Hi. My name is Kim, and I was diagnosed in January of this year. It started after I was injured in my left leg/hip area in October, 2008. I welcome you to our community, but wish we could chat about happier topics!

First, YOU ARE NOT CRAZY! I felt the same way. I live in Maryland, and have access to very good medical care (Johns Hopkins Hospital). I have been to eight doctors, so far, and will be referred to Hopkins in December. (When I get my permancy rating for Disability). I am currently seing a Pain Management doc, an Orthopedic, Neurologist and P.T. with accupuncture. I have been unable to work since the injury last year and Workers Comp. has been giving me a terrible time with my benefits.

The problem I have now, along with the agonizing pain, is a reluctance from my Pain Doc to work with me on different meds. (Narcotics make me very ill, and I tend to vomit every day). I take high levels of Neurontin, which badly affects my memory, and Baclofen, which makes me sleep all day. I am running out of room, but I wanted you to feel welcome and not alone. Chat back!