Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-15-2009, 05:25 PM #9
hopeful hopeful is offline
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Join Date: Aug 2009
Posts: 914
15 yr Member
hopeful hopeful is offline
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Join Date: Aug 2009
Posts: 914
15 yr Member
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Hi, Thanks for the suggestions. I do put fuzzy socks on actually when I am home I live in slipper socks. Is speckled marrow a sign of RSD? They have not suggested physical therapy to me yet. Although, neuro told me I have muscle waste in my left thigh and foot drop in the left foot. It is really nice to talk to people who understand. My family reallly tries and are great but unless you walk in RSD shoes you have no idea. Although, I'm sure it is hard on the families also. I am trying to stay positive about once every week or two I just lose it after I shed a few tears I feel better and go on for another few weeks.
Quote:
Originally Posted by Penguin View Post
Hi, i am also new to RSD and whoa, this has been quite the rollercoaster ride for me. I had 2 left knee surgeries 7 and 6 years ago, here just recently my left knee went haywire on me. I had an MRI which showed speckled marrow replacement w/ fatty marrow and I guess that was the last nail in the coffin and was DXed about 2 weeks after. I have an awsome physical therapist who is working with me right now b/c i lost some of my theigh (all will soon learn that i cannot spell lol) muscle and we are also working on desensitizing my knee. Whenever my foot feels that "i'm frozen" burning pain, i just put on some really soft, fuzzy socks and move it around to get the blood flowing. I do the same thing when my knee or leg starts to feel that way, I start moving. Yeah, at first it hurts, but the more I get the blood moving, the better it starts to feel. No, it does not feel 100% better, but it's not that burning, stinging, pins and needles anymore, it's more tolerable. I hope this helps, like I said, i'm completely new, hasn't even been a month. Just stay focused and positive and vent, vent, vent to those who you feel will understand and not judge you. I am sorry that you have this, but it is what it is and we just have to keep keeping on.
Val
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