I have been told from 4 Doctors due to my having crps type II I need to avoid most surgeries of any type due to trauma at all cost. I feel Implanting a SCS would cause trauma from placing the leads in the upper back then running them down to where they place the power pack control unit.

I have had 2 surgeries to try to fix the severed nerve in my wrist with no luck. The last surgery they did the block on all three nerves in my arm pit. This block hurt at the very beginning before it went numb which lasted for 4 days. Now I have permanent pain at a level 7 24/7 in my upper arm from this block.

So this is why I feel that having a SCS implanted will cause me more pain in a new area just as the block did.

When I went through PT after surgery they had me try a Tens unit. I tried it for 4 days and had to stop because it sent my pain throughout my entire arm to a 10+. After trying the Tens unit I cannot take any type of vibrations. It does not matter if it is sound or from riding in a vehicle. This tigers off my pain from a 7 that is my average level to a 10+ for hours.

So this is why I am not very gung-ho about even trying the tempt unit I just don't need more new permanent pain. And my back, hand, and reg Drs. tell me no stay away.

For many people these SCS implants work great and should give it a try;

As I keep tell these PM Doctors I know my body better then they do and I have tried many things that they asked of me and I am done being a test dummy for them. Only after in writing from one of these PM Drs. guaranteeing me that I will not get any new permanent pain in the area that they implanted the SCS I am done talking about this treatment.

Not one of these PM Drs. ever told me about possible complications when I asked. Need I say more. All I can say is it is about the mighty dollar. Now that I have made myself clear about the SCS the PM Dr. could care less as to how he treats my pain. I told them that there are other ways to treat my pain that has not been tried yet. They don't want to hear this.

I will keep trying to fine that right Dr. that is willing to do other cost effective treatments first.

I talked with my doctor today. He said that the doctor I saw monday supposedly is not all that experienced. Anywho, he said we will figure things out, also said the leads did not move, good news there! But said he can move the battery to better location.
The rep was there too and he did re program the stimulator, hope it helps.
Happy Easter everyone

Hi Tinkster,

I'm new to these boards and i'm so happy to have finally found a site where there are so many like minded people that all more or less have been through the horrors of chronic disabilitating pain.
I've just been reading your post and i'm wondering how things are for you now, did your Dr find a solution to your problem? God love you, you've been through a horrible time. I had my SCS implanted last Dec and I'm doing very well although things still haven't settled down and I probably will need another implant. I've always found the site in my abdomen a little bit annoying if I bend and I have to shift it do a different spot but thankfully no real pain there. My heart goes out to you, why would your Dr put in a replacement that basically had no experience and no business speaking to you about something he was clueless about, it certainly sounded that way.
Anyhow, i'd love to know how things are for you now.

Thinking of you...
Sophie

Well, I had the revision done, that is they moved the battery from one site to another. Its in my stomach now and my back already feels better, even though the incision is a bit sore it still feels so much better. The surgery took a little over two hours. I am just glad its done!
I hope I can gain some quality pain relief from the SCS now. My stomach is sore but I expected it to be post op.
Thanks for all the replies and kind words, they were really appreciated.

That's great news tinkster about your revision, hopefully it will continue to improve for you,

With every best wish,
Sinead

AND my curent PM Dr. has turned cold because my tummy cant handle big pain meds.....he is asking me to have the pain pump put in and remove my SCS...I like many, cant stand the vibration with my pain..so 3 surguries later..new set of PM Dr. insisting to replace my SCS..which Dr.S said NO..dont do it...Iam in a pickle...and recently and more importantly...I know have internal, chestwall and Tummy RSD issues..most recent set back has my attention... not my PM's cold shoulder and hopelessness... Just rememeber..we say when the fight ends and how high...NOT these mony grabbing Dr.s.....

Hugz to all...

Kathy