Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-07-2009, 12:51 PM #11
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Sue I am so sorry to hear that you are in so much pain and to have that on top of your RSD pain it must be so hard on you. Please remember we are all here for you! You will be in my prayers every day and night. Please take everyones advice about getting your pain under control that is the first and most important thing! God Bless! Love Always! Breezy55
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Old 08-07-2009, 03:08 PM #12
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love,
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 08-07-2009, 04:28 PM #13
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sue
you poor thing i am so sorry to hear this. !! i know how much you pain you must be in last year i broke my foot that also has rsd in and torn a ligament .. i will keep you in my prayers..

(((((((((((((hugs))))))))))))))))))

carrie
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 08-07-2009, 05:22 PM #14
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Mike
how did switching from oxycodone to methadone cause your hernias? does it weakin the stomach walls or cause more constipation? Thats a notable thing to know, it will keep alot of us from running into the same problem,,,,,,,,,,,,,,,,,bobber
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Old 08-07-2009, 11:48 PM #15
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Quote:
Originally Posted by bobber View Post
Mike
how did switching from oxycodone to methadone cause your hernias? does it weakin the stomach walls or cause more constipation? Thats a notable thing to know, it will keep alot of us from running into the same problem,,,,,,,,,,,,,,,,,bobber
I was started out on what I understand was a fairly hefty dose of Methodone, 30 mg./day. Unfortunately, my pm doc. didn't know that I had discontinued the use of Naloxone HCL, taken orally 1/mg. every time I took an Oxycontin/oxycodone, due to the extreme cost issue, when I had found that Senaokot-S, a good over the counter stool softener that he had also reccommended, did the trick when I just took 4 tablets at bedtime. Turned out, that was nothing against Methadone, which completely shut me down. Then it was just a matter of straining to produce results, and that's all it took. That said, I was later advised by a pharmacist that I would have had better luck taking the Senokot-S with the each of the three daily doses of Methadone, as much as 8 tablets a day.

Live and learn.

Mike
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Old 08-08-2009, 08:04 AM #16
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Default Sue, you poor darling i am so so sorry

Sue- that is my worst nightmare, my worst fear, another injury to mkake the pain worse than it is now. You are in my prayers from this moment forward I am so so sorry Sue, Make sure if surgery they put a marcaine pump in for the pain as well. this is critical!!!!! Please keep us posted. Sincerely cz









[QUOTE=sue k;548586]I WAS OUTSIDE YESTERDAY LOOKING AT MY FLOWER GARDEN IT ISN'T DOIN WELL BECAUSE OF ALL THE RAIN. MY DAUGHTER GAVE ME A MARIGOLD PLANT FOR MOTHERS DAYGIFT IN 1988. EVER SINCE I'VE BEEN PICKING THEM AND DRYING THEM OUT. I GET TONS OF SEEDS. WELL I WENT TO TURN AROUD AND TRIPPED OVER A TOY ONE OF THE KIDS LEFT OUT. I SPUN AROUND SO HARD AND LANDED ON MY BUTT. I TRIED TO GET UP AND THE PAIN SHOT UP MY LEG. I COULDN'T OFF OF THE GROUND. I SCREAMED FOR MY HUSBAND. IT STARTED SWELLING SO FAST BY THE TIME HE GOT THERE IT WAS LIKE A BALLOON & PURPLE. THEY GOT ME INTO THE CAR AND I SCREAMED ALL THE WAY TO THE HOSPITAL. WELL I BROKE MY KNEE IN TWO PLACES. OF COURSE ITS THE LEG WITH THE RSD. IT HURTS SO BAD, THE PAIN CLINIC DOUBLED MY DOSE OF OXYCODONE. i GO TO THE ORTHO DOC ON MONDAY. THEY SAID I MIGHT NEED AN OPERATION. I AM SO SCARED. PLEASE PRAY FOR ME. THANKYOU,
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Old 08-08-2009, 08:12 AM #17
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
.

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 08-09-2009, 08:54 AM #18
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Quote:
Originally Posted by sue k View Post
WELL I WENT TO TURN AROUD AND TRIPPED OVER A TOY ONE OF THE KIDS LEFT OUT. I SPUN AROUND SO HARD AND LANDED ON MY BUTT. I TRIED TO GET UP AND THE PAIN SHOT UP MY LEG. I COULDN'T OFF OF THE GROUND. I SCREAMED FOR MY HUSBAND. IT STARTED SWELLING SO FAST BY THE TIME HE GOT THERE IT WAS LIKE A BALLOON & PURPLE. THEY GOT ME INTO THE CAR AND I SCREAMED ALL THE WAY TO THE HOSPITAL. WELL I BROKE MY KNEE IN TWO PLACES. OF COURSE ITS THE LEG WITH THE RSD. IT HURTS SO BAD, THE PAIN CLINIC DOUBLED MY DOSE OF OXYCODONE. i GO TO THE ORTHO DOC ON MONDAY. THEY SAID I MIGHT NEED AN OPERATION. I AM SO SCARED.

Sue,

OMG! No!!!

I would be scared too. You broke your knee in two places and it's the RSD leg? I hope they are willing to do surgery on it as the fracture probably can't remain as is.

Keeping my fingers crossed for Monday.
Let us know what happens!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 08-09-2009, 05:49 PM #19
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Thanks Mike,
i was going to ask the same question as bobber, about your hernias. My husband had double hernia surgery, no fun. Isn't it outrageous how a med can skyrocket within one year. Not acceptable, but what can we do? Take care, your friend, loretta
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Old 08-10-2009, 10:06 AM #20
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Sue,

How are you today? Do you know more yet?
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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