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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Hi Friends,
I wanted to let you to know that I have been sleeping off and on for the last 24 hrs. I FEEL so much better. Thank you for the love posted on my profile. I hope that each of you are having low pain days and nights. I am still yawning, and will probably sleep whenever my body tells me too. Hubby is up and about, with an ankle splint, and is back to work on his jobs,today. He has his own business, and usually works alone. Hubby and son are watching over me, and made sure that I stay in bed once I was able to sleep in the bed. It was a pain flare, and now feels at a low burn, for which I am grateful. Thank You for being you ![]() ![]() Dew
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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"Thanks for this!" says: |
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#2 | |||
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Fantastic that you were able to sleep and that the flare has lessened.
Hoping for better days!
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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"Thanks for this!" says: | Dew58 (08-22-2009) |
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#3 | ||
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Glad to hear you got some rest. Sorry to hear you had a pain flare up.
Hoping for restful nights, Kim |
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"Thanks for this!" says: | Dew58 (08-22-2009) |
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Senior Member
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That is wonderful!!!! I am happy for you. I, too, got some sleep the last couple days... it makes such a huge difference in how we feel!
I hope you get many more nights or days of sleep! ![]()
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~ Friend2U . . HANG IN THERE! If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici MS/dx2006 BETASERON (Quit May 2011) COPAXONE (Began June 2011) |
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"Thanks for this!" says: | Dew58 (08-22-2009) |
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#5 | |||
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Magnate
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SO glad you finally got some sleep, Dew! I understand the no sleeping issues - I can go days with little to no sleep so understand how ill it can make you feel!
I hope you continue to feel better and are able to sleep tonight too ![]() Love, Alison
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To the World you may be one person, but to one person, you may be the World. |
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#6 | ||
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Quote:
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#7 | ||
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In Remembrance
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We ALL need something, to help us sleep.
The day's memories, the last memories from our traumatic injuries, and wondering, what will come of this? Are all enough to keep us wound up in the mind, and far from sleep. If we "know this is coming", or maybe even not, we should have a medication to "save us". Right? We have things to save us from our intractable pain? Yes? Of course..... So then, I use a zanaflex pill, i think at .4mg, to get me to sleep. I could take three. Or, one, plus a 5mg diazapam.... that''s the one that works at least for starters,,, Point is, NOBODY needs to suffer from lack of sleep! I have obstructive Apnea, and use a CPap machine, (when I remember to put it on, before, dozing off....) otherwise, I awake after 1+1-1-2 hr. Then put it on. My brain wakes me up , telling me I don't have enough O2. So then I put the machine on, and I can add o2 using my own scale..... (or feelings/knowledge). O2 REALLY makes me sleep!!!!! If you have sleep problems, get a sleep test. (No small thing, this.) Then, your doc can write for an O2concentrater, and they'll give you a couple of cylinders of O2, as well, for headache..... Take it. USE IT! OR, OK, die then..... Not a joke. Serious stuff. get your sleep tested, (I don't know any friends with RSD, who don't have sleep issues, and get tested, and then get a cpap or bipap machine! W/Oxygen! You hafto ask for the Oxygen! They won't turn you down, if you have ins. I now forget what I started to write about..... so, I'll sign off, and, hope that EVERYONE HERE REmembers Les Paul! Whom we lost, last week. sadly. The king of creating the electric guitar, effects, etc., and, @ 94 years of age, was still an active player! God Bless you, Les! Pete asb |
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"Thanks for this!" says: | Dew58 (08-22-2009) |
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#8 | ||
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Junior Member
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Like you, I go days with very little sleep - and then I will sleep for 20 hours straight. It is a horrible cycle, but I have learned that you have to take the sleep whenever you can. That is how it is for me. If I feel sleepy at 4:00 pm, I go to sleep - KNOWING that I will wake around 11:00 pm and then be up all night and exhausted the following day. It is a terrible way to live - but I have no Rx that helps me sleep and Pain to prevent Sleep .... SO?? What am I to do?
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#9 | |||
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Member
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Do exactly what your doing..as I am doing the same thing. Welcome to the forum, I am Dew, nice to meet you.
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__________________
. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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#10 | ||
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Member
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Glad to hear your back in the pink!
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"Thanks for this!" says: | Dew58 (08-22-2009) |
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