Please Pray For My Nephew's Daughter

Friend2U · 10-23-2010, 01:38 AM

Praise be for miracles from The Great Physician, our Lord! Your family is in my heart and prayers. May Claire be comforted greatly during her recovery.

SandyC · 10-23-2010, 09:48 AM

So happy to hear this good news. Prayers for a continued recovery and no complications.

Kitty · 10-23-2010, 10:14 AM

Saturday morning update from Mom:

"Good morning! Claire and I had a great night sleep, yay!!! Claire passed out at about 8:00pm and didn't move until this morning. She seems a little happier, but still sore and uncomfortable. She is ready to go for a walk, so we are going to try to make that happen today. She is recovering well. She still has to keep the chest tube. The surgeon explained to me it is because of a minor complication that cannot be avoided with a surgery that is so extensive. He assured me that it will heal on it's own, but she will just have the tube a little longer. I'm sorry, he told me what the complication was, but that was before my coffee so.....

That's it for now. I'm sure we'll be here another day, but we are grateful for the awesome care we get at Scottish Rite. Claire is in the best hands."

Kitty · 10-24-2010, 03:47 PM

Sunday's update:

"We're still here! Claire is doing well. We are waiting on the lymphatic fluids to clear up and then they can take out her chest tube. Also, she needs to "potty" and that's all I am going to say about that.

We enjoyed a visit from uncle Ben (Seth's brother) yesterday. We also got to go to the play room for about 45 minutes which really lifted her spirits. She is much happier today and is content. This is God's grace in her little life."

Kitty · 10-25-2010, 05:46 PM

Today's update:

"We're home! They took out Claire's chest tube and she looks great so they sent us home. She is still sore, but she is doing great. We are so happy to be home.

So the next thing for us is cycle 6 of chemotherapy. This will be a three day, outpatient. This is the last chemo that she gets before the high dose chemo at Eggleston. I will explain that later."

Debbie D · 10-26-2010, 01:43 PM

Kitty,
glad she's home...prayers still going out...

Kitty · 11-03-2010, 09:33 AM

Latest update:

"Today is the last day of the LAST cycle of chemo!! We have passed two markers on our race, six cycles of chemo and major surgery. Claire has been sick this time but not from the chemo. She is taking a drug called Mesna that works to help move the chemo out of her bladder. This drug has made her very nauseous. Today she doesn't have to take it so we are looking forward to her feeling better. Remember to pray for Claire as this cycle will hit her blood counts a little harder and she will get mouth sores. We treat this with a specific mouth wash that really helps. Also, there's a good chance will be back in the hospital with a fever.

So, the next step is a big one. This next stage in her treatment is referred to as "transplant". So when I talk to you or you hear me say "transplant" it involves the whole process. Please do not stop reading here and think she is getting an organ transplant. Claire will be getting a STEM CELL TRANSPLANT. This is also referred to as a bone marrow transplant. This will take approximately 3 weeks and will happen at Egleston. Claire will be in isolation. We will not be leaving the hospital for three weeks and could be in there over Christmas. She can have visitors who are not sick, have had their flu shot and are over the age of 12. The big thing that Claire will be facing is mouth and bottom sores. Most likely she will be on a morphine drip and will have a feeding tube until she heals. She will also be at GREAT risk for illness or infection. All visitors will be asked to wear mask and wash their hands upon entering her room. We'll post the restrictions as we get closer. Here is what the time will look like:

7 days of high dose chemotherapy. First day starts as Day -7 and counts down.

Day 0 (day 8) Claire will get the stem cell transplant (small IV injection)

This next day is known as Day 1

Day 1-7 stem cells will begin to make new ones and create bone marrow causing blood counts to come up.

Days 7-14 Blood counts will continue to recover and so will Claire. During this time the mouth sores will heal and she will have the feeding tube removed.

Until this time comes (5-6 weeks from now) we will be back and forth at Egleston and Scottish Rite having various scans and test done to make sure her body is ready for it.

Here is a praise and it's a big one. Since there was no cancer in Claire's bone marrow, we were able to harvest her own stem cells. We did not need a doner. This also means the risk to Claire is very minimal. She will recover faster as a result."

Kitty · 11-03-2010, 06:39 PM

This past September Claire and her family got to spend a week at the beach thanks to Blue Skies Ministries. My nephew Seth (Claire's father) was asked to give a testimonial about their week there. I thought ya'll might like to watch it. Click on the one that says "Seth":

http://www.blueskiesministries.org/testimonials

soxmom · 11-04-2010, 08:22 AM

Hey Kel, thanks so much for continuing to keep us in the loop.

I remember when my friends daughter had her stem cell transplant. It
was tough but I know little Claire will do well. We all need to keep her
close in our hearts and in prayer.

Kitty · 11-16-2010, 01:03 PM

Here's the latest update. Thank you so much for all your faithful prayers. We should not be surprised that Claire is doing so well. God is listening.

"First, Claire is doing good. Her counts dropped and came up with no fever. We are so grateful. She is back to eating and playing. We have some dates coming up that we would like some prayer over.

11/29 - CT scan (Scottish Rite)
11/30 - MRI (Scottish Rite)
12/1 - MIBG scan (Scottish Rite)
12/3 - meet with oncologist to go over scans. Please pray that the tumor/cancer have not started growing back. If they are clear, transplant can wait until 12/27.

12/7 - Consent #1 appointment at Egleston for transplant. Pray for us because this is the appointment where they will go over all the possible risk, side effects and problems. It is very hard to hear this information and then say, YES...do this to my child.
12/8 - Evaluation day at Egleston for transplant. Claire will have an echocardiogram , hearing/vision test and various other test done to make sure she is ready for transplant.
12/21 - Consent #2 appointment at Egleston.
12/27 - Transplant begins."

Similar Threads
Thread	Thread Starter	Forum	Replies	Last Post
Please pray for my daughter this week	SandyS	Reflex Sympathetic Dystrophy (RSD and CRPS)	9	11-10-2009 01:21 PM
Please pray for my Mom	Nik-key	Sanctuary for Spiritual Support	20	01-07-2009 09:50 AM
Pray for these who are on this video drug resistant TB...-& s pray one for another...	lou_lou	Sanctuary for Spiritual Support	0	10-03-2008 06:21 PM
Please pray for me	Looking4hope	Sanctuary for Spiritual Support	20	02-18-2008 02:31 PM
Pray for my Daughter!!!	SallysMom	Sanctuary for Spiritual Support	13	08-02-2007 09:15 AM

Site Navigation

NeuroTalk Online Support Groups

Please Pray For My Nephew's Daughter

NeuroTalk Forums