[Sandy Kay]

A week of ups and downs. After a couple weeks of PT in office and pool therapy the spasms lessened and I was able to move without stabbing pain. I felt so grateful for some relief. At PT Wed. They had me use the pilates machine. The stretch felt so good.
Come Wed night the spasms in my back had lessened But I started having stabbing pains in my left calf. I thought maybe it was due to the new stretches so I iced, used the spa and tried to let my leg relax and heal. Night is an attack of severe pain in my calf. Any movement causes pain. Nothing is helping. I am limping around and any pressure on my left leg is excruciating. Went to urgent care since my PM Dr is out of town. X- Rays show extensive arthritis and bone spurs. Dr put me on prednisone. I hope it helps.

The Scs continues to take care of my abdominal pain and this relief is a true blessing.
When I saw the Boston Scientific rep 2 weeks ago he set up a program for my lower back, I didn't' know I could have a program for my abdomen and back. I am thankful for the flexibility the SCS has.

Thanks for giving me space to vent. My husband has been so supportive the last 6 years I hate to complain to him. I know he wants to help but I know he gets tired of having a wife in pain. I don't want pain to become my identity but lately it seems to have taken over. Hopefully I can get away from this pity party that surrounds me.


Sandy

[JavaJan]

(((((((((((((( Sandy Kay )))))))))))))

I'm so sorry that you're having this new pain! I understand what you said about not wanting pain to become your identity. Sometimes I feel like people just get sick and tired of my excuses to not join in and participate in life because of the @#$#%^$ pain! Hopefully the combination of the prednisone, therapy, and new SCS settings will give you some real relief.

Jan

Originally Posted by Sandy Kay

A week of ups and downs. After a couple weeks of PT in office and pool therapy the spasms lessened and I was able to move without stabbing pain. I felt so grateful for some relief. At PT Wed. They had me use the pilates machine. The stretch felt so good.
Come Wed night the spasms in my back had lessened But I started having stabbing pains in my left calf. I thought maybe it was due to the new stretches so I iced, used the spa and tried to let my leg relax and heal. Night is an attack of severe pain in my calf. Any movement causes pain. Nothing is helping. I am limping around and any pressure on my left leg is excruciating. Went to urgent care since my PM Dr is out of town. X- Rays show extensive arthritis and bone spurs. Dr put me on prednisone. I hope it helps.

The Scs continues to take care of my abdominal pain and this relief is a true blessing.
When I saw the Boston Scientific rep 2 weeks ago he set up a program for my lower back, I didn't' know I could have a program for my abdomen and back. I am thankful for the flexibility the SCS has.

Thanks for giving me space to vent. My husband has been so supportive the last 6 years I hate to complain to him. I know he wants to help but I know he gets tired of having a wife in pain. I don't want pain to become my identity but lately it seems to have taken over. Hopefully I can get away from this pity party that surrounds me.


Sandy

[Saffy]

Feel for you. I too suffer from frequent back spasms when trying to walk further than a few steps. Am in the process of waiting on a self propelled wheelchair which I found incredible in hospital and have borrowed my mums little mobility scooter for now.

The only thing that helps me is diazepam and rest .. Aswell as my pain relief.

[Mark56]

Hello Dear SandyKay! May you be blessed on this day, and may pain be recognized for what it is.... a symptom of things gone wrong, and Not be or become your identity. You are not Pain, for you are Sandy, she who comes along in life to bring Joy to others. You are God's beloved and the beloved of your faithful husband as well..... two utterly important blessings which center You.

Throughout the seven years of so much pain following the wreck, there were times when I lapsed into feelings of helplessness, and those times were so dark. Spending day after day in our bedroom, gazing out of the window, it was not easy thinking other than that the happenstance of NOT stopping to get coffee on the way to the airport one morning so as to avoid hurry had placed me precisely in the wrong spot at definitely the wrong time so as to be consigned to the prison of our bedroom due to the pain which followed. Helpless. I felt that for sure.

Then the contrast of being here on a roadtrip this weekend, visiting our parents, singing Ave Maria in a wedding yesterday then at church today demonstrates for me the great reality of God watching over us so life might change for the better. Allowing us the nurturing of hope for more tomorrows where pain is not a jailer and placed into perspective.

Today, sister-in-law Terri, whose horribly dramatic RSD matter left her without legs in a motorized wheelchair managing pain only with meds until her day for glory comes, came to the tiny church of this little mountain community on her motorized wheelchair so she could hear me sing. She cried tears of joy, for it has been over seven years since I could come here to sing. We walked alongside her on the short trip home on the street since sidewalks here are a rare and rag tag commodity. Thinking of her, I know I am blessed, for we were able to come once again to visit.

It has been a good Sunday, laying back on chairs in the shade of the trees visiting. Hummingbirds flitting to and fro while butterflies in great numbers alight here and there on flowers. The grace of peace falling all around us. This particular paragraph is the essence I sought to capture for you today Sandy. Peace as an image of shade, cool grass, hummingbirds, and butterflies all rolled up into a Sunday prayer for you that God embrace you as His beloved, sharing comfort and a lessening of pain.

Praying,
Mark56zzzzz [Maybe Rae has some butterflies or hummingbirds in her left pocket]

[ger715]

Originally Posted by Saffy

Feel for you. I too suffer from frequent back spasms when trying to walk further than a few steps. Am in the process of waiting on a self propelled wheelchair which I found incredible in hospital and have borrowed my mums little mobility scooter for now.

The only thing that helps me is diazepam and rest .. Aswell as my pain relief.

I use the generic diazepam (vallium) as well. I take it, along with meds for the spine and PN pain; but as an added benefit, the Spasms I have had on the left side of neck and shoulder have lessened quite a bit. For years, had not been able lay in bed on left side because of neck and shoulder pain/spasms. Now, I can at least lay on both left and right sides. The diazepam is for anxiety and muscle spasms. I had taken muscle relaxants in the past, and nothing helped as much as the diazepam. Glad to hear it has helped you as well.

Gerry

[Spiney95]

All I can add is that you will remain on my prayer list and the list in my apt. building. I live in a senior/handicapped building and many of us aren't terribly functional and have become prayer warriors............perhaps the most important thing we have ever done. ASAP.

[Sandy Kay]

He hears our prayers but has three answers, Yes, No and Not Now.
Thank you for all your prayers. The spasms have lessened. The steroids have helped. I am scheduled for a CT scan tomorrow am. We'll see what happens.

Took my husband Joe for an MRI today. Three years ago he had a complete rupture of his quad tendon due to slipping on the golf course. After surgery and months of therapy he's back on the course. But, he feels the knee is acting up again and keeps giving out. I hope a brace and time is all he needs.

We need to get our bodies moving as we are planing to go to Wimbledon in July. I hope we are able to get get around and see London. I am so excited. This is my first time visiting Britain. What an exciting time to be there with the Queen's Jubilee, Wimbledon and the Olympics all going on. Does anyone have any tourist suggestions?

Sandy

[Sophie_]

Hi Sandy,

You poor thing it truly is horrible when these spasms take hold. I have to tell you that i suffer terribly from these spasms anywhere, like you in my back, legs, upper body anywhere and I dont know what to do either a couple of weeks ago I ended up A&E or the ER as Americans call it and they had to give me morphine injections to make the spasms in my left leg go away. It worked but I remember nothing, thank god for my hubby and my sister to look after me.

I hope you get better soon and that medication the Dr gave you works.

Take care my friend,

Sinéad xxx





[QUOTE=Sandy Kay;885535]
Come Wed night the spasms in my back had lessened But I started having stabbing pains in my left calf. I thought maybe it was due to the new stretches so I iced, used the spa and tried to let my leg relax and heal. Night is an attack of severe pain in my calf. Any movement causes pain. Nothing is helping. I am limping around and any pressure on my left leg is excruciating. Went to urgent care since my PM Dr is out of town. X- Rays show extensive arthritis and bone spurs. Dr put me on prednisone. I hope it helps.