What kinda of heart problems are u having? If u don't mind me asking. I didn't think I had any heart problems either but I had to get a ultrasound two weeks ago or so because my blood pressure was so high and I had been on blood pressure meds for a long time. It seemed like it just went sky high all at once.. So they took me off cymbalta and changed bp meds..

I have no idea why this happens and I am guessing it has something to do with the RSD and with stress. It always happens when I am under a lot of pressure, a lot of stress or when I am very nervous for some reason. I do know that I don't handle stress the way I used to. I was extremely pressure-resistant until RSD hit. I lived off of stress before!

Maybe it's due to the nervous system reacting the wrong way, maybe it's part of it?

I do know that I don't have heart problems. I went to a cardiologist many years ago for a full check-up and he didn't find anything except that my heart reacted as if I were very out of shape; but no wonder - I could barely move due to the RSD. One test couldn't be completed, I remember, because I had to ride a bike for it and that was no longer possible by then.

Hate to be bearer bad news but I have it too and now its my whole face started same way it's RSD and as u probably know u have to stay calm to keep pain levels down and the weather plays a real part in it too Hope I help u Shey

Hate to be bearer bad news but I have it too and now its my whole face started same way it's RSD and as u probably know u have to stay calm to keep pain levels down and the weather plays a real part in it too Hope I help u Shey

My friend has RSD since 3/06 - first r knee - with SCS attempt with to both feet in OR (the pain was so bad they aborted the procedure).

Now looks like it has spread with a major flair in the face/neck/head/back.
This skin is bright red (some color changes around the eyes) hot (you can feel the heat coming off it) burning, itching and sweating.
3 ER trips now and tons of blood work - all normal. has sub grade fever of 97 to 97.4. He is in misary (can not stand anything to touch him) no sleep. Looks like he has major sunburn with skin peeling off.

Also, flair in left lower leg and foot - looks like the foot is being burned from the inside out to the point it has major blister that are now draining. Wound clinic said they had no idea and could not help.

Any suggestiong on how to deal with the upper body stuff. Now on 300 mg of Lyrica times a day.

Will see internal med tomorrow and the PM dr from Anchorge Alaska who comes here once a month (most times)/

I pray for all how have this horriable RSD.
Thank you

Hi Kate,

I've always had blotchy skin too, had it my whole life not just since I was diagnosed with the RSD 7 years ago. When my doctor saw it on my stomach he thought I had a rash, perhaps a reaction to something and given my history of allergic reactions it alarmed him. Ultimately it calmed down on it's own and was nothing that could be explained.

I have a friend with RSD, she occasionally experiences a drooping of her face muscles on the her right side. When she has her lidocaine infusion her face returns to normal. All the doctors had to gather around around her to watch the remarkable recovery as the lidocaine works it's magic on her.

I wish I could explain the red blotchy rashes that come and go but I've never been given and explanation as to the cause either pre or post rsd.

Does anyone else out there have any answers?

MsL

For me, it's my legs and feet. One side is ice-cold and the other is burning up. I will use my left foot like a "heating pad" to warm up my right foot.

I can't imagine that happening in your face. That must be difficult to deal with. I hope you can figure out some type of relief, no matter how minor.

Mike

I have extremely blotchy skin - on my chest, back, upper right arm and shoulder, neck and face. It "flares" more often in the afternoon and evening.

Sandy

Hi SunshineGirl
Good question-RSD is an autonomic disorder. Which means involuntary organs affeced, circulation, temperature, heart, lungs. our blood pressure can be high and then LOW I'll drop 50 or more points both top and bottom numbers. I've even passed out when went too low. sympathetic nervous system may be 150/90 and then the parasympathetic nervous system may drop it 90/50 . RSD affects the immune system . My first system of RSD was frozen shoulder following surgery. PT told me after I got my range of motion back- it may go to other side After a year of remission -it went to the other side. Another remission. Original side- hand next frozen hand- year later moved to right hand. then down legs and feet- full body. Also is why we are burning hot sometimes, then ice cold.
Please stay with us-I learned so much from friends here- helps me cope.
Take care, loretta