Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-21-2009, 02:40 AM #21
ALASKA MIKE ALASKA MIKE is offline
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ALASKA MIKE ALASKA MIKE is offline
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these patches are no joke for sure...the first rule from my pain doc was to make sure that if i was not applying these to my body, that the person that was doing so did not come into contact with side that has the medicine on it. he told me that a 25 patch could easly kill someone who isnt on any pain meds at all.

same rule goes for throwing out the patches. the instructions say to fold the patch in half and then flush down the toilet. if you throw into the garbage someone might come into contact with it.(young kids or dogs looking for food,if a dog licks that patch, its a dead dog)




Quote:
Originally Posted by wildberry2277 View Post
I went into a 3 and half week coma and one of the reasons the they think is off of these patches... i would immeditaly call your doctor and tell him what is going on... These things are not a joking matter after my coma my doctor explained that most ppl go into a coma like state and die... if they have to much of the fentanly in there system or if their body simply is reacting to it badly... REALLY I STRESS CALLING YOUR DOCTOR!
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Old 05-21-2009, 02:51 AM #22
ALASKA MIKE ALASKA MIKE is offline
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such a true statement here....

stay away from HEAT if possible.

the problem is if you have crps then you probably sweat all the time which raises the body temp and forces more fentanyl into the body. this in turn does 2 things, 1)the patch does not last 72 hours and 2) you are getting to much meds at one time.

when i first started out on the patches, i would burn thru them in 30 hours because of the sweating so i had to put a patch on every day.





Quote:
Originally Posted by dennyfan View Post
I am on Fentanyl now. The only time I ever had a problem with them is when I spent too much time out in the heat & sun. You are not supposed to do that & it was my first time & I didnt realize the limits. You are supposed to avoid long hot showers & heat & sun when on thre fentanyl patch. If your body temperature gets too hot it can dump too much med into your system too quickly. I would definately call the doctor. You might have started on too high of a dosage on the patch. I hope you find something that helps you.
Have a low pain day.
Denny
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Old 05-21-2009, 04:36 AM #23
ALASKA MIKE ALASKA MIKE is offline
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glad you are feeling better.

So your doc knew you had no opiates in your system and still gave you 25's(thats fricken scary). if it were me, i wouldnt use the 12.5's until i built up my system to handle it.

my other pain doc told me that a 25 patch is the same as going to the emergency room and getting a morphine injection. at the time, i was on 225mcg/h. so that would be 9 morphine injections per day every day.

i know i wouldnt be here without this medication so it was worth the ugliness the first 4 months i was on it. it took that long before we figured out what would work for me. my sweating made be go thru them so fast. i remember trying 300mcg/h but it made me sleepy and my heart felt it so i went down. the pain doc said you can keep going up until it effects the heart then you either level off or go down a little. i was on a dozen different meds to control pain and they caused lots of problems including CONSTIPATION and bleeding ulcers. now i use the fentanyl patches only except for breakthru pain. thats another story.

if you do decide to stick with this, make sure you change the patch on time. here is what i do. at 8pm every night i grab the patch i need and i grab a marker(sharpie ultra fine tip) and a tegaderm1626w for the 100,75,50 or a 1624w for the 25 and i suppose the 12.5( i dont use the 12.5). i open the tegaderm and lay flat, then i open the fent patch and put the date on it, then i lay it on the tegaderm, then i grab the flonase and mist the arm(shave the arm the night before), then put it on the arm.

the tegaderm seals the patch in so you dont have to worry about it in the shower. next i write what dose i just put on me on the calender next to my bed so i always know. trust me on this, if you are on a high enough amount you cannot remember if you put it on yesterday or the day before.

fent-any-l is the way i remember to spell it. i cant spell anything else, but i did learn this word. LOL


change the patch on TIME, you are suppose to change every 72 hours. at 80 hours or so you will get the worst headache and stomach ache from withdrawel.

Good luck Dennis....



Quote:
Originally Posted by dshue View Post
Hey --

Like you, it seems I've found out that the fentenyl patches should not be used until someone has previously taken opiates, working their way up so to speak to these potent patches. As I've taken no opiates before this, thus this disaster.

My doctor communicated as much to me through his office, and that we should probably start at a 12.5 patch next time. Next time? Not so sure about that one. My pharmacist was really well versed on this topic too, basically giving me an explaination akin to your posting.

I've taken a script for nausea, and have been taking lorazepam regularly since; things have calmed down - can eat and all that. Still a little shaky. Hoping that wears off soon too.

-- Dennis
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