Hi Joan

It can be typical of doctors to blame you're neuropathy pain with your hip, they are very different types of pain and the hip pain is localised to one area am I right? I have to tell you my aunt had one of those dodgy hip replacements and a year later she had to have it all done again... it's been 4 years now since that second surgery and she has never been better, she does anything and everything she wants to do. She definitely didn't want another surgery as it took alot out of the first time round but she just couldn't accept bad health, she couldn't accept the pain so she did it and she's so happy she did.

If your hip Doctor is blaming your neuro pain for your hip then I would think about getting another opionion, as you say yourself you know the difference and why wouldn't you.

Wishing you well.

Sinéad xxxx

Hi Karen,

That's great news about the appointment to see the consultant about the paddles, it's about time to you're getting sorted from May to now is a long time.

Let us know how it goes will ya?

Chat soon hun,

Sinéad

Hi Saffy-

Glad you are seeing neurosurgeon about paddle leads, as my situtaion was originally addressed by paddles, and I have been a "happy camper." May the discussion go well, and may paddles, if tried, prove to be the improvement you truly need to have precise coverage without uncomfortable anomalous side effect coverage.

Hopin and Prayin,
Mark56z

Bear hugs for both of you:



...which are nice unless they're real bears but they're not, so we're good.

Hi guys,

Unfortunately my SCS has to come out as it's not working as it should for me, I've been really uncomfortable the last few months and i most definitely am not getting any better.
Does anyone know if you can have paddles with the Nevro? or is it just leads. I asked my Consultant and he said that you can't have paddles but I still wonder if that's true or not, does anyone here know? He also said that the leads can tend to slip more with this implant.


Love to all,

Sinéad xxx

Again, I'm so sorry about your latest development, Sophie.

And sorry about the cryptic bear hugs...I did that the other night while in a Lyrica haze...it was meant to go into another thread but I can't remember what it was...hehe....was playing with Photobucket's animation features and put the snowflakes in the bear picture...I remember that much. Drugs will make you do things like that.

Oh, and I also have a question about the Nevro: I went to their web site, clicked the US link, and the first think I noticed was this at the bottom:

CAUTION: Nevro’s Senza™ system is an investigational device limited by Federal (USA) law to investigational use. Not available for sale in the United States

So I'm guessing that's that, then, hunh? We can't have it here, right?

Hi Joan
I heard something about this, is this one newer to the Nevroe systems going in now?
Someone that would know about these implants told me that the clinical trials that were supposed to have taken place hasn't been done.
Now Europe and the US have different ways of approving something, a drug or a device can be approved years in advance before the US, whether that's because there are more drugs to approve or just because are been cautious I dunno.

Gosh, it is something to be wary of though. Does anyone know what the success rates are for the Nevro? I'd love to know, now that I have to my Medtronic out!

Well that's my two cents worth!

Sinéad xxx

Any info we can get on the Nevro seems pretty sketchy. When I was getting my implant, I asked my Dr if he heard of Nevro and he didn't.
Your side of the world is breaking the new ground on this system.
I remember trying to do a search awhile back and all I got was a website similar to what Joan mentions.

I wish we had more to go on, Sophie

Don't give up hope tho. Our forum keeps growing and more people are happening upon us while they are searching the net. I'd venture to say that someone will happen along who could shed more light.
Jenna is the only person I know of who has the Nevro

I hope you are feeling a bit better tonight?

ALIAS FDA, has to receive application, proof of lab trials, and give consideration to the whole of the implications of the proposed use of any new medical anything. It is miraculous aspirin has not been removed from the shelves and treated as a controlled substance over here....... But then, they are bureaucracy...... true? I have been reminding folks of our forefathers who brought forth on this continent a new nation conceived in Darwin's concept of EVOLUTION with a letter R added to the beginning. Votes work the same way to effect RESOLUTION of career politics by allowing us to vote everyone out and plug in fresh blood- away with republicans and democrats alike for new blood, new thought, new approaches without cronyism, pork barrel legislation, and such, and oh, by the way deal new cards to a bureaucracy which stands as roadblock to improvements in society....... Oh, no, have I gone and suggested there might be a better way?

Tired of a two party logjam,
Mark56

Let there be Nevro