Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-19-2009, 01:23 PM #11
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Default What stage are you in, and how do you know?

I looked it up on Google. I just typed in stages of RSD. A lot of replies popped up, so I just chose the ones that looked good and read them. There are 4 stages, so I compared my symptoms to the stages I looked up! I think I'm in stage 3, because I've had RSD for 4 years and my symptoms matched what I looked up.

Be blessed

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Old 05-19-2009, 03:06 PM #12
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Hi Michelle,

When I was initially diagnosed with RSD in July 2007, my Pain Management Doctor told me that I had type 2 RSD which was the moderate level.

My Doctor now doesn't believe in stages though as he says that the RSD can fluctuate too much and therefore it is hard to determine what stage you are in. It has also been scientifically proven I believe that stages are no longer any use and most doctors don't use them anymore.

I think it depends on how bad your RSD is really but most doctors aren't too keen on the stages any more so I don't think they mean that much really.

I'm sorry that you were treated so badly at the doctors office!! I cant believe how ignorant some doctors and staff can be sometimes!! Please don't let anyone force you into doing the SCS ... it has to be YOUR decision and no one elses!!! No one can force you into doing something that you aren't happy with - you know your body better than anyone else and have every right to say no to something you don't want!!!

Congratulations on your daughter passing her tests - that is so great and you must be so proud of her!!

Take care and know that you are in my thoughts!
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Old 05-19-2009, 08:36 PM #13
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Here are the Clinical Guidelines, 3rd Edition for RSD.

Quote:
The staging of RSD / CRPS is a concept that has died. (Reference 53)

The course of the disease seems to be so unpredictable between various patients that staging is not helpful in the diagnosis and treatment of RSD / CRPS. The following stages are presented in these guidelines merely for historical significance.
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Karen
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Old 05-22-2009, 08:48 PM #14
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Default Scs

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Originally Posted by michelles View Post
thank you for your input and after reading everyone's reply i do agree there are no stages.. my foot and leg changes all the time.. they want me to do that scs and every visit that is all that they push. it really makes me mad, i feel so firm in that i do not want the scs unit and they should do everything else for me instead of telling me that my only hope is the scs...
I couldn't agree more Michelle's. I've been to my new Pain Management Doctor about 3 times, and he pushes the SCS like he is getting kickbacks from the company. The very first visit i told him i didn't want an SCS, and i was very adamant about it. He hasn't listened very well because he pushes it no matter what i say.

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Old 05-22-2009, 09:15 PM #15
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Quote:
Originally Posted by jmac51 View Post
I couldn't agree more Michelle's. I've been to my new Pain Management Doctor about 3 times, and he pushes the SCS like he is getting kickbacks from the company. The very first visit i told him i didn't want an SCS, and i was very adamant about it. He hasn't listened very well because he pushes it no matter what i say.

jmac51

Michelle,

When a doctor,
starts "pushing" you down a route that you're uncomfortable with, you have to start asking the tough questions.
Why is he pushing the SCS?
Who's his sponsor?
Ask him straight out?
Or, look up the the "medtronics" or whoever makes the pump, page, and see what doctors they recommend. Is yours listed?
If so, he's getting paid to "Push the Pump". (I took a leap there, but, did you follow?)

This "MONSTER" of a disease, is now prime Time, for the Money Outlaws!

The ones that will Prey on your Pain!

Don't let them.

Find a doctor, ,who will treat you conservatively, and with your agreement, and understanding!
NOT force you into "signing the paper"! For some really next century test dumby type treatment!
I've been there, we've all been the test dumby to some extent, with this disease!
Since 1983, I'm ANGRY!

This is why I love Chiropractors. (They'll sell you some massage gel)..
Whoo waa!

Alexander Technique massuese's

And Neurologist's who will give you, and work with you, until you get the proper and correct cocktail, and keep "tweaking" it, one med at a time, until it's right FOR YOU!

NOT some rush in and cut, nutster!
No WAY!

Fact is, they DO get "kickbacks", in the form of a commision, from the company. He sells, (He's a salesman now, not a doctor), and get's say oh, 20% of a 10,000.00 device.) Plus, Installation, service and all the adjuncts!
Makes me, as a Master Plumber, feel like a real Wx, if I were to take $ for selling a certain boiler, or water heater. (Which, I NEVER did).
Plumbers have Morals.
Doctors and Lawyers, don't, necessarily!
No laws!

Pete
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