Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-01-2009, 05:36 PM #11
screwballpookie screwballpookie is offline
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finz,
I am so sorry to have made you feel uncomfortable. That is not my purpose for this poem. It was just one like I said on a whim and I didn't mean to offend anyone. I just thought it was different and thought i would share it with everyone. Sorry if I offended anyone else that is not what i meant to happen. Most of the time when I write it is how I am feeling and what I have gone through. It is thoughts that come to my head and the only way for me to get them out is to write. I have done that ever since middle school and have a manuscript of poems that I have done over the years. Again I am very sorry if I offended anyone that was not my purpose.

Sincerely,
Tracy Tracy
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Old 06-02-2009, 04:16 PM #12
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Tracy,
love the poem. Its what i want to say to my husband everyday

sue k
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Old 06-02-2009, 04:41 PM #13
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Tracy -

I liked the poem. And although this thought isn't poetic in the least, it does speak to "your pain is not my pain."

A couple of years ago I suddenly passed out, mid-sentence and for no reason that my neurologist could ever figure out, but in doing so, I split the back of my scalp pretty badly when it hit the tiled kitchen floor. Unfortunately, I'm allergic to the preservative commonly found in most lidocaine, so I require the preservative-free version, which is sometimes hard to get on a moment's notice. And the E.R. I went to didn't have any, so I told the doctor to put in the stiches acapella. She said "Are you sure? " and I said I was. She wound up putting in seven stiches, and it was nothing. I've since repeated that on two occasions when I had a PICC line inserted in my upper arm.

Compared to the pain of RSD, much (but of course not all) of the other stuff doesn't begin to match up.

Mike
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Old 06-04-2009, 10:14 PM #14
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Hi everyone,
I just wanted to thank everyone for their comments. It does make me feel better knowing I can do something right for once. Thank you all for making my day smile when all it seemed that it was doing was frowning. I go back and reread all the comments when I am having a super bad frowny day and it turns my frown upside down into a smile again. So thank everyone of you.

Sue K your husband might be a lot different than my husband but I let my husband read my poem and it didn't phase him like it didn't phase him when I took the time to write him a 3 page letter to let him know how I feel with rsd thinking he would understand if it were in my words. It is just like he doesn't care. That hurts me really bad. I just want him and my daughter to care about what I am going through and no it is not all about me. If I had any way of getting a hold of any kind of information that I could read on what it is like to be on there side of the wall I would read it in a heartbeat. My husband, daughter, and my family don't really care what is happening to me. I keep telling them that I need to keep the stress level down so my rsd doesn't react and cause me more pain or possibly even spread more, but they act like they don't care. They all still give me a lot of stress. I guess i can't blame my daughter to much she is 13 and a half years old and that is teenagers, but what is my hubby and my family's excuse? Sorry I am rambling on off the subject again. It has just been one of those days for me and I just needed to read the posts again to turn my frown upside down. Thank you all again. You all take care and hope to talk to you all soon.

Sincerely,
Tracy
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