I didn't like the dopey effect .. and to be honest, I didn't think it did much different for me. I have been on Prozac for .... wait for it ... around 15 years !! I used to be a bit OCD .. i.e. cleaning the kitchen floor with a toothbrush and hoovering the carpet one way and getting frantic if anyone walked on it .. lol .. I now feel "normal" ... I still stress, don't get me wrong, but I feel far more in control.

Hi kids,

These drugs and their interactions with other drugs is very complicated, when the Clorazepam was mentioned to my Dr he just shook his head, said no way and walked away. This means I still have to pin him down on this problem of twitching.

I'll post another update as soon as I can, my battery is nearly dead!

Sinéad xxxx

My Implant was a Total Disaster!!! My Spin Now is a Mess and Pain and Depression are Hand in Hand!!..I Will never Allow another implant Procedure!! Controlling my Stimulation will just have to be done with Tens..I Am NOT a Guinne Pig..no more Experimental Surgery!! (that's how I now feel-6 years and still working on me) RSD and more...

I am so sad to learn yours was a disaster. It took years for me to work up the courage to seek this wonder I know after a friend at church mentioned his sister had been implanted for the first time 10 years ago. The technology was kinda kinky then, but she appreciated it. Tried another, and is now on her third and totally thrilled with it. I credit him with inspiring me to approach this path. His name, Jason, the fella on the Blessings thread whose wife has experienced miraculous cancer results this week.

Prayin for ya,
Mark56

Hi Helen .. I'm sorry you have had such an awful experience with implants.

I was told we could give up now .. or try the paddle .. and as I have the battery in already I thought .. "what the heck" and this is going to probably be my last attempt. (Though the surgeon on Thursday did mention two paddles if this one didn't work .. so there is an option for more surgery I guess)

I do totally understand your frustration and the fact that you're not letting them near you again .. I think most of us have been at that point at times. I certainly was the other day. Mind, I think mine was because I was initially told October for the laminectomy and here we are in November and I'm still waiting.

Wishing you all the best .. and keep on with those tens machines.

By the way have you seen this applicance?

http://www.boots.com/en/Circulation-Booster_1238572/ My Mum has it and it acts like a tens but is a bit more intense.

Hi guys,*

This is gonna be long, sorry

I thought I'd give you an update since I was last on.
I was allowed home on Saturday and Sunday but had to be back by 7pm on both nights.
I met the Neurosurgeon last Wednesday, he looked at the scans and said he's never seen such degeneration of the spine in a woman of my age! He also said he couldn't help me. I felt gutted. I thought maybe he could do something but no.

I saw the Orthopaedic surgeon on Thursday and yet again after a brief examination, another set back he can't help me but he does want me to get a bone scan.*

All these no's are really not helpful and I feel everywhere I go these Dr's just don't know how to help me and as the Ortho said you haven't time for science to catch up!

My Consultant tried to reassure us, he wanted to cover all bases to make sure there is no structural damage, i knew this. I told him that we're both very stressed and that we need a plan of action with a clear means to an end before I can go home. He agreed, said he wouldn't just abandon me, he said he doesn't do that, Paul mentioned the possibility of having two SCS boxes, this is possible, he'd like to sit down with us and discuss our plan of action.
I have been so worried about that as so many have washed their hands of me because the don't know how to treat me. They don't admit they can't help me just tell me it's in my*
head or I need to exercise more. Such BS I'm sick of.*

I still need the prayers and ideas too if you have any that perhaps worked for you.

Love to all,

Sinéad xxxx

Hi Helen,
I'm very sorry to hear about your situation and I truly wish you could find a Dr you are happy with to help you treat your pain. It's the worst possible situation to be in, pain won't allow you to do anything. I've been fighting my pain for about 18 years now and I had my first surgery 16 years when I was 21. I understand your frustrations and I along with everyone else on this page understand your pain.

I wish you the very best,

Sinéad

=justhelen;824237]My Implant was a Total Disaster!!! My Spin Now is a Mess and Pain and Depression are Hand in Hand!!..I Will never Allow another implant Procedure!! Controlling my Stimulation will just have to be done with Tens..I Am NOT a Guinne Pig..no more Experimental Surgery!! (that's how I now feel-6 years and still working on me) RSD and more...[/QUOTE]

What a time you are having Sinead .. My neurosurgeon said that the only thing that could help is the SCS .. after that it's a matter of just pain meds so I know how ghastly and scared you must be feeling.

Stay strong .. keep smiley .. am thinking of you x x x

Hi Karen,

Thanks for your kind words, it's good to know I'm not the only one, at least admitted that I had a problem but it wasn't one he could fix.

Love

Sinéad xxx


QUOTE=Saffy;824373]What a time you are having Sinead .. My neurosurgeon said that the oy thing that could help is the SCS .. after that it's a matter of just pain meds so I know how ghastly and scared you must be feeling.

Stay strong .. keep smiley .. am thinking of you x x x[/QUOTE]

Sinead, this is terribly sad and frustrating . I can imagine the feeling of walls crumbling all around you as one option after the next seems to fall thru.
Your consultant is sticking by your side tho, and I get a good feeling from this. He seems determined to see you and Paul thru.
It seems he's been very thorough in ruling out structural possibilities. Hopefully now the attention can be turned to these options, such as what Paul mentions.

Out of curiosity, is there ever mention of the pain pump?

How about in your neck of the woods, Karen?
Just curious.

Anyway, Sinead I'm glad you've been able to get out of the confines of the hospital for a bit. Also wanted to send out a big ((HUG)) to Paul for sticking by your side . You have wonderful people who will see you thru this, my friend. Keep focused on this aspect, rather then those idiots who say things like you need to exercise more - some people can be so clueless, I swear.

Not a day goes by without you in my prayers....

Rae