That your situation has been through multiple iterations of treatment and that migration and battery problems have plagued you; and, here I have been glad of my paddles which have not experienced migration and, so I am told, were secured very well. Just wish I knew what and whether to offer more solace than you have now by way of continuing to work with your docs and rep.

One thing I do know is that we all care here and would readily reach out to provide help as we each have experienced different approaches and situations.

Caring,
Mark56

Hi guys. Saw the doctor yesterday for another set of blocks. So far, I just seem to hurt more. Had a bad skin reaction to the Clonidine patches, plus found out that in addition to "helping" with the pain, it lowered my blood pressure to a hundred and something over 44. Needless to say, no more clonidine patches.

The doctor and I discussed removal of my stim, as it is apparent I can't utilize it. I can still only use it while sitting completely still and even then I get chest wall stim and it jumps all over. Definitely not what it is suppose to do. He and I agreed we would wait to remove it, every surgery I have had since the accident has resulted in RSD problems. I am super tired of this. I have such a horrific headache (probably due to the lowered blood pressure) and I've been up since 4:30 after not getting much sleep. I am also tired of the cold - I want warm weather. I NEED warm weather. Also, my daughter's goat is driving me crazy - she is due to kid any day now and is being a pain. Poor kid is running out to the barn every couple of hours to check her. I try and make it out at least once a day so I can check her over as best I can. It's hard though, and I usually just tell her or hubby what to feel for (checking her legs for swelling, udder for signs of mastitis, and her ligaments).

Hey everyone!!! Send up several for Patti!!! This is an awful result to having been through all of hte surgery to implant and then have this inappropriate arcing of signal. Any decision now to head for another surgery has to be agonizing, so Patti, you are definitely in prayers here!!

Prayin,
Mark56z

Hi Pattie,

I'm so sorry to learn about all of your disappointments with your SCS because I have been so satisfied with mine. I have an ANS St. Jude unit with dual paddle leads.

I sure pray you get some relief really soon.

Take care,

Rhonda

Thank you for this update
But oh MY what you've BEEN thru! How scary that your BP went that low!

Warmer weather is on the way - hurry up April!!

I'm sending out my prayers as well and please know we're wishing the best for you......I can certainly understand why you wouldn't want to rush in to getting another surgery......I was really hoping they could land on some program settings that would be right for you.....
or even if they had to move a lead a bit if it's aggravating a nerve or something. It's so sad to know that you've been thru all of this and having to throw in the towel.

Caring Always
Rae

Patti Im so sorry to read your last post...how awful for you indeed.

I too will pray that you will come to a satisfactory end with all this and somehow they can help with your pain rather than have to put you through anymore surgery!!

take care

Jackie

Thanks guys - it really has gotten pretty sad around here. I am waiting for a call back from the Cleveland Clinic. They have told me they have to call and verify coverage from the auto insurance and then it is up to the doctors whether or not they want to see me. There's a good chance they won't according to a woman I spoke with because I didn't have the implant done at their clinic. I hope she is wrong.

I just wanted to leave you a hug Patti.