SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


advertisement
Reply
 
Thread Tools Display Modes
Old 03-27-2013, 03:14 PM #1
Kymmie67's Avatar
Kymmie67 Kymmie67 is offline
Junior Member
 
Join Date: Feb 2013
Location: Utah
Posts: 52
10 yr Member
Kymmie67 Kymmie67 is offline
Junior Member
Kymmie67's Avatar
 
Join Date: Feb 2013
Location: Utah
Posts: 52
10 yr Member
Crazy Set for SCS surgery

I'm set for surgery. April 16, 2013! Had my pre-op appt today. the surgeon is going to use general anesthesia. It will be St. Jude paddle.
He actually said the first week was going to be hell! I'm getting nervous! He has to cut bone...oh my!
I want to be ready for recovery. I want to be as comfortable as possible. I think, from what I've read, that I'll want to practically live in a recliner for a while.

This is the chair that kind of reclines, that I bought when I had shoulder surgery.



Will this be sufficient/comfortable enough? There's not a lot of padding and it doesn't recline all the way.

This is all the way reclined. Is it enough?



Should i see if i can borrow something? I was somewhat uncomfortable with the trial, so I can imagine what the permanent will be like!

Any other suggestions for recovery? I'm so scared of the pain!
Thank you!
__________________
Kymmie67
Kymmie67 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (03-29-2013), Mark56 (03-28-2013)

advertisement
Old 03-27-2013, 03:22 PM #2
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
Default

Mine is similar and it works. I also have 2 st. Jude stimulators. They have 20 electrode paddles which is awesome. It's been 2 weeks today for me and I'm finally in bed, but still hard to get comfy. Anyway, my cervical stim paddle covers C1-4 and I get great coverage for both arms. Anyway, I hope everything goes great for you. st. Jude reps are amazing.

TK

tkayewade is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (03-29-2013), Mark56 (03-28-2013)
Old 03-27-2013, 05:57 PM #3
Kymmie67's Avatar
Kymmie67 Kymmie67 is offline
Junior Member
 
Join Date: Feb 2013
Location: Utah
Posts: 52
10 yr Member
Kymmie67 Kymmie67 is offline
Junior Member
Kymmie67's Avatar
 
Join Date: Feb 2013
Location: Utah
Posts: 52
10 yr Member
Default Thanks TK

I appreciate the info. I had a hard time getting comfortable before, so I thought it was the chair. Good to know that'll happen either way!
My CRPS started in my knee, so they'll be placing the paddle to cover T8/T9 area.
I'm really starting to get nervous and it's still three weeks away! I hate thinking I'll have to deal with this pain for three more weeks!

Is there anything else I need in order to prepare?

Thanks all!
__________________
Kymmie67
Kymmie67 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (03-29-2013), Mark56 (03-28-2013), tkayewade (03-27-2013)
Old 03-27-2013, 06:36 PM #4
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
Default

Well people will come along and make way better posts than me about preparing. Mine other one is at T8/T9 as my rsd started in my right ankle.

I got a grabber. Mark is great about explaining blast (no bending, lifting, stretching, or twisting) and log rolling which is really important.

I kept a box by me that had my kindle, I can't read paper which is why they think I have MS as well. I kept snacks, meds, magazines, water bottle, and other thingsi might do or need.

Unfortunately, this must be talked about. I had to take senna. So much pain meds make things slow down!

Oh and I took my pain meds on schedule. I even set an alarm on my phone. Never want to play catch up. I am recovering from my cervical implant and doing all this lol.

Try to move when you can. I wound up with PEs that formed after surgery due to a fever I developed during surgery. It hurts but it is worth it.

The pain is not horrible. My thoracic was much easier than cervical. The pain is worth it. I hope this helps!!

TK
tkayewade is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (03-29-2013), Kymmie67 (03-27-2013), Mark56 (03-28-2013)
Old 03-27-2013, 07:00 PM #5
pooh_ac's Avatar
pooh_ac pooh_ac is offline
Member
 
Join Date: Apr 2010
Location: nowhere nebraska
Posts: 635
10 yr Member
pooh_ac pooh_ac is offline
Member
pooh_ac's Avatar
 
Join Date: Apr 2010
Location: nowhere nebraska
Posts: 635
10 yr Member
Default Greetings

From my point of view as a long time buzzer. Mark56 has a post in the stickys above. He has documented his entire process from pain multiple surgeries and difficulties we tend to journey through. If you hang around you will note we tend to be a big caring community. Also you will hear (see) BLAST. BLAST BLAST! Mark and the rest of the bunch will be along shortly to greet you! Since I am a nurse not a computer person he will leave you a place where you can go directly to his post
z
__________________
Illegitimi non carborundum
For he shall give his angels charge over thee,
to keep thee in all thy ways.
psalms 91:11
pooh_ac is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (03-29-2013), Mark56 (03-28-2013), tkayewade (03-27-2013)
Old 03-27-2013, 07:15 PM #6
Sandy Kay Sandy Kay is offline
Member
 
Join Date: Jul 2011
Location: Southern California
Posts: 263
10 yr Member
Sandy Kay Sandy Kay is offline
Member
 
Join Date: Jul 2011
Location: Southern California
Posts: 263
10 yr Member
Default

Welcome
I found it painful for about three weeks. After that things were much easier. The first two weeks were really tough. Besides blast I used the grabber all the time. Being short I tried to have things I used daily with in reach.

I never used a recliner, just used my bed and log rolled and remember BLAST.
GOOD LUCK
Sandy Kay
Sandy Kay is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (03-29-2013), Mark56 (03-28-2013), tkayewade (03-27-2013)
Old 03-27-2013, 07:47 PM #7
Kymmie67's Avatar
Kymmie67 Kymmie67 is offline
Junior Member
 
Join Date: Feb 2013
Location: Utah
Posts: 52
10 yr Member
Kymmie67 Kymmie67 is offline
Junior Member
Kymmie67's Avatar
 
Join Date: Feb 2013
Location: Utah
Posts: 52
10 yr Member
Default Awesome!

That's a big help, thank you!

I don't have a credit card to order a grabber online, so where's the best place to pick one up? Do they come in different lengths and what is the best length if you were to choose only one?
I'm sorry if all of this has been covered before. I don't have a lot of time or patience to sort through all the threads and usually when I search, it brings up almost as many threads to search through!, so I really appreciate the responses. Or, if its easier, you could just direct me to the thread with the info.

I haven't been able to find senna. Where exactly would I find it?
I use a stool softener, but the bottle says to take two to three at bedtime...well, that's a joke! That does nothing to help me. I take three 3 times a day and that only makes it a little bit easier. So, if senna works better than that, I'm all over it!

I have so many things I'm taking right now, between meds and vitamins, etc, that I have to use a reminder on my phone or I'd never, ever remember what was taken and when! So that's not a problem.

I thought I had a blood clot in my leg after my first knee surgery, so I know that doesn't feel good at all, so I will try to move as much as I can!

Thanks!
__________________
Kymmie67
Kymmie67 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (03-29-2013), Mark56 (03-28-2013)
Old 03-27-2013, 07:48 PM #8
Kymmie67's Avatar
Kymmie67 Kymmie67 is offline
Junior Member
 
Join Date: Feb 2013
Location: Utah
Posts: 52
10 yr Member
Kymmie67 Kymmie67 is offline
Junior Member
Kymmie67's Avatar
 
Join Date: Feb 2013
Location: Utah
Posts: 52
10 yr Member
Default Wow!

Wow...more replies while I was being slow typing! I'll check the sticky!

Thanks!
__________________
Kymmie67
Kymmie67 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (03-29-2013), Mark56 (03-28-2013), tkayewade (03-27-2013)
Old 03-27-2013, 08:49 PM #9
pooh_ac's Avatar
pooh_ac pooh_ac is offline
Member
 
Join Date: Apr 2010
Location: nowhere nebraska
Posts: 635
10 yr Member
pooh_ac pooh_ac is offline
Member
pooh_ac's Avatar
 
Join Date: Apr 2010
Location: nowhere nebraska
Posts: 635
10 yr Member
Heart here is the shortcut to the thread

http://neurotalk.psychcentral.com/thread117854.html
z
__________________
Illegitimi non carborundum
For he shall give his angels charge over thee,
to keep thee in all thy ways.
psalms 91:11
pooh_ac is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (03-29-2013), Mark56 (03-28-2013)
Old 03-28-2013, 09:51 AM #10
Nanc's Avatar
Nanc Nanc is offline
Member
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Nanc Nanc is offline
Member
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Default

Hi Kymmie! Your chair should be fine. I would recommend a few small pillows though, just in case, for extra support where ever you may need it. I lived in my recliner during my recuperations, but never really reclined it all the way (wasn't comfortable doing that). I had both cervical and thoracic stims implanted at the same time and a revision 5 months later. The best item I had is what others have mentioned...a grabber! If you have a Walgreens around you, check there. I bought one online and one at Walgreens...the extra one was for my office at work. It is called The Gopher and was located near the "as seen on TV" section of the store. I would think you could find Senna with the other laxatives, stomach meds in the store.

I will echo what others have said here too...BLAST is EXTREMELY important. Move things you might need to a level you can reach without bending or stretching...I am talking kitchen items, food, toiletries, clothes, etc.

I have to say that I am happy to hear you are getting paddle leads. I have St. Jude stims also, but they put percutaneous leads in at first then had to change them out for the paddle leads (in the thoracic stim)...so much better!

Good luck to you!!
Nanc
Nanc is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (03-29-2013), Hannabananna (03-28-2013), Mark56 (03-28-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Back surgery and nerve damage after surgery kabrina New Member Introductions 1 02-14-2012 12:07 AM
Tara's official surgery/surgery info thread! tchr012 SCS & Pain Pumps 41 10-07-2010 08:54 PM
RSD after knee surgery -now going to have hip replacement surgery GinnyM Reflex Sympathetic Dystrophy (RSD and CRPS) 3 01-17-2009 06:06 AM
Placebo Surgery / Sham Surgery Stitcher Parkinson's Disease 3 05-23-2007 08:38 AM


All times are GMT -5. The time now is 01:19 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.