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-   -   Saffy: My Journey to SCS (https://www.neurotalk.org/scs-and-pain-pumps/138676-saffy-journey-scs.html)

Mark56 01-20-2012 09:45 AM

Passports
 
Ya know, dear Saf, had we put in out applications for passports on the day you first brought this up........... we would have them by now, and it takes a LONG time [you know for terrorism abatement reasons we are told] for US citizens to obtain a passport to break free from the protection of our Homeland Security [read this "jail"] so we may travel elsewhere. Kinda like those wonderful TIA things which went into effect to prevent US citizens from wreaking terrorism on our own country.....

If Doc Smith were here posting he would write something like "time..... oh the time we waste."

Prayin for you Saffy, to achieve an eyeball to eyeball with your caregivers,
Mark56:hug:

Saffy 01-21-2012 02:38 PM

Letter with provisional day 1st feb arrived today. Got to be at the Admissions Ward at 10.30 .. Scared now.

What will they do if this fails? Will they take everything out and what happens to the laminectomy site if they do take the paddle leads out??

Rrae 01-21-2012 10:10 PM

Amazing!
 
You finally have a date! of course we feel nervous as the date approaches.
Try not to think in terms of 'what ifs' and failures, Karen. This brings on much more anxiety and it's easy to visualize this not working out. Believe me I'm one to know!
The laminectomy seems to prove more secure than the percutaneous.
Please try to change the 'what ifs' into things like: what if this works! What if I can get my quality of life back! What if my depression improves because of this..... I'm certainly not trying to pack you full of false hope or anything, but if we actually picture this thing succeeding and put all of our Faith together, you can go into this feeling much more confident.

Even 'if' you don't feel very much improvement right away, remember to give it time so the surgical pain can go away.
I know you are pinning your hope on this, and so are we! When they plug you in for the first time, be very precise, no matter how long it takes. This time around you know where you DON'T want the stimulation.

One thing I do when negative thoughts start up, I immediately take my mind to a place of serenity, or a good memory, or even something funny - like the surgeon wearing his nickers over his head :p

We're all here for you. You can picture all of us sitting in the waiting room
because that's the next best thing to what we do here. You know we would be if we could!

Keepin the Faith,
Rae
:grouphug:

Saffy 01-22-2012 05:22 AM

Xxxxxxxx how lovely you all are

Saffy 01-22-2012 10:11 AM

It doesn't help that one of my friends on Facebook keeps saying .. They keep putting it off, I think someone up there is trying to tell you you shouldn't have it.

Rrae 01-22-2012 03:38 PM

Quote:

Originally Posted by Saffy (Post 843891)
It doesn't help that one of my friends on Facebook keeps saying .. They keep putting it off, I think someone up there is trying to tell you you shouldn't have it.

Oh my LORD! This sounds like something we should put on the "Lets tell them what NOT to say" thread!

Good Grief!
:Soapbox:

Sophie_ 01-22-2012 07:33 PM

Hello there
 
Hi Karen,
It's been a long time since we spoke/texted. I'm delighted you got a date and please God it won't change. I think you are worrying unnescerarily about things you shouldn't have to worry about, the Doctors and nurses look after you so well that you won't have to worry about anything, thankfully they dont expect us to walk back our beds.
I think Rae is right hun, you shouldn't worry about what ifs, it's time to think lobpositvely, this will work and why shouldnt it.your Dr isqualified could probably odo these in his sleep.
You'll be fine the nurses especially are great and they have a good way of moving you from bed to bed and you don't even feel it.

I'm sure you'll let us know how things went when you can and don't rush yourself getting better.

Lots of love and God and get better.

Sinéad xxxx:grouphug::grouphug::hug::hug:

Mark56 01-22-2012 11:16 PM

Saffy Karen
 
You go and you wonder about tryin
because you have known so much pain
if not for us here you'd be cryin
for someone out there has no brain

Encouragement comes through these threads writ
with love and affection for you
and even though this one's a half wit
I pray for you constantly too

So let loose the fears, they go flyin
along out the window with pain
let go, and do not be a tryin
to hold fears which energy drain

Just log on and tell those who doubt you
to bugger up and get on with life
you so much of good all along through
these times you just don't need their strife

So figurin how to respond then
to someone who negatively speaks
just copy these words for their readin
and they can keep them for e'er no light leaks.


You know, I have been wondering HOW to respond to the nay sayers.... and Karen, you blessed soul, it just came flooding onto your thread. I hope this is OK. I among all of these who embrace you in forum wide embraces of love, send my prayers that all will be well with you.

AND, feel welcome to give a limerick to someone, or anyone who tries to dampen your hope. Hope carries us forward through the dark times, the times of hard dealing with pain and only we who here dwell have a fix on it.

Hoping and Praying for you, you STRONG BEAUTIFUL SOUL,
Mark56:grouphug:

Saffy 01-26-2012 09:44 AM

Right folks .. That's it .. This time next week I will have my new lead. I go in at 10.30 on wednesday 1st February for a week to ten days.

For keeping me going .. My thanks and love to all of you!!

Saffy 01-31-2012 04:13 AM

Well .. here we go again! This time tomorrow I will be getting my back sorted for the Hospital.

More nervous this time .. I think perhaps because people keep asking if I'm sure I want to go through with it? No, I'm not sure, but if I don't I'll always wonder .. so come what may, fate has delivered me to this point in time and yes, I could turn back .. but I believe in going forward.

Op will probably be in the afternoon. Will try and keep in touch via Sinead as I have her text so will let her know how things are going.

My love to you all .. I feel you all there for me .. and I know your care is covering me like a big blanket.

Thank you xxx


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