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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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06-08-2009, 08:00 PM
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06-08-2009, 08:45 PM
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I know all about the clicking, at least in my case. I found that the more I bent in, in pt or whenever, it seemed like it swelled, and it got much worse. I cannot obviously tell you what to do, but...stop bending it for a few days more than necessary. The more you exercise it, the worse it clicks and then the worse it hurts, right? Give it some rest, the swelling goes down, the clicking lessens, and it hurts less. I also found that using like an ace wrap that went all around the knee cap but not over it kept me from bending it too much as well as I guess keeping it from moving to the side, which I think is what made it worse. I used that tape stuff that sticks to itself and made like a x with it all around my knee, not too tight, and used the pain to tell me how close I could actually get to my knee cap with the tape. A happy thing; the clicking doesn't happen anymore, but for once in a great while when I have lifted too much weight, and then it doesn't hurt and click for long. Good luck, I hope this helped you. Later, Smoke
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| "Thanks for this!" says: | Dew58 (06-10-2009) |
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06-10-2009, 09:53 AM
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Magnate
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Thank you all for the kind words and advice - I really appreciate it!
My mum emailed my PT's yesterday and told them about the pain in my knee and my PT called her back this morning to ask what sort of pain I was getting and where it was etc. When my mum explained things to her, she said that she doesn't think it is from the splint as the area where I am getting the pain, isn't where the muscles work overtime when they are in the splint. We have been adviced to go and see my GP if things don't settle down anytime soon to see what he thinks, especially seeing as though the pain I am getting in my knee isn't like RSD pain. They also suggested getting some really strong anti-inflammitaries to see if they help any. I have an appt to go and see my PT's on the 23rd I believe (that was the earliest they could get me in as they said it seems as though a lot of children are developing chronic pain conditions at the moment) so they are going to take a look at my knee then to see what they think is wrong. If the pain continues, I think we will probably go and see my GP as it's making me feel pretty sick and i'm not sleeping well. I think it's worse as I already have RSD in that leg and think I might have something else going on on top of that. Thanks again for the advice, i'll keep you all posted when I can!!
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06-13-2009, 10:03 PM
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I'm so sorry about your knee pain. I sounds like you definetly need to have a x-ray, MRI to see what's going on inside. I went to an orthopedic knee specialist before rsd for clicking sound and knee pain. That was about 15 years ago, two years before rsd. he said the tests showed osteoarthritis. I had been real active all my life, track, water skiing, snow skiing, running, 40 miles a week. He just had me do adjustment on my aerobics class so as not to impact the knee. It wasn't the kind of pain you are having by any means. But now I have RSD in my knees too. full body. If you were to push your fingers on your knees or back of your knees , is there an indent that stays a while. That shows water retention. And there in water retention when there is inflammation. Inflammation goes along with RSD, and fibromyalgia. Someone posted about anti-inflammatory diet last week and I've been on it since. about a week now and noticed a big decrease in fluid at my elbows and less bone pain. I'm going to stay on it. There are definite foods that build up your immune system and foods that heighten inflammation. I've been doing additional research. One site by a rsd specialist from Florida that is now retired, but has his website up is www.rsdrx.com There is a part about diet called the 4 F's and also the part called puzzles is really good. Puzzles is a list of about 140 questions by his patients and his answers. Hope they do the right tests to see inside your knee. I want to tell you how much i enjoy your writings and how encouraging you are to all of us. I'm 61 and my daughter is 30 so you feel like a granddaughter to me. Take care and say hi to your mum for me. Your friend, loretta |
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06-14-2009, 03:35 PM
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Magnate
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I am still dealing with a lot of the knee pain. Me and my mum went out for a bit today and my knee gave way about 6 times so it seems as though it is unstable sometimes and whenever I am walking, I get a sharp pain in it, especially if I bend or twist my knee. I never know when my knee is going to give way, it just happens and I have to grab onto the nearest thing or I fall. I have been diagnosed with Rheumatoid Athritis so will look into that also as some of the pain I am getting does feel like a bone pain. I don't think that the pain in my knee is RSD, I know what RSD pain is like and it isn't like that at all - it is more of a muscle / bone pain. My mums trying to make an appointment for me to see my GP but it usually takes a few weeks to get into see him as he is always so busy (we really need to find another but he is supposed to be the best in the area). I have an appt with my PTs on Wedneday next week but know we probably wont get any joy from them as they are always quick to put everything down to being RSD without ruling out anything else. I had my knee bent slightly yesterday and after about 2 minutes, I got a lot of fluid build up in it and whenever I pressed down on it, it felt like it was really swollen so I definitiely think there is some swelling there, though it tends to come and go. I just want some relief from the pain as it is really painful at times and brings tears to my eyes. It is making it worse also as my dad is being really awkward and saying that I am faking it or it can't be that bad - even though my leg is really swollen, blue and spasms all the time!!! My mum is constantly trying to tell him about RSD but he never seems to listen. I wish he would come to hospital appointments with me but he wont - he has been about 2 times in the last 2 years I have had RSD!!!! Thanks again for the info. I will keep you all updated as to what we find out - hopefully I will get some answers soon!!
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06-17-2009, 11:12 PM
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hey ali
ive had 3 knee surgerys in 04,,,useually clicking is a torn meniscus[ thelining bewteen the bones that seperates them,,very common surgery to repair,,,see your favorite orthepedic dr,, its not life threatning but its a pain,,,braces for temp releif are ok,,but its worth getting fixed right,,ive had it done 3 times with the contact sports i played,,,my o nly concern for you id the spread of rsd,,,,,keep us posted,,,yourm in our prayers,bobber |
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| "Thanks for this!" says: | ali12 (06-18-2009) |
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