Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-04-2009, 07:29 PM #1
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Quote:
Originally Posted by Jo*mar View Post
Just a bump to bring the original topic back to focus.
Jo -

It was in that spirit yesterday I offered my post re "The Natural History of Complex Regional Pain Syndrome." And my last today, just before yours, dealt with how under "exigent circumstances" we can boldly go where no person has gone before in our personal symptomatology [read: spread of symptoms] whether or not it's in the books.

Of course we may meander a bit here and there, but so long as there is no ill will (overt or implied) I personally don't believe that we have to adopt a per se rule against it. It's part of what can make threads come alive, although having said this I know that it is too easy for me to take a simply question and launch into an extended discussion that misses what the person who started to thread was trying to get at. And while we (I) must be mindful of that, neither should a thread be limited to the "four corners" of the initial post, where what we're trying to do here is have a pleasant (and respectful) conversation.

Having given the question some consideration and with all respect, overt acrimony is another matter altogether, whether or not on topic.

Mike
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Old 08-04-2009, 09:22 PM #2
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I believe the key word in any post or posted reply on NT is "RESPECT."

Should the topic be open to explore or expand to other realms related to the topic at hand by members that wish to investigate further? ABSOLUTELY.

This is called critical thinking, and we all can learn from such discourse. I enjoy listening/reading others opinions on each post. Anytime there is an opportunity for "growth" in knowledge from one another, it is a treasure.

We learn from each other at NT. Sometimes there may be a spark of temperament that may feel uncomfortable; however, it is the passion behind the discourse that is focused on a mission to explore the topic in an open minded manner.

Mike has a very good argument, as in debate/discourse. Is it necessary that we all have to agree with each other on a post? No, we are individuals and each of our life experience brings diversity to the floor on each post.

With that said, the manner of the spread of RSD/CRPS is diverse. If there was a cookie-cutter answer, I believe there would be a cure.


Dew
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 08-04-2009, 09:46 PM #3
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just as a FYI thing..

That bump was just a general bump of the original post for all , it wasn't aimed at anyone specific.

Sometimes when the 1st post is bumped up after a reminder to stay with the topic - it just helps for everyone, so they don't have to scroll back to read it.
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Old 08-04-2009, 10:48 PM #4
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ok like always here of late i am late on this thread. ! sorry..

first of to nancy yes rsd can and will do what it wants when it wants period. and i hope that you are able to get it under control. i know how scary it can be and we all know that we sure as crap dont want it to spread. period..

shelmora i can agree with what you are saying about people scamming the system drs etc. but i think that the problem that people are having here is that you popped in and where very adiment with the post that you were writing . this in no way me beng rude or disrepectful. like you i also suffer from severe rsd since i was 16 . and have documented proof that i have full body and organ involvement and have been treated by very well respected RSD drs.

we are a very close community here and are very protective of "outsiders" (this is to be viewed loosely ) that come and and make harsh statements. that is why most are reacting the way that they are. also we all are aware of people that scam for all kinds of reasons we see this all the time.

i bet you are a very caring person. as are we. we know what it is like to have to suffer with this horrible monster and pray to god that there will be a cure someday .. please know that i was just stating my Opinion .. i am sorry if i came across brash this is solely the way that i am.


hang in there nancy!!!

carrie
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please check out our website to help bring awareness to RSD!


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