Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-20-2009, 03:21 PM #4
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ali12 ali12 is offline
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Location: Yorkshire, UK
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The only pain medication I take is Ketamine when I am in a really bad pain flare.

I used to be on LOTS of medications to try and control my pain but they weren't doing anything and the side effects really outweighed the benefits.

Eventually, me and my doctor both said we felt that it was best if I came off them seeing as they weren't doing anything for me. My doctor was concerned about me being on so many meds at my age as he feared it could cause problems in later life.

I still have lots of pain on a daily basis (it is usually about a 8 out of 10 on the pain scale) but I guess after so long, you kinda 'get used to it' as it is normal for you.

I think it really depends on the person as to whether you take meds. If they are working for you and dont cause any nasty side effects then that is great and I can see why you would take them as they improve your life! In my case though, they didn't do a thing for me so I chose to come off them. It's hard at times knowing that I dont have anything to help with the pain but I know nothing really helps me anyhow other than the Ketamine and that only helps a little now as my body has built a tolerence to it.
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