Hi Carrie,

Know that you are missed, but please take care of yourself first. When I am in horrible pain I to do not want to chat with people or post on the board. Know you are in my prayers and I pray the new med that is going into your pump brings your pain levels down.

Kate

Carrie and Pete, I hope you both feel better soon.

I've been thinking about you a lot lately and I have your phone no. laying by my bedside. I was going to call you last night but I know you have little ones and I hate to disturb them.

I'm sorry to hear that you are having such a hard time. If you want to talk girl, you know my number.

Love ya,
Ada

Hi Carrie,
I'm so sorry you are have a rough time. I hope your pain level drops. I had a rise in pain due to not sleeping for weeks. Wouldn't get to sleep till 5-6- a.m. My Dr. said that wasn't acceptable. When we don't sleep well, we don't get restorative sleep, which in turn means pain goes way up. He has been doing a study on a med, seroquel, the study was 200 people, low dose seroquel,below the dose of what it was designed for. bi-polar.
I switched from amben cr to seroquel 5 weeks ago and my pain went way down. I went for 6 vicodin to 3 a day. Went from 6mg of lorazepam to 2 mg a day. The restorative sleep has helped me so much. The study will soon be published. The study involved fibromyalgia patients, which I have also.
He just finished building 2 new clinics and they have HBOT in each of them. He said the results of HBOT are great. I'm trying to build our coffee business up so I can afford the HBOT. Insurance doesn't cover it for RSD and is expensive.
Carrie, have you done journaling. That is something that helps me alot. I went into therapy when my parents died. And when I was diagnosed full body, my neurologist suggested i see a therapist. I didn't like the 2 names he gave me, so I found my own. I've been seeing him once a month for 5 years. He was been a lifesaver. he is a neurologist, pyschiatrist, and pharmacologist. For me, I think finding the right combination of meds has helped a lot. I went off 3200 mg. of neurotin a few months ago. Only have had a couple of jolts. About 4 years ago, I passed out for a long time, my husband things an hour and half. Paramedics told my husband they thought I was dead, couldn't find a pulse, had passed out again bp 60/40 Spent 4 days in semi/icu Just the RSD.
The hospital I asked to go to was the one the RSDSA had their annual meeting at. They are going to release a DVD of the meeting. They said 50,000 are getting RSD every year.
So sad.
I am so sorry you have been down. My Dr. switched my anti-depressant to Cymbalta 120 mg. For me, it is working better than paxil and wellbutrin. I know we are all different.
Our business has been hit hard by the economy. We have a office coffee delivery business. I'm going to try and get some new accounts this afternoon in 110 degree heat.
I haven't done this since I passed out 4 years ago. I've hired a couple of people to get new accounts. Take care and please know I'm thinking of you. I've always enjoyed your posts and encouragement. Your friend, loretta I'm 61 , married, have one daughter 29 and son in law,29. I like the picture of you and hubby. Glad you weren't hurt during the tornado you had.

thanks to all for caring so much it does make me feel better. im just tryin to deal with daily issues right now and the pain is just wreaking havoc not sleepin and horrible pain and that alone is a deadly combo. thanks to all for the great thoughts..

carrie

pete i hope that the tooth gets better i know how ya feel i still havent been able to get mine that are rotten out and still havin alot of pain with them hang in there buddy

love ya all tons

carrie

Carrie, just wanted to say: hang in there!!!