Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-26-2009, 09:51 PM #24
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nancyinLA nancyinLA is offline
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nancyinLA nancyinLA is offline
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Join Date: Jul 2009
Location: Louisiana
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Quote:
Originally Posted by hutch View Post
RSD can for sure be on one side of your body. I had surgery on my right hand and came down with RSD on rt hand,arm and shoulder. I also understand that it can move to opposite side? Are you getting nerve blocks? I got nerve blocks along with physical therapy and it really helped---the two go hand in hand. The most important thing is to keep things moving---even if it hurts!! Its strange, I have partial epilepsy also. I wonder if there is a connection between the two??? I take Lamictal for my seizures. I hope what ever treatment you are getting brings you much relief from your pain. take good care---keep in touch----hutch
No nerve blocks - 2 much pain 4 me resulting in temporary relief! i go 2OT twice/wk; PM dr once/mo; psychologist once/wk; & neurologist twice/yr. i've had epilepsy since age 16 - taking Tegretol XR 200mg and a 100 mg plus phenobarb. Taking 1500mg/day Neurontin & 10mg Lexapro.....take Ativan 4 anxiety or "impending" seizures. Also was prescribed a compounded "Keg Gel" topical pain cream for my pain areas. My RSD, as i said, began in wrist (left arm) & went 2 left foot! I've been heavy researching RSD sites 4 "traveling" of RSD. good sites: 1)http://www.ampainsoc.org/pub/bulleti...8/advocacy.htm
2)www.rsdinfocenter.com/rsd-progression.html
and an article: Patterns of spread in complex regional pain syndrome, type I (google it!) can't type 2 long....take care!
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