Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-19-2009, 09:54 PM #1
kilikina kilikina is offline
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Tongue RSD and teeth

Hi All,
I'm sure this has been discussed before but I can't find the thread. I was just informed that I need a root canal and crown for the second time in two months. My teeth tend to feel achy but that's about it. What are the connections between RSD and dental problems/concerns? is "RSD of the mouth" possible? Thanks for any and all help.
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Old 06-20-2009, 02:06 AM #2
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hI KILIKINA AND WELCOME TO OUR FRIENDLY rsd GROUP.
I've read about RSD and teeth. Yes, it is possible to get RSD in the mouth. It scares me to go to dentist. When I go, the dentist order antibiotics for the day of the appointment. I now use nitrous oxide which puts you in la la land. I think the relaxation helps to not fire anything up. I take Lorazepam also day of appointment. There is a website by a Drs. that worked with RSD patients in Florida. He is retired now, but another Dr. has taken over a lot of his patients. The website is www.rsdrx.com
It has so much good information in it. There is a question about dental work. It might be under puzzles. There are over 140 puzzles, which are questions from patients and Dr. Hooshmand's answers. Hope this helps. This reminds me to make a dental appointment, THANKS A LOT SMILEY FACE tAKE CARE AND LET US KNOW HOW YOUR APPOINTMENT TURNS OUT. i HAD A ROOT CANAL BEFORE i KNEW i HAD rsd. i WASN'T DIAGNOSED FOR 4 YEARS. BUT KNEW SOMETHING WAS WRONG. tHE DENTIST DIDN'T TELL ME, BUT GAVE ME EPHENEPHRINE mY MOUTH WAS WIRED OPEN AND i FELT LIKE i WAS GOING TO HAVE A HEART ATTACK. I got his attention and he unwired me and gave me an antidote. So I carry a medical alert card. My dentist and his assistant were more than willing to read about RSD. You might print off something about RSD and dental work & precautions.
Hope the best for you. loretta
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Old 06-20-2009, 03:20 AM #3
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Just an aside, but don't overlook the independent role of narcotics, which can cause dry mouth and wreak havoc on dental health in the long run. Add sugar - including that in the "lollipop" Actiq (Buccal fentanyl) - and without brushing close to a dozen times a day, you're an oral goner, or so I've been advised by an old pm doc. In this regard, note that the FDA approved patient warning for Actiq includes the following:
- if you will be using the lozenges, talk to your dentist about the best way to care for your teeth during your treatment. The lozenges contain sugar and may cause tooth decay and other dental problems.
http://www.nlm.nih.gov/medlineplus/d...s/a605043.html

A good friend of mine with decades of horrendous neuropathic pain (not RSD) had to have all of her remaining teeth extracted a couple of years ago, solely as a result of the meds.
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Old 06-20-2009, 04:47 AM #4
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Hi Kilikina,

Sorry to hear that you are going to need some dental work doing soon.

I also have problems with my teeth. I never had any problems before I got RSD but now they seem to chip very easily. When my mum spoke to my doctor about it, he said that it's pretty common to develop dental issues with RSD and it is probably due to the fact that the body doesn't get enough calcium.

Earlier this year, I had to have a root canal, a tooth extracted and a filling. I read somewhere on the internet that when having dental work with RSD, you should make sure the dentist knows about RSD to try and prevent any spreading etc.

Theres quite a few articles on the internet about RSD and Dental Work so we took them for my Dentist to read. In the articles, it said that you should have twice as much anaesthetic injected into the gum as a 'normal' person would. My dentist was very understanding and followed all of the info we gave him. He also read up on RSD before I had any dental work done.

Thankfully, I didn't have too many problems from the procedure. I had quite a bit of pain afterwards but it settled down within a few weeks and was nothing compared to RSD pain.

I wish you the best of luck with your procedures! Please let us know how it goes!

Alison.
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Old 06-20-2009, 07:28 AM #5
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What perfect timing for this thread. I just had a crown put on yesterday, and withing about 5 min. my body was off the chair. Finally the dr. said that he would have to numb my so he could put the perm one on. Well, he did, (it hurt so bad), and it still hurt so much. So this morning I feel as if I was punched in the face. It still hurts to try and chew. I'm hoping (I know it will), start feeling better soon. Of course, falling the other day didn't help. My nose is still a little swollen, and I have brusing under my eyes. I still have to be carefull trying to put my glasses on my poor nose.

Hugs
Mary
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Old 06-20-2009, 07:34 AM #6
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Hi. I am sorry. I don't have teeth problems but do have a lot of other infection problems like ear infection,eyes etc. I had been told that people with rsd are more suspetable to things like infections. I do know in general I am so sensitive and not just my rsd area. I have heard like others stated too here about dental problems. Do you take calcium with vitamin d? I do twice a day for my osteoporsis but I think in any regards it is a good idea unless a reason not to. Many thoughts and I hope you feel better.
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Old 06-20-2009, 09:11 AM #7
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What a subject! Thanks for bringing this up, it will probably be a constant...

I've had rsd since 83, and my teeth took a real good crush in 98 my 2nd accident, (Hit my head, crushed my teeth, actually felt discs "herniate" click, click, click, click, and, I spit out bit of teeth and fillings since. (I am not afraid to say, that I am afraid to go to the dentist!) My Good doctor Knobler, is amazed, that I'd rather stick a "boiled" needle nose into my mouth, after (washiing my mouth with a shot of vodka), and just pull something out). Ya know? It's gonna hurt!, I pack it with gauze, now, this is not as weird as it sounds. I'm not talking about doing my own surgery, but, some molars have splintered, and became loose, so everytime I ate, I'd be in pain. So, It hurt to brush, etc.
I checked it out well, (in the middle of the night), and this one little "shard" just hadto go! So, it did. No Charge!
Two Shots! And gauze.
Done.

But, now, (get that outta yer mind),
It seems to me that I bleed from all over my teeth, even the "tips" of my lower front teeths, the tips seem to be painful.
I must brush with an oral b rototiler brush, gently.
I use this new Crest Pro Health toothpaste, I think it's great. It's got pecan shells in it I think for the abrasive.

I need to see a dentist, no doubt.

I'm about to lose my home, and, well maybe catch some chump change, and I'll get these things tended to.
I love my teeth.
But, I do foresee a day, when they won't be "mine".....

Pete
Asb
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Old 06-20-2009, 03:54 PM #8
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Quote:
Originally Posted by ali12 View Post
Hi Kilikina,

Sorry to hear that you are going to need some dental work doing soon.

I also have problems with my teeth. I never had any problems before I got RSD but now they seem to chip very easily. When my mum spoke to my doctor about it, he said that it's pretty common to develop dental issues with RSD and it is probably due to the fact that the body doesn't get enough calcium.

Earlier this year, I had to have a root canal, a tooth extracted and a filling. I read somewhere on the internet that when having dental work with RSD, you should make sure the dentist knows about RSD to try and prevent any spreading etc.

Theres quite a few articles on the internet about RSD and Dental Work so we took them for my Dentist to read. In the articles, it said that you should have twice as much anaesthetic injected into the gum as a 'normal' person would. My dentist was very understanding and followed all of the info we gave him. He also read up on RSD before I had any dental work done.

Thankfully, I didn't have too many problems from the procedure. I had quite a bit of pain afterwards but it settled down within a few weeks and was nothing compared to RSD pain.

I wish you the best of luck with your procedures! Please let us know how it goes!

Alison.
Hi Ali, Do you have any specific articles that I should share. The first root canal out and out sucked (sorry). I've always been a dental phobe and this is once again making me twitch.
Thanks,
Chris
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Old 06-20-2009, 04:14 PM #9
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Quote:
Originally Posted by kilikina View Post
Hi Ali, Do you have any specific articles that I should share. The first root canal out and out sucked (sorry). I've always been a dental phobe and this is once again making me twitch.
Thanks,
Chris
Hey Chris,

Heres the article that we used when I had my dental work done from American RSD Hope and it really seemed to help my dentist - I hope it helps yours too !!

http://www.rsdhope.org/Showpage.asp?...1&PGCT_ID=3396

I'm sorry you had a nasty time having the root canal last time! I can relate. When I had my root canal done in January, it was really painful!! My dentist kept hitting the nerves and my gum wouldn't go numb - it took about 6 shits of anaesthetic for my gum to go numb!! I had quite a bit of pain after the procedure but thankfully, it settled down!!

I hate the dentist also, especially now that I have RSD. I'm always scared that the dental work could make the RSD spread etc.

Take care and I hope your dental work goes well!!
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Old 06-20-2009, 07:57 PM #10
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I know how scary the thought of a dentist is but it is very important to have the work that is needed done. I have my hygienist alternate the cleaning between the upper and the lower and go more often. My dentist has agreed that we will only do the work that is absolutely necessary.

Although it doesn't quite answer your question Kilikina this is an interesting article from RSDSA

CRPS Patients and Dentistry: A Dentist's View
By Christopher R. Brown, DDS, MMPS


http://www.rsds.org/3/treatment/rsd_dentistry_brown.htm

Good luck with your root canal.

MsL
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