Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-26-2009, 11:21 PM #9
hutch hutch is offline
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Join Date: Jul 2009
Location: I live in Pennsylvania
Posts: 57
15 yr Member
hutch hutch is offline
Junior Member
 
Join Date: Jul 2009
Location: I live in Pennsylvania
Posts: 57
15 yr Member
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Quote:
Originally Posted by bobber View Post
Hi Hutch
its been 7 months for me,,what speeded up my spread was that i had a THR on 4/13 without a continous block,,Everyones rsd spread at a different rate,,mine was boosted because of the hip surgery,,staying calm is very important and exercise is inparitive to a recover or a remission,,,my gut is telling me that being that your in like a reinstatment of rsd,i would aggressive attack it with a pain management and bombard it with exercise and back this animal back into its cage, i feel very confident that your in a stage thats very crucial,,time is a valuable thing,,in the last 2 weeks, ive seen mine recede,Since then,,,ive been in the pool aqua jogging an hr aday 5 days a week with a light full body workout in the gym. Im not spazing out, and am trying to stay focused,,,i was a certified PT for quite some time,,feel free to pick my brain on a regime,,or anyone else here as well,,Im always asking for help too,thats what were here for and if anyone here wants to contact me ,my phone number is available,,pm me,, I dont want to just survive anymore i want to Live,,,,,,,,,,,and pray to the Lord,,he will heal,us as he says,,,diligent hands rule,,,,,,,,,,your friend,bobber
Hello---did you say you live in W virginia still? What does THR stand for? I do (although I hate to admit it to myself) believe you are very correct that my rsd is reinstateing itself. I do have access to a pool so I will start doing exercises that way. I had my left wrist operated on 3/5/09, maybe that has something to do with it flaring up again? I also question if my botox injections could of aggravated my rsd?? I am not seeing a doctor for this--what type of doctor do I go to. The first time I got rsd it was my hand surgeon that sent me to a pain management doctor who gave me nerve blocks--only thing with that was the shots only worked the first 3 times and then it was no longer effective. I am not sure that would be the way to go again?? I am very leery of pain meds--they scare me. I do take ativan occasionally, so maybe I should take that a little more often for now. Oh, what does PM me mean?? I am not very good at the computer lingo yet. I go to John Hopkins for my epilepsy, dystonia & arachnoid cyst, maybe I should call JH to see a doctor there for my rsd or do you think the exercising will do the trick?? Thanks for your reponse---and what days and times are good to call you?? much thanks---hutch
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