SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 01-01-2011, 11:25 AM #1
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Unhappy Weird feeling/sensation and pain

Hi everyone, hope you all had a great New Year. I have been sick with the flu really bad so we did not get to do anything. This week (7th) is my post op appointment and I will finally get my stim back on and I am nervous and excited about it. Anyway, this is going to sound weird but I am noticing really weird sensations/feelings in my back. When I lean back it feels like I am laying against something solid, and this is where my laminectomy incision is. I also am still having spasms and pressure but this feeling is really weird. I am also having really bad trouble sleeping at night because my legs hurt so bad (I think its because of no stimulation) and my incisions sometimes burn. I am about to enter week 6 so hopefully this stuff is normal. I was hurting really bad because a couple days ago I kept throwing up (due to flu) and I know that was not good on my back I really hope I did not mess things up or do anything wrong because I do not ever want to have this surgery again! I have also been having a hard time because the burning pain and numbness is back in my legs and so I have to be really careful in order not to fall, usually I just turn my stim higher and it helps me with that pain and overrides it but since its off it is really bad and pain meds don't even touch that type of pain for me I have to make this short because I need to lay down again and also Gigi is up from her nap Have a great weekend and I will check back in when I can! I wish everyone a new year full of health, happiness, and less/ no pain! Take care Tara
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Old 01-01-2011, 09:52 PM #2
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Default Hi Tara

Quote:
Originally Posted by tchr012 View Post
Hi everyone, hope you all had a great New Year. I have been sick with the flu really bad so we did not get to do anything. This week (7th) is my post op appointment and I will finally get my stim back on and I am nervous and excited about it. Anyway, this is going to sound weird but I am noticing really weird sensations/feelings in my back. When I lean back it feels like I am laying against something solid, and this is where my laminectomy incision is. I also am still having spasms and pressure but this feeling is really weird. I am also having really bad trouble sleeping at night because my legs hurt so bad (I think its because of no stimulation) and my incisions sometimes burn. I am about to enter week 6 so hopefully this stuff is normal. I was hurting really bad because a couple days ago I kept throwing up (due to flu) and I know that was not good on my back I really hope I did not mess things up or do anything wrong because I do not ever want to have this surgery again! I have also been having a hard time because the burning pain and numbness is back in my legs and so I have to be really careful in order not to fall, usually I just turn my stim higher and it helps me with that pain and overrides it but since its off it is really bad and pain meds don't even touch that type of pain for me I have to make this short because I need to lay down again and also Gigi is up from her nap Have a great weekend and I will check back in when I can! I wish everyone a new year full of health, happiness, and less/ no pain! Take care Tara
Sorry about the flu..... goodness, as if surgical recovery was not enough. I do empathize regarding the tender feelings and such with your incisions. On my post surgery wait for the go date to turn on the stim, I had a good deal of tenderness there, and since I have had bone removed before with the fusion work, I did not notice anything unduly different about this laminectomy. Just look forward to that pain being controlled by your unit once it is turned on. As for me the docs all said the numbness I have in both legs and feet is permanent, an issue the device is not intended to correct..... so I still use the cane as a get around stability device. Gee, maybe I should name the cane?

Prayin for you,
Best to both of you,
Mark56
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Old 01-03-2011, 05:07 AM #3
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Oh I did wonder if something was the matter. I too hope you are ok with your stim after all the throwing up.

We need some pics of you and your little baby. How is she settling in?
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Old 01-03-2011, 08:19 PM #4
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Red face Took a short ride in the car

Saffy and Mark, Thanks for checking in on me. Today I decided to try to be in the car since tomorrow we have to take Gigi to the vet, I only lasted about an hour which was enough time to go to the pet store and back. I was hurting bad and had to come home which was good because poor Gigi was freaking out in her cage I felt really bad for her but she is better now and playing with her new toys. I had to be in the wheelchair too because with my stim not on my legs are hurting/going numb really bad but at least I was out. My incision has still been very sore since getting sick so I am going to tell the doctor on Friday and ask if its normal to still be having spasms. For the time being I have had to take more pain meds again even though I have been cutting down but oh well...oh yeah, besides the flu and then the bad cold I also ended up getting food poisoning from cereal! I did not even know it was bad but my husband checked it and yeah something was really wrong with it so I have had a really rough week and a half! Well, I am feeling pretty bad again so I will be back on here when I can. Hope you are all having a good week! Take care.Tara
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Old 01-03-2011, 09:11 PM #5
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Shocked Good Lord!

BAD cereal TOO!!
You've been hit with a triple whammy!! SO not fair!!

I'm so sorry!

Things can only go UP from here dear Tara!!

I am so anxious to hear how it goes when you can get your stim turned ON!

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Old 01-04-2011, 05:52 AM #6
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Good Lord woman .. what are you like!!? You snuggle up to your little pup .. oh I so wish I could have one but Mike's badly allergic.

Rrae .. I love your profile pic !!!
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Old 01-05-2011, 06:40 PM #7
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I don't know what to think, my roommate is suppose to get a pump in February. I was going to let him read here, but now I'm second guessing. Will a pump help , I wonder about the weird feelings and sensations and other things I read. Well let me think it over before I let him read the posts.
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Old 01-05-2011, 06:49 PM #8
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Quote:
Originally Posted by tchr012 View Post
Saffy and Mark, Thanks for checking in on me. Today I decided to try to be in the car since tomorrow we have to take Gigi to the vet, I only lasted about an hour which was enough time to go to the pet store and back. I was hurting bad and had to come home which was good because poor Gigi was freaking out in her cage I felt really bad for her but she is better now and playing with her new toys. I had to be in the wheelchair too because with my stim not on my legs are hurting/going numb really bad but at least I was out. My incision has still been very sore since getting sick so I am going to tell the doctor on Friday and ask if its normal to still be having spasms. For the time being I have had to take more pain meds again even though I have been cutting down but oh well...oh yeah, besides the flu and then the bad cold I also ended up getting food poisoning from cereal! I did not even know it was bad but my husband checked it and yeah something was really wrong with it so I have had a really rough week and a half! Well, I am feeling pretty bad again so I will be back on here when I can. Hope you are all having a good week! Take care.Tara
I know this is OT but what cereal maybe we need a recall? I haven't read or heard anything. I'm sorry you're so sick, hope you feel better soon.
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Old 01-05-2011, 08:43 PM #9
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Default Well Hello!

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Originally Posted by legalmania View Post
I don't know what to think, my roommate is suppose to get a pump in February. I was going to let him read here, but now I'm second guessing. Will a pump help , I wonder about the weird feelings and sensations and other things I read. Well let me think it over before I let him read the posts.
It's good to see you over here
Is your roommate going to be getting the pain pump or the spinal cord stimulator?

Here's a great link I pulled from the 'stickies'. It's very informative.
http://www.nationalpainfoundation.or...e-technologies

I know it seems a bit 'scary' to read some of these posts, but hopefully we can help explain the different types of pain issues going on

I'll be totally honest in saying that I was completely creeped out when first presented with the option of the SCS......but after so many years of dealing with chronic level 8 pain and no answers in sight, it was without a doubt the way to go. It has been a 'lifesaver' for quite a few, especially having a pretty high success rate in covering neuropathy/RSD burning type of pain in the limbs.

The best part is, the candidates for these units do a 'trial run'....like a 'test drive' to see if it is something they want to pursue.

Not all are success stories of course, and they do require maintenance....but several folks here will swear by them.....others will 'swear' FROM them.
That's just it - a very individualized therapy and no two people can really tell the same tale. Depends on if there are other health issues going on as well.

Has your roommate had the temporary trial procedure done yet?

Just ask questions!
He is fortunate to have you looking out for him the way you are doing. That is fantastic.

Rae
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Old 01-05-2011, 11:10 PM #10
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Default How are you doing Tara!

PRAYING FOR YOU!!

Have they 'flipped the switch' ?? OH, How I PRAAAY this will be above and beyond what you expected!!

Caring Always
Rae
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