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Old 07-29-2012, 07:04 PM #1
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JavaJan JavaJan is offline
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Join Date: May 2012
Location: Far Northern California
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JavaJan JavaJan is offline
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Join Date: May 2012
Location: Far Northern California
Posts: 171
10 yr Member
Confused Trial SCS breakdown--rough day

Well, up until today things have gone pretty well so far with my trial SCS. I had some kind of harsh stim from the right lead in my ribs, but found a way around it by unplugging that lead, so that I was getting good coverage in my left leg and fairly good coverage in my lower back. Went to bed last night and didn't need the SCS at all until this morning. I plugged in the left lead, and....nothing. No tingling, buzzing, warmth, nothing at all. Boo hooo!!

The right lead produces so much rib stimulation that it practically makes me jump out of my skin, so today I haven't used the unit at all. The pain is back, of course. I would've called my rep, but tomorrow I have an appt. with my doc where they're going to take everything out anyway (can't wait to get these itchy bandages off!). I'm guessing that somehow during the night I turned the wrong way or something and it caused the leads in my spine to move. Oh well, at least it worked so that I know it's going to be something that CAN reduce my pain. Sure would have been nice to have one more day of relief, though.

Today's kind of a rough one for another reason, too. It's the anniversary of the death of my sweet little boy who passed away due to complications of cerebral palsy. Even though it's been several years, the grief is always there. You just don't ever "get over" the loss of a child. Tomorrow would have been his birthday...he died the day before his 14th birthday, so this time of year is kind of a double whammy for me. I just keep remembering that "The will of God will never take me where the grace of God cannot keep me." I do know that my precious baby is in heaven now, able to run, jump, play, and make noise, like he couldn't do here on earth! But oh, how I miss him.

Praying that you all are having a peaceful day....
Jan
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