Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-25-2009, 12:51 PM #15
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kidaho kidaho is offline
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kidaho kidaho is offline
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Default Meds for RSD

Narcotics are never going to help you with RSD pain. And I have had experience with the same methodone experience you describe... you just don't care as much about it, but it is still there. But living like a zombie is no way to live. You need to try different anti-seizure drugs - that will actually help the nerve pain. The one the worked best for me was zonegran. But it might take a while to find the right one and the right dose. If your RSD is very bad, you will need to work up slowly to a large anti-seisure med dose. Try to find one that doesn't have a ton of side effects, then go up on the dose gradually until it has the right effect. Make sure you are also seeing the right type of doctor that knows about RSD... a "pain specialist" they are usually called.

And you made the right call on the stimulator, although it sounds like just really bad programming.

Good luck.
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