Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 05-06-2009, 10:01 AM #1
stressedout stressedout is offline
Member
 
Join Date: Apr 2009
Location: NJ
Posts: 143
15 yr Member
stressedout stressedout is offline
Member
 
Join Date: Apr 2009
Location: NJ
Posts: 143
15 yr Member
Default Nerve Blocks...one down, five to go.

I had the first nerve block (SGB) done yesterday for the "mild RSD" in my hand/arm. I had no side effects, is that normal? I was expecting something. The pain went from a 6 to a 3 by the time I got to OT. It came back around 2am though. Felt like someone was stabbing me and cutting my arm open from my elbow to my finger tips. Next one tomorrow. I just found it strange that I didn't have any side effects, has that happened to anyone else? Guess I am also dissapointed it didn't last long.

Last edited by stressedout; 05-06-2009 at 12:03 PM.
stressedout is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-22-2009)

advertisement
Old 05-06-2009, 12:44 PM #2
michelles's Avatar
michelles michelles is offline
Junior Member
 
Join Date: Mar 2009
Location: idaho falls idaho
Posts: 61
15 yr Member
michelles michelles is offline
Junior Member
michelles's Avatar
 
Join Date: Mar 2009
Location: idaho falls idaho
Posts: 61
15 yr Member
Default

Quote:
Originally Posted by stressedout View Post
I had the first nerve block (SGB) done yesterday for the "mild RSD" in my hand/arm. I had no side effects, is that normal? I was expecting something. The pain went from a 6 to a 3 by the time I got to OT. It came back around 2am though. Felt like someone was stabbing me and cutting my arm open from my elbow to my finger tips. Next one tomorrow. I just found it strange that I didn't have any side effects, has that happened to anyone else? Guess I am also dissapointed it didn't last long.
i think that it is great you didnt have any side effects.. i didnt either when i had my blocks.. mine lasted not long either about a day, two, but when i took my meds i really noticed that i didnt hurt. you said you are having another one tormorrow? wow i bet your neck, back is sore? for me when they did mine in the lower back i could not lay on my back it hurt where they injected. good luck i really hope this helps you... take care michelle
michelles is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-22-2009)
Old 05-06-2009, 01:38 PM #3
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
Default

I am a terrible baby - I find the SGBs very scary and painful. Plus we need to drive over an hour to get there so I am in always in a flare by the time we arrive, my head hurts badly and I'm nauseus (sp?). They have spaced mine 3 -4 weeks apart, although I just moved one up so that it will be only 17 days since the last one. Even though I get versed and now something else to calm my stomach, the procedure is still very painful for me and I still feel very sick afterwards. I've had 6 of them, I guess I should be getting over it, huh? The doctors and nurses couldn't be nicer, and my husband is very good about taking care of me, thank God.

Only the first couple of blocks gave me a lot of relief in my originally affected areas (shoulder, then my neck and head). I actually slept on my head after the first block for a night! Now the blocks help with the spreading symptoms, like the pain and burn and coldness in my hands and arms and legs and feet. And the face and neck rashes and burning. They seem to last about 10 days or so, them the symptoms slowly start to come back.

I am glad you are doing so well with yours, good luck. Sandy
SandyRI is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-22-2009)
Old 05-06-2009, 04:27 PM #4
stressedout stressedout is offline
Member
 
Join Date: Apr 2009
Location: NJ
Posts: 143
15 yr Member
stressedout stressedout is offline
Member
 
Join Date: Apr 2009
Location: NJ
Posts: 143
15 yr Member
Smirk

Quote:
Originally Posted by SandyRI View Post
I am a terrible baby - I find the SGBs very scary and painful. Plus we need to drive over an hour to get there so I am in always in a flare by the time we arrive, my head hurts badly and I'm nauseus (sp?). They have spaced mine 3 -4 weeks apart, although I just moved one up so that it will be only 17 days since the last one. Even though I get versed and now something else to calm my stomach, the procedure is still very painful for me and I still feel very sick afterwards. I've had 6 of them, I guess I should be getting over it, huh? The doctors and nurses couldn't be nicer, and my husband is very good about taking care of me, thank God.

Only the first couple of blocks gave me a lot of relief in my originally affected areas (shoulder, then my neck and head). I actually slept on my head after the first block for a night! Now the blocks help with the spreading symptoms, like the pain and burn and coldness in my hands and arms and legs and feet. And the face and neck rashes and burning. They seem to last about 10 days or so, them the symptoms slowly start to come back.

I am glad you are doing so well with yours, good luck. Sandy
We drive an hour and 15 min away too. I am happy it worked the first time but then again that confirms the RSD and I guess I hoped it wasn't. I feel better about getting them now though, anything to get rid of this pain. The color is more normal now too. The pain is back but not so bad as it was. I feel like maybe I will get my life back. Although now I feel like if we get it into remission I will have to look over my shoulder for this monster for the rest of my life. I was confused though about not getting side effects. I thought that was a sign it was succesful.
stressedout is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-22-2009)
Old 05-06-2009, 05:02 PM #5
sk8ter sk8ter is offline
Junior Member
 
Join Date: May 2009
Location: Orange County,CA
Posts: 22
15 yr Member
sk8ter sk8ter is offline
Junior Member
 
Join Date: May 2009
Location: Orange County,CA
Posts: 22
15 yr Member
Default What kind of block?

What kind of block did you have? a brachial plexus side of neck or a Stellante ganglion front of neck? Where did you have it done what city? Where you given sedation?
sk8ter is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-22-2009)
Old 05-06-2009, 10:40 PM #6
angelrsd's Avatar
angelrsd angelrsd is offline
Member
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
angelrsd angelrsd is offline
Member
angelrsd's Avatar
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
Default

i have had alot of these.. and the longest mine have lasted is 12 hrs and that was only one time.. usually 4-8hrs. and i get the horners eye with it. my new doc makes it so it only lat about 15 mintues . when i used to go to the other doc it was like all day with the stroke face and i couldnt stand it as a kid . but i also get sore throats with the SGB any one else?
__________________
hope this finds all in less pain
.



rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


.
angelrsd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-22-2009)
Old 05-07-2009, 04:58 AM #7
RSD31 RSD31 is offline
Member
 
Join Date: Mar 2009
Posts: 116
15 yr Member
RSD31 RSD31 is offline
Member
 
Join Date: Mar 2009
Posts: 116
15 yr Member
Default blocks

Hang in there i have RSD in Both arms I have had 70 plus SGB in the front of neck will all side a fecks and i do not get secdated just make you have a good doctor doing them I have a great know and he is very good doing the injection good luck ( sorry for the spelling) have hard time because drug hurting bad today
RSD31 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-22-2009)
Old 05-16-2009, 10:29 AM #8
stressedout stressedout is offline
Member
 
Join Date: Apr 2009
Location: NJ
Posts: 143
15 yr Member
stressedout stressedout is offline
Member
 
Join Date: Apr 2009
Location: NJ
Posts: 143
15 yr Member
Crazy 4 down 2 to go

So now I have been through 4 stellate ganglion blocks with 2 more this wk. The first two I didn't get any of the side effects just less pain. The third I could not hear right, fuzzy. Really felt out of it and don't even remember therapy after. They made the pain less (from a 6 or 7 to a 3/4)and the constant burning was gone after the 2nd. After the 3rd, although the constant pain was much much less I was getting a stabbing pain. After the 4th I got the whole droopy face thing but the pain is now gone except for what I think are muscle spasms or cramps. They can be bad but are not constant. They range from small cramp like pains to my whole hand cramping up in a painful fist. My hand still has alot of swelling in my palm and got really big w/that mottling last night but not now. Just feels very weak and uncoordinated. I am still getting the tremors though. It seems that I start out pain free in the morning but by night time it goes up...not to what it was though. The dr talks that this is so mild (I'm sure it is when I hear how much pain some of you are in) but I get so frustrated because I thought I should be better by now.
My question though is shouldn't the swelling and tremors be going away too?? I thought the pain would stay away? The pain is down alot and the burning gone but I was really hoping this would put me in remission. BTW-I am on no meds, they wanted to see how the blocks worked out first.
stressedout is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-22-2009)
Old 05-16-2009, 10:50 AM #9
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi,

I'm glad the blocks are helping. That's a good sign. Maybe you will be one of the lucky ones to go into remission.

I still have swelling and tremors at times so I don't know if they do go away with the blocks but it's been quite sometime since I had them

Don't overdo things either. That might help for the blocks to do better.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-22-2009)
Old 05-20-2009, 11:30 PM #10
(Broken Wings)'s Avatar
(Broken Wings) (Broken Wings) is offline
Senior Member
 
Join Date: Jul 2007
Location: Kentucky
Posts: 1,614
15 yr Member
(Broken Wings) (Broken Wings) is offline
Senior Member
(Broken Wings)'s Avatar
 
Join Date: Jul 2007
Location: Kentucky
Posts: 1,614
15 yr Member
Default

Quote:
Originally Posted by sk8ter View Post
What kind of block did you have? a brachial plexus side of neck or a Stellante ganglion front of neck? Where did you have it done what city? Where you given sedation?
Yeah, I had them bilaterally in 2005ish. I just posted about Dr. Atasoy. It was outpatient at the Jewish Hospital in Louisville, KY.

At first it made my scalenes and shoulders and arms worse but it did give a little relief after a few days. Not much but I was in very bad shape then. Next was Botox to the scalenes. It helped quite a bit.

I was advised to have brachial plexus but yet can't find a doc in eastern KY that will do them. We have some pretty good docs here so that threw up a red flag for my anxiety.

They're all risky. Not adverse it them, though. You have to do what you have to do.
__________________
(Broken Wings)
.



.
(Broken Wings) is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (05-22-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
nerve blocks stressedout Reflex Sympathetic Dystrophy (RSD and CRPS) 3 04-28-2009 10:52 PM
Nerve blocks Jaime_S Medications & Treatments 18 02-28-2009 12:36 AM
Nerve blocks, or Nerve stimulator? Nik-key Occipital Neuralgia and other Cranial Neuralgias 27 02-16-2009 02:24 PM
nerve blocks alisden Chronic Pain 3 08-15-2008 04:06 PM
Sympathetic nerve blocks dshue Peripheral Neuropathy 7 06-03-2008 10:54 AM


All times are GMT -5. The time now is 11:19 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.