Originally Posted by pwdavis1

i have pain at the 6-10 level 5-6 days a week in my lower left quadrant. Have had this for 10 years now and have been off work for 5 months now trying to move forward. just rec'd approval for temp. medtronic implant on Nov 1. Any help appreciated. I wish you all the best and will try to post info on my results as they come along. Thank you

Originally Posted by emily24

Hi everyone!! i've just dicovered this forum its fantastic!!!
I'm really looking for other ppls experiences with having a SCS.
Here's my story: I'm 24 years old and have had chronic pain in my right flank just below my ribs for roughly 3 years now. The pain is caused by my kidney which is scarred and has a reduced function due to renal reflux from when i was a child. I only found out i had a problem with my kidney 3 years ago when i was hospitalised with recurrent kidney infections and they did a scan which showed my right kidney to be half the size of a normal kidney (sorry its a long story) Anyway after numerous tests and poking and prodding my renal specialist said that he could do no more and he wasn't happy with removeing it due to the fact that it still has some fucntion. I was referred to a pain specialist who proceeded, over almost a year, to do nerve block after nerve block (8 in total) none of which gave me any relief. I've been referred onto a new pain specialist now who is sending me for a SCS. That is pretty much all he was able to tell me! 'yes emily i'm sending you for this, no its nothing to worry about' (his exact words!! the consult lasted a whole of 5 minutes during which time he poked me in the back with apaper clip saying 'yes you have an area of hypersensitivity there alright!!')
My SCS trial is due to go ahead on Nov the 18th. I have another consult with my specialist on Sept 28th which i made myself as i feel so unprepared for this and wish to have a proper talk about it with him but i want to be prepared which is why i'm looking for your opinions and expereinces on the SCS.
ps sorry about rambling on and on!

Originally Posted by melly27

Hi Emily, My name is Melonie, welcome to the site i am quite new to the site too, i like you suffer from Kidney problems also bladder, lower back and abdominal and pelvic pain, i had my trial 29th June this year and am still waiting for the permenant SCS to be fitted, my trial went really well with approx 60% coverage mainly in my trunk area, to obtain coverage in my lower back the stimulator had to be turned up on a high setting which then resulted in alot of tingling in my legs(i do not have pain in my legs) My surgeon and rep are sure with the permenant one they will be able to get better coverage in my lower back with more settings. Ive had my pre-op which took place on the 2nd Nov so im now waiting for a date for surgery! I hope the trial works for you and i would love to hear how it goes for you, Good Luck and if you want to ask me anything which you think might help you feel free to ask away

Originally Posted by Sophie_

Hi Melonie, Emily, PWDavis,

I'm just wondering how you got on with your trials or other procedures?
It's been a while since I read this thread and I'm lying in bed in hospital after my surgery last week to remove parts of my Medtronic SCS. I'm currently waiting on an appointment for a neurosurgeon to fix two disc prolapses, at the moment I'm in that much pain that I can't do anything.

If yee happen to read this please do let us know, we're such a family on this site that we like to support each other through their tough times.

All the best

Sinéad

Originally Posted by Sandy Kay

Hi Melonie
I to suffer from abdominal pain and had my implant Aug. 5. I have gotten about 60% relief and and reduced my meds significantly. Like you when turning it up the tingling went down my legs to the knees. The Boston Sci rep was able to walk me through the adjustments with the remote over the phone in just a few minutes.
Hope your wait for surgery is short and the stim brings you the relief you are waiting for.

Good Luck,
Sandy