[ali12]

Hi everyone,

I just wondered how many of you with RSD are also RSD?

I was diagnosed with Hypermobility Syndrome around the same time as I was diagnosed with RSD and was told by my PTs that people with RSD are often Hypermobile as well. Apparently when you are Hypermobile, your joints bend more than in a 'normal' person, thus making you more likely to develop a Chronic Pain Condition such as RSD.

I was just pretty interested to see if anyone else was Hypermobile and whether there could be a link between Hypermobility Syndrome (HMS) and RSD.

Thanks!

[dreambeliever128]

I read up on Hypermobile and that is sure not me. I am 57 but as definatly sure I wasn't even as a child.

I am sure I had CFS and Fibro as a child and in school I couldn't do a lot of the sports and activities that other kids do. If I did it was a joke. I barely can move my joints in a normal way. Years ago a Dr. in NM told me that the tendons that go down the back of my legs were too short, that could explain why I had problems in sports but I'm definatly not able to bend like hypermoble people do.

I have seen people who can do some of the things that hypermoble people do though.

Interesting that they say most people with RSD have this. It will be interesting to see how many if any do.

Ada

[ali12]

Originally Posted by dreambeliever128

I read up on Hypermobile and that is sure not me. I am 57 but as definatly sure I wasn't even as a child.

I am sure I had CFS and Fibro as a child and in school I couldn't do a lot of the sports and activities that other kids do. If I did it was a joke. I barely can move my joints in a normal way. Years ago a Dr. in NM told me that the tendons that go down the back of my legs were too short, that could explain why I had problems in sports but I'm definatly not able to bend like hypermoble people do.

I have seen people who can do some of the things that hypermoble people do though.

Interesting that they say most people with RSD have this. It will be interesting to see how many if any do.

Ada

Thanks for your input, Ada!

What you described about not being able to do sports sounds a lot like I was. I can't do sports now because of my RSD but when I was in school, I could never do anything in gym other than swimming.

I could never figure out how to do any of the sports and really hated having to do sports every week as I used to feel really stupid when I couldn't do any of the things that the other kids could!

I was diagnosed a few months ago with Dyspraxia which is a co-ordination problem and my PT's and doctor believe that that is probably the reason why I had so many problems in gym. No one ever picked up on it before I was diagnosed with RSD but I definitaley always had problems with it. In PT, I am always having to get the PTs to show me how to do anything as I can never figure out what I have to do which is really annoying!!!

Sorry you had to deal with that also as I know how stressful it is!

[Dubious]

Originally Posted by ali12

Thanks for your input, Ada!

What you described about not being able to do sports sounds a lot like I was. I can't do sports now because of my RSD but when I was in school, I could never do anything in gym other than swimming.

I could never figure out how to do any of the sports and really hated having to do sports every week as I used to feel really stupid when I couldn't do any of the things that the other kids could!

I was diagnosed a few months ago with Dyspraxia which is a co-ordination problem and my PT's and doctor believe that that is probably the reason why I had so many problems in gym. No one ever picked up on it before I was diagnosed with RSD but I definitaley always had problems with it. In PT, I am always having to get the PTs to show me how to do anything as I can never figure out what I have to do which is really annoying!!!

Sorry you had to deal with that also as I know how stressful it is!

Here is an educational link for you...

http://www.chiroweb.com/mpacms/dc/article.php?id=31763

[dreambeliever128]

The symptoms sound like what I have but I sure don't meet the criteria.

Thanks for that. Very informative.

Ali, you sound just like me dear. You should have seen me trying to run the 60 yard dash as a child. I probably came in last walking and then the 500 yard dash, I can remember finishing that in practically a crawl. Funny what we can remember from our childhood.

I know nothing I had was delt with as a child. Back then people didn't go to Drs. much, they used home remedies. Dad did try me on one a day vitamins but I couldn't even take them, they made me sick.

As kids, I don't think we think anythings wrong either even though we know we aren't like other kids.

Ada

[GalenaFaolan]

I voted no. :-) I am not nor have I ever been hypermobile. I think some people spout off with a line like "most people with rsd are/have/etc" when they know nothing of the kind.

Hugs,

Karen

[bobber]

Hi Ali
Im not flexible at all,, my hamstrings are tighter than guitar strings, but my neuro said he believes there is a coralation with people that have rsd, and being hyper,anxious, chatty,, kinda of like our nerves are already in over drive just waiting on a injury ot blow a gasget,,, it kinda makes sense,,,they keep telling me to calm down and that worring and being nervous will exasperate rsd,,, one of many reasons to have a seditive,,,,,,,,,,bobber

[daniella]

Ali I am sending thoughts to you always. Have you tried pool therapy? I am thinking of it again and wonder if that may be a good way to get you more mobile with less impact. I went on your blog and I saw the concert you went to. How fun. I am sorry though you are in so much pain. If you want there is a girl I know who runs a group obviously not where you live but anyhow she is I think 17 or 18 now but has had rsd for years. She is the one who used to be in a wheel chair but now is doing so much better walking and even went to prom. If you want I can set you guys up for email buddies or on facebook. I am always here too for you. Sending many thoughts

[ali12]

Thanks Daniella and Bobber, for your input.

Bobber - It's strange that your doctor said the chatty people seem to get RSD as I am nearly the opposite lol. I am chatty but only to the people I have known for a long time. I'm nervous and shy around people I don't really know whenever I see them in person. My dr told me that RSD seems to attack people like me that are shy and have a Type A personality. It's interesting how so many doctors have different theries on how RSD develops. I hope you're doing good!

Daniella - I tried pool therapy (hydrotherapy) before I was diagnosed with RSD and it didn't really help me. When I was diagnosed, my PT's said that it probably wouldn't help due to my additional problem of Dystonia as my muscles are tight all the time, even when I am in water. I do think that they mentioned they were thinking about trying it not so long ago when I have the intense PT to see if that makes a difference so will have to discuss it with them then. I have an appt with them on Wednesday so will hopefully have some answers then as this pain is really getting me down now. It would be great if you could get me in touch with the 17 year old girl that you know if you and her wouldn't mind - thanks so much!! I think it would really help me to see someone who has RSD but has managed to make progress, especially lately with me feeling down so i'd love to talk to her! Thanks again for your kind words, I really appreciate them and hope you're doing well!!

[ALASKA MIKE]

i had it in my back for some time. we tried prolotherapy but it did not work. eventually i had a few spinal surgeries to fix the disc problem and the pain.

when i went in for a chiro adjustment on the low back it would last one second. the chiro would adjust me then said get up and as i pushed up we would both hear my back pop back out so he said lay back down and he would adjust again only when i pushed up off the table my back would pop out again. thats when he said you need some prolo work.

i dont have that problem now when i go for adjustments, but now the chiro mostly adjusts the mid back and neck.