SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

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Old 05-06-2011, 12:30 PM #1
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Smile Hi Sophie

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Originally Posted by Sophie_ View Post
Hi there,
I had my first SCS implanted last December on my left side for lower back and left leg. Anyway since having the perm SCS it has changed my life, turned things right around for me, I'm feeling so much better but unfortunately my back pain is still a huge problem. My consultant is considering adding more leads to my right side and another box. Has anyone here had a second unit put in and how was it, did it do what you and your Dr had hoped?
I'd love to hear your experience.
Sophie

Hi Sophie

Im so glad that you are getting such good relief from the SCS you have had implanted. I too had an implant in August 2010. Like you I have severe pain in my back and down my legs. However, the SCS really only helps my legs. I was told by my Consultant and the SCS more than likely would only help with my legs. I know some posters here do get relief in their back but I dont. Ive had a few different programmes so maybe some more tweaking of the programmes might address that in the future.

There are a couple of posters with 2 SCS. But please get as much information as you can before you get a second one. Does the one already in help with your back at all? because Im wondering if it doesnt will the second one? dont want to put a damper on it but its just a thought

Take care

Jackie
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Old 05-06-2011, 01:59 PM #2
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Hi guys,

I've been looking for a forum like this for ages and I'm delighted to find one with like minded people who can relate to the pain, depression and sheer frustrations that go with chronic back pain.
The technician will tweak my back settings in two weeks as she's on holidays, I'm also hoping to go through another pain management clinic before any final decision is made.
At the moment the Medtronic system is working great for my left leg but my back is still pretty horrible. The Dr is considering putting the Navroe system for my right side and I guess that there are no guarantees that it will help for my back. I haven't made my mind up on anything yet so please if you see anyone on here with two SCS's will you pass me their link so I can get some more advice from them.

Thanks again for your replies and no doubt yee will be hearing from me alot!

Chat soon

Sophie


QUOTE=Jackiey;768202]Hi Sophie

Im so glad that you are getting such good relief from the SCS you have had implanted. I too had an implant in August 2010. Like you I have severe pain in my back and down my legs. However, the SCS really only helps my legs. I was told by my Consultant and the SCS more than likely would only help with my legs. I know some posters here do get relief in their back but I dont. Ive had a few different programmes so maybe some more tweaking of the programmes might address that in the future.

There are a couple of posters with 2 SCS. But please get as much information as you can before you get a second one. Does the one already in help with your back at all? because Im wondering if it doesnt will the second one? dont want to put a damper on it but its just a thought

Take care

Jackie [/QUOTE]
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Old 05-06-2011, 02:02 PM #3
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Default Who is your Dr

Hi guys
I've just realised yee are in Ireland too. Dr Declan OKeeffe is my Dr who is yours, probably Declan too? I find him great compared to some eejits I've seen!
Sophie, Kildare
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Old 05-06-2011, 02:16 PM #4
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Quote:
Originally Posted by Sophie_ View Post
Hi guys
I've just realised yee are in Ireland too. Dr Declan OKeeffe is my Dr who is yours, probably Declan too? I find him great compared to some eejits I've seen!
Sophie, Kildare
Sophie Ive sent you a private message ok

Jackie
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Old 05-06-2011, 02:18 PM #5
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Ooops cant actually sent you a PM.....

Id rather not put my Dr's name here on the boards Sophie......Im in Dublin . I think Ive heard of your guy.I know there is a girl on here Irljen....and she has the Nevro system...

Jackie
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Old 05-06-2011, 04:28 PM #6
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Quote:
Originally Posted by Jackiey View Post
Ooops cant actually sent you a PM.....

Id rather not put my Dr's name here on the boards Sophie......Im in Dublin . I think Ive heard of your guy.I know there is a girl on here Irljen....and she has the Nevro system...

Jackie
sophie i have sent you a pm ( well i think i have) if you respond to that i can chat with you i have the nevro for back pain and it works fantastic and i have no problem speaking with u about it. but would rather do it through private message.
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Old 05-06-2011, 04:46 PM #7
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Hi everyone

just a reminder that we have a default number of posts here before newbies can PM or post links. This is to protect you all from some pretty vile PM and post spam. So we * all * new members have to pass through this short "probation" for the overall good of all. Spammers wont stick around once they realize they can't link or PM their spam, but real members soon have enough posts to have all member privileges
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Old 05-06-2011, 04:54 PM #8
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thanks chemar!!

I forgot about that part!!
Sophie i think if u page down on the messages you will see all about me discussing my brand new now buzzing unit!! i got my nevro in december and it works fantastic on my back but i am sure u have so many questions so i cant think how u can pass ur details to me yet but please know I am here to answer any questions you have as this nevro system it is very new they only started to do them in december and we were probably both in the same hospital at the same time indecember !!
looking forward to chatting soon and hope i can answer all ur questions
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Old 05-29-2011, 07:53 AM #9
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Am surprised .. at my initialy assessment at the pain clinic I was firmly told that the stim would NOT in any way help my back pain.
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