Welcome hurtstosit! Most of us here have been through all that you have described. It is usually a never ending series of doctor's visits while they try to figure out what is wrong with you. Sorry you have had to deal with all of this.

When I was first approached about a spinal cord stimulator I too thought I was way too young. However, I it is the best thing I have ever done for my pain - so I have no complaints. If it gives you some relief and some semblance of life back - then it doesn't hurt to give it a try

Welcome!
I'm sorry for the reason which brings you, but we're always grateful to have this place to share and not feel like we're alone in this.

This pain you describe - pins and needles - does it also feel like a burning pain? Have any of your docs mentioned any type of neuropathy (nerve pain)?
If so, then the chances of the SCS working for you would be pretty high.

Like the others have said, if you have confidence in your doctor, then shoot, go for the trial. I just wish you had a more clear diagnosis.
Stick around! You'll get great input here and you will gain an accurate understanding of what is involved. There's a diverse group of testimonies here, so you'll hear the good, the bad, and the ugly.
I too am tickled pink with my SCS. It does great in covering my horrendous burning peripheral neuropathy in both legs and lower back. It's a very soothing sensation.

Glad you're here!

Rae

Yes I wish I had a clear diagnosis as well. Some doctors have characterized this pain as neuropathic and I would agree given the mix of pins and needles sensations across my pelvis and sometimes down my legs.

Hi Hurtstosit.....

Welcome to this great forum you will get all the help and advice you need here, so ask ask ask as much as you want.

I do think from reading your post that you MIGHT benefit from a trial for the SCS. I suffer with Failed Back Syndrome after having numerous operations on my lower back ie. spinal fusions, discetomies, removal of hardware and then having the SCS permanently implanted, which is there now two years and definitely it is having a very positive effect on my lower back and down my legs. I suffer with a lot of leg pain from my buttocks to my feet and this definitely helps that pain. I too can relate to the pins and needles. I also get this awful burning sensation in my legs which drives me to distraction but the SCS helps that too.

Im not off all my meds but I have certainly reduced them....

Definitely go for the trial and see how you get on, it could just be the answer to your prayers

Take care

Jackie

Well Hurts, I know there is no VOTE here, just that my results from the SCS have been so positive as Jackiey relates for herself, and my symptoms are low lumbar from the waist down the legs..... so, given I no longer consume any pain meds and control it all via the SCS I am a positive thinker from experience.

Yup,
Mark56zz
P.S. Thank you, Jackiey!!

I am not surprised that you don't have a deffinative dx yet. If you have a couple of operations, they can always call it Failed Back Syndrome. Bad joke.

Don't be concerned about getting an scs at your age if the trial gives you relief. You need to remain functional. If it gives you this and helps keep the pain meds to a minimum you will be amoung the blessed. Take it one day at a time and stick around here for support. Best wishes.

Hey there!
I was 23 when I was dx w/CRPS and after having tried EVERYTHING under the sun (much like you have), I am now 25 and on my way to my SCS trial very shortly (w/in the next couple weeks). I can't live with this pain the rest of my life, and as much as I resisted it, I've gotta give SCS a chance. There is no "right" age to suffer! Although you'd think some docs think I should, given their reaction to me- but that's a cross many of us w/CRPS must bear (bare?) lol, anyway, w/a condition that sounds very similar to mine, I'd say go for it. Good luck, and God Bless!