Jackie- Good to see your Post
 

How glad am I that you are here and a posting, a posting! I hope your Turesday tweak goes well, and that you can resolve some of those annoyances which have plagued you. Headaches are no fun at ALL.:hug:

Blessings on you for the weekend,
Mark56:grouphug:

Its been a tough few weeks and emotional so havent wanted to come on here and take every one down with me.

Have been back for some reprogramming sessions and this time I had a male rep and he was fantastic. He could help me with the sensations in my legs, because as soon as I stand up it disappeared. But now he has isolated my legs with the stim, for walking and its just so different!!! now why didnt that happen before!

Still wish I could have some relief for my back, but at least I have some patches to fall back on and I still take my medication too. So thats a help!

Stim settings
 

Hi Jackie,

It's nice to hear from you, i'm glad you finally got some relief for your legs with different settings, hopefully you'll be able to get some relief for your back. I had some revision surgery to fix my back last Friday and so far so good, they upped the voltage and rejigged the leads, I just hope it works as the surgery bits get better. I have a different setting for driving an A and B settings and it's great, I guess I can use the B setting for whatever but I have it and it's great.

Regarding what you said about the emotional toll all of this takes on us... yep it sure is tough, one minute you think you're on the mend and the next it just hits you like a ton of bricks or it just hangs around like a bad smell and yet you know it's just depression.... but still everyday I wish I could feel better.... then when I do, i think it's great and tomorrow I could wake up and feel crap for God knows how long. I guess all of us have our own way of coping or our own way of trying to help or selves.

None of us can pretend to understand the troubles each of face but things we have in common like the emotional toll we should try to support each other.

Chat soon hun

Sinéad :grouphug::grouphug::grouphug:

Hi Jackie
 

It is the emotional side of things which definitely needs the input of those of us who CARE for you which is at the center of this suborum universe. We care. We want to be able to live for you by rendering support.

Surely, we pray for one another, and all the better that you share so you may know more frequently how very much we lift up your name in our prayers and in our thoughts. You special lady you, watching after your granddaughter, looking after your back yard flower garden and taking in the beauty and scent. Yours in a life of GREAT importance to us in all respects, so feel welcome to come and share your needs so we may offer support.

CARING VERY MUCH temporarily from North Carolina,
Hugs a-bounty,
Mark56:grouphug:

Jackiey .. don't ever feel that way. We're always here with big hugs for those feeling low.

I thnk most of us can feel for your situation ..I know I can .. it's so frustrating.

I cried a bit yesterday .. self pity .. Mike, Hannah and her boyfriend drove down to Kent to see PRINCE, which I would have loved but just couldn't even face thinking about the 4 hour journey there and back in one day .. and I sent little Hollie off with her boyfriend to see his grandparents in Spain .. another milestone. (Ok, she's 19, but is still my baby)

I sat at home with a glass of wine watching her plane "fly" to Malaga, real time, on the internet .. lol .. how SAD is that?

Today I'm really trying to buck myself up - and I will .. but there's also that bit of me inside that is extremely frustrated and feels like giving up.

Never Give Up, Never think Never, Go for the Goal
 

Somehow, someway, some means bring each of us to a point of feeling better, even the participants who have selected removal of their units sadly after they did try. Blessings await each of us in one fashion or another. Look for them, grasp them, ponder them, savor them however small they may seem.

In my faith, I believe God is ever alongside during times both uncomfortable and joyous sharing our grief, pain, despair, joy, happiness, fulfillment. I most assuredly pray this for all who are here...... well, and some others too, you know... Faith has buoyed my in times of dreadful pain, faith saved me last fall when I was at the bottom of the darkest pit I had ever entered, faith helps me to venture to write these words for the benefit of us all. I know I need them, to reflect on them, to hold hard and fast to them as each day presents knew challenges and opportunities.

Just do not give up in the quest to live life to the fullest despite the issues which bring us here..... reflect on folks like Tara, who so brightly brings triumph and the low spots, who through faith has brought her Mom to our presence for thought, prayer, hope and help. Consider Rae, who through the deep valleys of her PAIN and disappointments in the device, challenges at work and the press of life in general has nevertheless shared SO MANY BRIGHT AND WONDERFUL WITTY SMILIES. Each of us have our difficulties to bear. Also, we are blessed with the notion however slight that something cool is happening in our lives. A grandchild here, a walk... even short, a visit to the flowers in the back garden, a tender time with our spouse, maybe even just a sense of peace for however that moment lasts. Seize it, savor it, go for the goal.

Blessings on ALL,
Mark56:grouphug:

Oh it's been a while since I posted on here. Oooops.

Doing a bit better that recent weeks!!! Getting very tired though these days. Of course overdoing it doesn't help:rolleyes:

Going to Portugal a the end of August with my husband and daughter. So really looking forward to a bit of PROPER sunshine. Cos we definitely aren't getting any Summer here in dreary wet Ireland. :(

Hope you are all doing good

Jackie :)

Hey .. Not sure about you today, but it's sweltering here in Derbyshire. Have had to put the rabbits in the downstairs toilet to keep cool. (Not actually IN the toilet, but in the room!! )

I', sat on my I Pad under a parasol in the garden. Feeling a bit down to be honest, though I shouldn't be. Sometimes my husband makes me feel guilty about being "disabled" and last night was one of them .. with my not working he's had to put basic things like shopping on credit cards .. it's not easy.

I have been having my own pity party too I guess. Just feeling so down lately. Life seems to be going on for everyone but I am stuck in a rut. Not sure what to do with the rest of my life. I need/want a craeer...something to get up for in the morning..Think I have been having panic attacks lately too. The scs has made the pain so much more bearable but now I have to push myself to do my own therapy daily because wc won't pay anymore. RSD has spread to finger of other hand and now I have tendonitis in that hand, we are trying to get that under control so it doesn't spread there. Now my shoulder hurts to raise. I feel like a failur/burden to my teenage kids & husband.

I wish we weren't all spread out so far away so we could get together.

Take PLEASURE
 

AND ENJOY!!!!! : o) Lord knows you need a bit of away time that is quality!! Remember sunscreen!
Mark56 :sunchair::D