and almost feel as normal as most others. But, we're ONLY ON THE EDGE OF THE CLIFF!

Don't let your guilt bother you for a minute! Do you know ANYONE, who has felt your kind of pain?

And, I do not want to profess,
but, just what,
if it spreads?
You're young.
I was too, when this monster clawed me.
It spread.

What to do when you're so young?

I don't want to profess doom.
I pray for your cure!

Work for that!
Work towards that, ALWAYS!
Find a doctor who will work with you! Towards that end!

Never, Ever, lose Faith!

You, in the end, with your Higher Power are the cure.

The Cure, and the comfort....


Pete
asb
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Old 05-02-2009, 04:02 PM #9
lexiemae1 lexiemae1 is offline
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Alaska Mike, Thanks for the info.. I was just wondering if any one had a ballpark idea with having rsd in one limb especially when that one limb u walk or stand or do almost everything with it.. Like an arm with rsd is not being walked on for example.. I don't mean to be a smart??? but I am trying to find out all the info I can on this disease.. for all of my life any doctor I went to if they gave u 10 pain pills they just assumed u would get hooked on them I have had 9 surgeries in the last few years and other breaks and things and I think some people tolerance for pain medicine is alot different than some people who have never broken any bones or had any surgeries.. Thanks LIsa
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Old 05-02-2009, 04:10 PM #10
lexiemae1 lexiemae1 is offline
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DEar, aint so bad,
It sounds like I made u upset that was not my intention??> Is their a list of questions that are suitable to ask? on line here.. Ok so maybe I am stupid?? I don"t know?? Everyone seemed so welcoming to me when I first came on here, but now I wonder.. I didn't know one question would would get me in the doghouse.. Sorry I will try not to ask any more ignorant questions?? or maybe go back to myspace or fb.. Thanks LIsa
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